Cystic Fibrosis Forum (EXP)

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  1. M

    Tired of fighting.

    I understand your dilemma except I don't move homes, just clinics. I have already switched Docs for my daughter once and I am contemplating doing it again. Bottom line is most of them that I have met don't really and truely listen to your concerns or questions. I have no clue why. They don't...
  2. M

    Tired of fighting.

    I understand your dilemma except I don't move homes, just clinics. I have already switched Docs for my daughter once and I am contemplating doing it again. Bottom line is most of them that I have met don't really and truely listen to your concerns or questions. I have no clue why. They don't...
  3. M

    Tired of fighting.

    I understand your dilemma except I don't move homes, just clinics. I have already switched Docs for my daughter once and I am contemplating doing it again. Bottom line is most of them that I have met don't really and truely listen to your concerns or questions. I have no clue why. They don't...
  4. M

    Tired of fighting.

    I understand your dilemma except I don't move homes, just clinics. I have already switched Docs for my daughter once and I am contemplating doing it again. Bottom line is most of them that I have met don't really and truely listen to your concerns or questions. I have no clue why. They don't...
  5. M

    Tired of fighting.

    I understand your dilemma except I don't move homes, just clinics. I have already switched Docs for my daughter once and I am contemplating doing it again. Bottom line is most of them that I have met don't really and truely listen to your concerns or questions. I have no clue why. They don't...
  6. M

    Nebbed Mucomyst...

    Thanks Megan, I try to put full faith that her doc is doing and suggesting the right things, but why would the #1 center in the country suggest nebbed NAC and it have the horrible side effects her doc is saying?? They have to be #1 for a reason and I am sure this isn't the only thing but it...
  7. M

    Nebbed Mucomyst...

    Thanks Megan, I try to put full faith that her doc is doing and suggesting the right things, but why would the #1 center in the country suggest nebbed NAC and it have the horrible side effects her doc is saying?? They have to be #1 for a reason and I am sure this isn't the only thing but it...
  8. M

    Nebbed Mucomyst...

    Thanks Megan, I try to put full faith that her doc is doing and suggesting the right things, but why would the #1 center in the country suggest nebbed NAC and it have the horrible side effects her doc is saying?? They have to be #1 for a reason and I am sure this isn't the only thing but it...
  9. M

    Nebbed Mucomyst...

    Thanks Megan, I try to put full faith that her doc is doing and suggesting the right things, but why would the #1 center in the country suggest nebbed NAC and it have the horrible side effects her doc is saying?? They have to be #1 for a reason and I am sure this isn't the only thing but it...
  10. M

    Nebbed Mucomyst...

    Thanks Megan, I try to put full faith that her doc is doing and suggesting the right things, but why would the #1 center in the country suggest nebbed NAC and it have the horrible side effects her doc is saying?? They have to be #1 for a reason and I am sure this isn't the only thing but it...
  11. M

    Nebbed Mucomyst...

    That's a great idea! I found out last night by looking on Blue Cross' website that with the blue card program you can use your insurance if you travel or move. We currently have Arkansas Blue Cross and Blue Shield so if we went to a cf center out of state, it might be covered. I am definetely...
  12. M

    Nebbed Mucomyst...

    That's a great idea! I found out last night by looking on Blue Cross' website that with the blue card program you can use your insurance if you travel or move. We currently have Arkansas Blue Cross and Blue Shield so if we went to a cf center out of state, it might be covered. I am definetely...
  13. M

    Nebbed Mucomyst...

    That's a great idea! I found out last night by looking on Blue Cross' website that with the blue card program you can use your insurance if you travel or move. We currently have Arkansas Blue Cross and Blue Shield so if we went to a cf center out of state, it might be covered. I am definetely...
  14. M

    Nebbed Mucomyst...

    That's a great idea! I found out last night by looking on Blue Cross' website that with the blue card program you can use your insurance if you travel or move. We currently have Arkansas Blue Cross and Blue Shield so if we went to a cf center out of state, it might be covered. I am definetely...
  15. M

    Nebbed Mucomyst...

    That's a great idea! I found out last night by looking on Blue Cross' website that with the blue card program you can use your insurance if you travel or move. We currently have Arkansas Blue Cross and Blue Shield so if we went to a cf center out of state, it might be covered. I am definetely...
  16. M

    Nebbed Mucomyst...

    Great, now I am concerned too. He seems like a very knowledgeable guy, but I know for a fact, he said this. He supposedly has been working with CF for 20+ years. Know that I think abouut it, they used Mucomyst orally for Mariah after her adhesion in Feb. 2009 She went to the bathroom normally...
  17. M

    Nebbed Mucomyst...

    Great, now I am concerned too. He seems like a very knowledgeable guy, but I know for a fact, he said this. He supposedly has been working with CF for 20+ years. Know that I think abouut it, they used Mucomyst orally for Mariah after her adhesion in Feb. 2009 She went to the bathroom normally...
  18. M

    Nebbed Mucomyst...

    Great, now I am concerned too. He seems like a very knowledgeable guy, but I know for a fact, he said this. He supposedly has been working with CF for 20+ years. Know that I think abouut it, they used Mucomyst orally for Mariah after her adhesion in Feb. 2009 She went to the bathroom normally...
  19. M

    Nebbed Mucomyst...

    Great, now I am concerned too. He seems like a very knowledgeable guy, but I know for a fact, he said this. He supposedly has been working with CF for 20+ years. Know that I think abouut it, they used Mucomyst orally for Mariah after her adhesion in Feb. 2009 She went to the bathroom normally...
  20. M

    Nebbed Mucomyst...

    Great, now I am concerned too. He seems like a very knowledgeable guy, but I know for a fact, he said this. He supposedly has been working with CF for 20+ years. <br /> <br />Know that I think abouut it, they used Mucomyst orally for Mariah after her adhesion in Feb. 2009 <br /> <br />She went...
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