Cystic Fibrosis Forum (EXP)

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  1. H

    Going into hospital

    i just got out of club med yesterday. i was there for two weeks. i just make sure i always wash my hands. i know all areas of a hospital are full of germs, but this time i was on the perinatal floor, so i wasn't as worried. i was on merapenum and tobra. i always bring my own pillow and...
  2. H

    excited

    so today is day nine/ten for me. i got admitted last tuesday and i just wanted to show what an improvement i've made. the cefepine, vancomycin, and tobra are doing their job. also the manual cpt three times a day isn't doing bad either. May 29Fvc 65%Fev1 59%TodayFvc 95%Fev1 72.7% they are saying...
  3. H

    VX 809/770 Phase 2 interim results - 5-10% improvement in lung function

    as someone asked in an earlier post, while taking this drug does the patient stay on their breathing treatment regimen????
  4. H

    VX 809/770 Phase 2 interim results - 5-10% improvement in lung function

    as someone asked in an earlier post, while taking this drug does the patient stay on their breathing treatment regimen????
  5. H

    RT's

    just curious if anyone had rt's come to their house to do cpt? i have a vest, but i think the manual cpt works the best.
  6. H

    RT's

    just curious if anyone had rt's come to their house to do cpt? i have a vest, but i think the manual cpt works the best.
  7. H

    TOBI podhaler

    <br>When will the TOBI podhaler be out in the US?  I just read an article about it coming out in the UK today <a href="http://www.express.co.uk/features/view/272387">http://www.express.co.uk/features/view/272387</a>  I would love that.
  8. H

    TOBI podhaler

    <br>When will the TOBI podhaler be out in the US? I just read an article about it coming out in the UK today <a href="http://www.express.co.uk/features/view/272387">http://www.express.co.uk/features/view/272387</a> I would love that.
  9. H

    TOBI podhaler

    <br>When will the TOBI podhaler be out in the US? I just read an article about it coming out in the UK today <a href="http://www.express.co.uk/features/view/272387">http://www.express.co.uk/features/view/272387</a> I would love that.
  10. H

    Vitamin Levels

    my vitamin d is 17 and they want cf patients to be greater than 30.  i'm on 800 ius 1200 mg of calcium a day.  i also started taking abdek(source cf) gels while i was in the hospital.  with creon you get them free. i already have osteopenia so i need to make sure i'm getting enough vitamins.
  11. H

    Vitamin Levels

    my vitamin d is 17 and they want cf patients to be greater than 30. i'm on 800 ius 1200 mg of calcium a day. i also started taking abdek(source cf) gels while i was in the hospital. with creon you get them free. i already have osteopenia so i need to make sure i'm getting enough vitamins.
  12. H

    Vitamin Levels

    <BR>my vitamin d is 17 and they want cf patients to be greater than 30. i'm on 800 ius 1200 mg of calcium a day. i also started taking abdek(source cf) gels while i was in the hospital. with creon you get them free. i already have osteopenia so i need to make sure i'm getting enough vitamins.
  13. H

    meds

    so this is going to be night six for me in the hospital.  i wanted to ask how many meds have you done at home at one time?  the most i've done is two.  i really want to leave friday, but it might just be worth my while to stay in til next wednesday since i have three different meds to do.  right...
  14. H

    meds

    so this is going to be night six for me in the hospital. i wanted to ask how many meds have you done at home at one time? the most i've done is two. i really want to leave friday, but it might just be worth my while to stay in til next wednesday since i have three different meds to do. right now...
  15. H

    meds

    <p>so this is going to be night six for me in the hospital. i wanted to ask how many meds have you done at home at one time? the most i've done is two. i really want to leave friday, but it might just be worth my while to stay in til next wednesday since i have three different meds to do. right...
  16. H

    first hospital stay

    not sure if i'll be here the whole time. i'm really wanting to come home for a wedding, but we'll just see how my health is first. yes the admission was planned, but it's a state funded hospital so i just emergency patients get first dibs. i have health insurance, but this is the hospital my...
  17. H

    first hospital stay

    not sure if i'll be here the whole time. i'm really wanting to come home for a wedding, but we'll just see how my health is first. yes the admission was planned, but it's a state funded hospital so i just emergency patients get first dibs. i have health insurance, but this is the hospital my...
  18. H

    first hospital stay

    not sure if i'll be here the whole time. i'm really wanting to come home for a wedding, but we'll just see how my health is first. yes the admission was planned, but it's a state funded hospital so i just emergency patients get first dibs. i have health insurance, but this is the hospital my...
  19. H

    first hospital stay

    so i was admitted yesterday for the first time. when i got settled into my room i noticed they had pet therapy, so i requested it. here is a picture of my new friends rosie and georgia. still waiting for them to place a picc, but they've started the antibiotics with a peripherial (spell?) and...
  20. H

    first hospital stay

    so i was admitted yesterday for the first time. when i got settled into my room i noticed they had pet therapy, so i requested it. here is a picture of my new friends rosie and georgia. still waiting for them to place a picc, but they've started the antibiotics with a peripherial (spell?) and...
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