Cystic Fibrosis Forum (EXP)

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  1. W

    new baby

    Hi I'm Lucy's Dad and just wanted to add something that in my opinion has helped us tremendously. "Optimism," I realize that it might not change the situation that we were being faced with, but I believe Lucy reacts to our positive energy. We found it helpful to mention this to family members...
  2. W

    new baby

    Hi I'm Lucy's Dad and just wanted to add something that in my opinion has helped us tremendously. "Optimism," I realize that it might not change the situation that we were being faced with, but I believe Lucy reacts to our positive energy. We found it helpful to mention this to family members...
  3. W

    new baby

    Hi I'm Lucy's Dad and just wanted to add something that in my opinion has helped us tremendously. "Optimism," I realize that it might not change the situation that we were being faced with, but I believe Lucy reacts to our positive energy. We found it helpful to mention this to family members...
  4. W

    new baby

    Hi I'm Lucy's Dad and just wanted to add something that in my opinion has helped us tremendously. "Optimism," I realize that it might not change the situation that we were being faced with, but I believe Lucy reacts to our positive energy. We found it helpful to mention this to family members...
  5. W

    new baby

    Hi I'm Lucy's Dad and just wanted to add something that in my opinion has helped us tremendously. "Optimism," I realize that it might not change the situation that we were being faced with, but I believe Lucy reacts to our positive energy. We found it helpful to mention this to family members...
  6. W

    Hypertonic Saline causing a deep wet cough

    Hello, my little girl is now 5 months & at her last CF appt we decided to begin hypertonic saline through a nebulizer as a prophylactic treatment even though she is asymptomatic (her lungs sound fantastic). We did the treatment about 5 minutes per day for 5 days & then noticed she had developed...
  7. W

    Hypertonic Saline causing a deep wet cough

    Hello, my little girl is now 5 months & at her last CF appt we decided to begin hypertonic saline through a nebulizer as a prophylactic treatment even though she is asymptomatic (her lungs sound fantastic). We did the treatment about 5 minutes per day for 5 days & then noticed she had developed...
  8. W

    Hypertonic Saline causing a deep wet cough

    Hello, my little girl is now 5 months & at her last CF appt we decided to begin hypertonic saline through a nebulizer as a prophylactic treatment even though she is asymptomatic (her lungs sound fantastic). We did the treatment about 5 minutes per day for 5 days & then noticed she had developed...
  9. W

    Hypertonic Saline causing a deep wet cough

    Hello, my little girl is now 5 months & at her last CF appt we decided to begin hypertonic saline through a nebulizer as a prophylactic treatment even though she is asymptomatic (her lungs sound fantastic). We did the treatment about 5 minutes per day for 5 days & then noticed she had developed...
  10. W

    Hypertonic Saline causing a deep wet cough

    Hello, my little girl is now 5 months & at her last CF appt we decided to begin hypertonic saline through a nebulizer as a prophylactic treatment even though she is asymptomatic (her lungs sound fantastic). We did the treatment about 5 minutes per day for 5 days & then noticed she had developed...
  11. W

    new baby

    Hi, I guess we're just a bit ahead of you... my daughter Lucia Grace "Lucy" was diagnosed at 6 days old & she's now 5 months. The past 5 months have been a learning curve with giving enzymes, salt, vitamins & Zantac as well as doing chest PT and going to CF clinic appointments as well as the...
  12. W

    new baby

    Hi, I guess we're just a bit ahead of you... my daughter Lucia Grace "Lucy" was diagnosed at 6 days old & she's now 5 months. The past 5 months have been a learning curve with giving enzymes, salt, vitamins & Zantac as well as doing chest PT and going to CF clinic appointments as well as the...
  13. W

    new baby

    Hi, I guess we're just a bit ahead of you... my daughter Lucia Grace "Lucy" was diagnosed at 6 days old & she's now 5 months. The past 5 months have been a learning curve with giving enzymes, salt, vitamins & Zantac as well as doing chest PT and going to CF clinic appointments as well as the...
  14. W

    new baby

    Hi, I guess we're just a bit ahead of you... my daughter Lucia Grace "Lucy" was diagnosed at 6 days old & she's now 5 months. The past 5 months have been a learning curve with giving enzymes, salt, vitamins & Zantac as well as doing chest PT and going to CF clinic appointments as well as the...
  15. W

    new baby

    Hi, I guess we're just a bit ahead of you... my daughter Lucia Grace "Lucy" was diagnosed at 6 days old & she's now 5 months. The past 5 months have been a learning curve with giving enzymes, salt, vitamins & Zantac as well as doing chest PT and going to CF clinic appointments as well as the...
  16. W

    Synagis

    Regence Blue Shield never did cover it for us - we went through the second appeal & lost... But, lucky for us - our coverage through work changed to First Choice & they decided to cover it as soon as our MD said she needed it! Thankfully, she's now received it & is doing well. Still stinks that...
  17. W

    Synagis

    Regence Blue Shield never did cover it for us - we went through the second appeal & lost... But, lucky for us - our coverage through work changed to First Choice & they decided to cover it as soon as our MD said she needed it! Thankfully, she's now received it & is doing well. Still stinks that...
  18. W

    Synagis

    Regence Blue Shield never did cover it for us - we went through the second appeal & lost... But, lucky for us - our coverage through work changed to First Choice & they decided to cover it as soon as our MD said she needed it! Thankfully, she's now received it & is doing well. Still stinks that...
  19. W

    Synagis

    Regence Blue Shield never did cover it for us - we went through the second appeal & lost... But, lucky for us - our coverage through work changed to First Choice & they decided to cover it as soon as our MD said she needed it! Thankfully, she's now received it & is doing well. Still stinks that...
  20. W

    Synagis

    Regence Blue Shield never did cover it for us - we went through the second appeal & lost... But, lucky for us - our coverage through work changed to First Choice & they decided to cover it as soon as our MD said she needed it! Thankfully, she's now received it & is doing well. Still stinks that...
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