Cystic Fibrosis Forum (EXP)

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  1. P

    Denufosol Trial

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  2. P

    Young lady has her first outing with new lungs!

    This video brought tears to my eyes. Seeing her so happy is just so wonderful and inspirational. <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=r7D0DEUSOUc">http://www.youtube.com/watch?v=r7D0DEUSOUc</a>
  3. P

    Young lady has her first outing with new lungs!

    This video brought tears to my eyes. Seeing her so happy is just so wonderful and inspirational. <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=r7D0DEUSOUc">http://www.youtube.com/watch?v=r7D0DEUSOUc</a>
  4. P

    Young lady has her first outing with new lungs!

    This video brought tears to my eyes. Seeing her so happy is just so wonderful and inspirational. <a target=_blank class=ftalternatingbarlinklarge href="http://www.youtube.com/watch?v=r7D0DEUSOUc">http://www.youtube.com/watch?v=r7D0DEUSOUc</a>
  5. P

    VX-770 (Vertex Pharmaceuticals, Inc.)

    VX-770 is a drug that works in much the same way as PTC-124. It works by correcting the underlying Cf defect for certain mutations. I have been told I qualify for the trials and I was wondering if anyone else has been asked to participate in the Phase II trials.
  6. P

    VX-770 (Vertex Pharmaceuticals, Inc.)

    VX-770 is a drug that works in much the same way as PTC-124. It works by correcting the underlying Cf defect for certain mutations. I have been told I qualify for the trials and I was wondering if anyone else has been asked to participate in the Phase II trials.
  7. P

    VX-770 (Vertex Pharmaceuticals, Inc.)

    VX-770 is a drug that works in much the same way as PTC-124. It works by correcting the underlying Cf defect for certain mutations. I have been told I qualify for the trials and I was wondering if anyone else has been asked to participate in the Phase II trials.
  8. P

    Anti-inflammatory diet

    Update: I stopped using Goji Juice, It started to make me feel tight after awhile, I also cut back on the olive oil because I found out I am allergic to salacilates(sp?) that are abundant in olive oil and some types of citrus fruits. Many people with an asthma component to their CF should get...
  9. P

    Anti-inflammatory diet

    Update: I stopped using Goji Juice, It started to make me feel tight after awhile, I also cut back on the olive oil because I found out I am allergic to salacilates(sp?) that are abundant in olive oil and some types of citrus fruits. Many people with an asthma component to their CF should get...
  10. P

    Anti-inflammatory diet

    Update: I stopped using Goji Juice, It started to make me feel tight after awhile, I also cut back on the olive oil because I found out I am allergic to salacilates(sp?) that are abundant in olive oil and some types of citrus fruits. Many people with an asthma component to their CF should get...
  11. P

    Steroid Use

    I have only used steroids a total of 3 times in my entire life (I'm 28) and even then it was an extremely low dose. My doctor for some reason does everything possible to avoid using them on me.
  12. P

    Steroid Use

    I have only used steroids a total of 3 times in my entire life (I'm 28) and even then it was an extremely low dose. My doctor for some reason does everything possible to avoid using them on me.
  13. P

    Steroid Use

    I have only used steroids a total of 3 times in my entire life (I'm 28) and even then it was an extremely low dose. My doctor for some reason does everything possible to avoid using them on me.
  14. P

    LINDSEY GOT HER CALL FOR LUNGS

    Where is she getting her transplant?
  15. P

    LINDSEY GOT HER CALL FOR LUNGS

    Where is she getting her transplant?
  16. P

    LINDSEY GOT HER CALL FOR LUNGS

    Where is she getting her transplant?
  17. P

    A Group E-Hug for Allie

    Hang in there Allie.
  18. P

    A Group E-Hug for Allie

    Hang in there Allie.
  19. P

    A Group E-Hug for Allie

    Hang in there Allie.
  20. P

    New drug may cure genetic disorders

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>princessjdc</b></i> WAAAAHOOOOOO, I have been waiting for so long for this to come out and its only a few years away, whoopi, Im excited right now, CFF.org site needs to update their drug pipeline, cause its still saying PTC124 is in...
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