Cystic Fibrosis Forum (EXP)

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  1. J

    This may be a stupid question but...

    I know that warm water can harbor Pseudomonas aeruginosa, but I'm wondering how it actually gets into the lungs? <br />Does it become air born and get in the lungs when the kids breath? Is it ingested and once in the blood stream get into the lungs? <br />My son has yet to culture PA and I want...
  2. J

    Viokase powder

    My son is on Viokase powder, we get ours from our pharmacy and on the bottle here is what it says about storage Keep tightly closed, in a dry place, at a temperature not exceeding 25 degrees C (77 degrees F)
  3. J

    Viokase powder

    My son is on Viokase powder, we get ours from our pharmacy and on the bottle here is what it says about storage Keep tightly closed, in a dry place, at a temperature not exceeding 25 degrees C (77 degrees F)
  4. J

    Viokase powder

    My son is on Viokase powder, we get ours from our pharmacy and on the bottle here is what it says about storage Keep tightly closed, in a dry place, at a temperature not exceeding 25 degrees C (77 degrees F)
  5. J

    Viokase powder

    My son is on Viokase powder, we get ours from our pharmacy and on the bottle here is what it says about storage Keep tightly closed, in a dry place, at a temperature not exceeding 25 degrees C (77 degrees F)
  6. J

    Viokase powder

    My son is on Viokase powder, we get ours from our pharmacy and on the bottle here is what it says about storage <br /> <br />Keep tightly closed, in a dry place, at a temperature not exceeding 25 degrees C (77 degrees F)
  7. J

    How do you deal with bad news

    I just wanted to post that I'm pretty sure that I am finally coming to terms with Jack eventually needing a liver transplant. Yesterday my daughter and I were at the dentist office getting our teeth clean. My dentist knows all about Jack and when I told her about his liver she almost started...
  8. J

    How do you deal with bad news

    I just wanted to post that I'm pretty sure that I am finally coming to terms with Jack eventually needing a liver transplant. Yesterday my daughter and I were at the dentist office getting our teeth clean. My dentist knows all about Jack and when I told her about his liver she almost started...
  9. J

    How do you deal with bad news

    I just wanted to post that I'm pretty sure that I am finally coming to terms with Jack eventually needing a liver transplant. Yesterday my daughter and I were at the dentist office getting our teeth clean. My dentist knows all about Jack and when I told her about his liver she almost started...
  10. J

    How do you deal with bad news

    I just wanted to post that I'm pretty sure that I am finally coming to terms with Jack eventually needing a liver transplant. Yesterday my daughter and I were at the dentist office getting our teeth clean. My dentist knows all about Jack and when I told her about his liver she almost started...
  11. J

    How do you deal with bad news

    I just wanted to post that I'm pretty sure that I am finally coming to terms with Jack eventually needing a liver transplant. <br />Yesterday my daughter and I were at the dentist office getting our teeth clean. My dentist knows all about Jack and when I told her about his liver she almost...
  12. J

    G-tube formula?

    <span class="FTHighlightFont">We do Pediasure and, up to now added Peptamin Jr. which is also being discontinued with the Novartis/Nestle merger or buyout or whatever it is.</span ft> I went to Nestle's website and didn't see any information about the Peptamen Jr. My son also is on a...
  13. J

    G-tube formula?

    <span class="FTHighlightFont">We do Pediasure and, up to now added Peptamin Jr. which is also being discontinued with the Novartis/Nestle merger or buyout or whatever it is.</span ft> I went to Nestle's website and didn't see any information about the Peptamen Jr. My son also is on a...
  14. J

    G-tube formula?

    <span class="FTHighlightFont">We do Pediasure and, up to now added Peptamin Jr. which is also being discontinued with the Novartis/Nestle merger or buyout or whatever it is.</span ft> I went to Nestle's website and didn't see any information about the Peptamen Jr. My son also is on a...
  15. J

    G-tube formula?

    <span class="FTHighlightFont">We do Pediasure and, up to now added Peptamin Jr. which is also being discontinued with the Novartis/Nestle merger or buyout or whatever it is.</span ft> I went to Nestle's website and didn't see any information about the Peptamen Jr. My son also is on a...
  16. J

    G-tube formula?

    <span class="FTHighlightFont">We do Pediasure and, up to now added Peptamin Jr. which is also being discontinued with the Novartis/Nestle merger or buyout or whatever it is.</span ft> <br /> <br />I went to Nestle's website and didn't see any information about the Peptamen Jr. <br />My son also...
  17. J

    How do you deal with bad news

    I am so thankfull that there are sites like this to help us all out. Hopefully Jack does not need a transplant for many years to come but if his liver takes a bad turn I am greatfull that all of you are here to help me get through the tough times ahead. Thankyou all again Carey
  18. J

    How do you deal with bad news

    I am so thankfull that there are sites like this to help us all out. Hopefully Jack does not need a transplant for many years to come but if his liver takes a bad turn I am greatfull that all of you are here to help me get through the tough times ahead. Thankyou all again Carey
  19. J

    How do you deal with bad news

    I am so thankfull that there are sites like this to help us all out. Hopefully Jack does not need a transplant for many years to come but if his liver takes a bad turn I am greatfull that all of you are here to help me get through the tough times ahead. Thankyou all again Carey
  20. J

    How do you deal with bad news

    I am so thankfull that there are sites like this to help us all out. Hopefully Jack does not need a transplant for many years to come but if his liver takes a bad turn I am greatfull that all of you are here to help me get through the tough times ahead. Thankyou all again Carey
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