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Hi - Jason has started with that horrible cough. This time of year we can always count on it a few times. He started with a runny nose, then got congested and then that went away and he woke up Tues. with this cough. The difference this time is that it isn't worse at night and better in the...
My husband accidentally gave my son his second TOBI treatment for the day 4 hours early. He also gave him his 2nd pulmozyme for the day 4 hours early. I know they should really be 12 hours apart. Obv. we will try to not have this happen again. Any immed. danger from us doing this? Thanks!
Hi - My 7 year old son is going into the hospital for the first time since diagnosis 5 1/2 years ago. It is for a bronchoscopy and a PICC line. They said they will insert the picc while he is under anesthesia for the bronch. I know how to eplain all of that to him. I am just wondering what...
Hi - I was just curious what settings everyone uses for their vests and do you stop at certain intervals to try and cough up stuff? My son has been using his vest for 4 years and still is not very good at coughing stuff up. Thanks.
Hi - I have bronchitis and I was just wondering if besides the obvious washing hands and keeping my distance from my son, do I need to notify the cf dr for any additional instructions. I remember when I had pnemonia, I had caught it from my son having RSV so he was already on antibiotics. This...
Hi all - we just got back from clinic. Jason is 7. His small airway numbers of his pft's have always been lower than they should be. He was dx. at 18 mos. of age. He was very sick at dx. and when a bronchoscope was done, pseud. was present. He has cultured pseud. maybe 3 times since then...
Hi - We may be getting new health insurance due to a new job for my husband. I was just wondering if anyone has ever encountered a problem with cystic fibrosis being not covered due to being a pre existing condition? Thanks
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