Cystic Fibrosis Forum (EXP)

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  1. B

    When and how do I tell her?

    My daughter is only 5 years old, she was diagnosed at 5 months. She knows she has CF, and she has no problems telling her friends or anyone who asks why she takes the enzymes, or why we do the CPT and why she has the puffers. I know she's still a little young for this, but I often wonder how...
  2. B

    Delta F508

    My daughter is 5 years old and was diagnosed at 5 months. We too thought she was pretty "healthy" as far as a CF kid can be, anyway. But just this last May, she ended up with a pneumonia/collapsed lung and was hospitalized for two weeks. I was devastated because it seems like it was the...
  3. B

    Delta F508

    My daughter is 5 years old and was diagnosed at 5 months. We too thought she was pretty "healthy" as far as a CF kid can be, anyway. But just this last May, she ended up with a pneumonia/collapsed lung and was hospitalized for two weeks. I was devastated because it seems like it was the...
  4. B

    Delta F508

    My daughter is 5 years old and was diagnosed at 5 months. We too thought she was pretty "healthy" as far as a CF kid can be, anyway. But just this last May, she ended up with a pneumonia/collapsed lung and was hospitalized for two weeks. I was devastated because it seems like it was the...
  5. B

    Delta F508

    My daughter is 5 years old and was diagnosed at 5 months. We too thought she was pretty "healthy" as far as a CF kid can be, anyway. But just this last May, she ended up with a pneumonia/collapsed lung and was hospitalized for two weeks. I was devastated because it seems like it was the...
  6. B

    Delta F508

    My daughter is 5 years old and was diagnosed at 5 months. We too thought she was pretty "healthy" as far as a CF kid can be, anyway. But just this last May, she ended up with a pneumonia/collapsed lung and was hospitalized for two weeks. I was devastated because it seems like it was the...
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