Cystic Fibrosis Forum (EXP)

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  1. J

    g-tube

    Sophia- My son has a g-tube and also doesn't eat or drink anything! I can understand your frustrations completely! Shawn- Continuously meaning 24 hours a day? What about a backpack? I remember seeing a show about a little boy that had a g-tube and was on continual feeds. The pump was in a...
  2. J

    g-tube

    Sophia- My son has a g-tube and also doesn't eat or drink anything! I can understand your frustrations completely! Shawn- Continuously meaning 24 hours a day? What about a backpack? I remember seeing a show about a little boy that had a g-tube and was on continual feeds. The pump was in a...
  3. J

    g-tube

    Sophia- My son has a g-tube and also doesn't eat or drink anything! I can understand your frustrations completely! Shawn- Continuously meaning 24 hours a day? What about a backpack? I remember seeing a show about a little boy that had a g-tube and was on continual feeds. The pump was in a...
  4. J

    g-tube

    Sophia- My son has a g-tube and also doesn't eat or drink anything! I can understand your frustrations completely! Shawn- Continuously meaning 24 hours a day? What about a backpack? I remember seeing a show about a little boy that had a g-tube and was on continual feeds. The pump was in a...
  5. J

    g-tube

    Sophia- My son has a g-tube and also doesn't eat or drink anything! I can understand your frustrations completely! Shawn- Continuously meaning 24 hours a day? What about a backpack? I remember seeing a show about a little boy that had a g-tube and was on continual feeds. The pump was in a...
  6. J

    Trouble shooting

    Carey905 here... My son was born with Meconium Ileus and had a third of his small intestine removed. I believe due to this his gut gets slows down at times. His stools are actually very loose. Jack had an ear infection before Christmas and his pediatrition perscribed Augmentum. Big...
  7. J

    Trouble shooting

    Carey905 here... My son was born with Meconium Ileus and had a third of his small intestine removed. I believe due to this his gut gets slows down at times. His stools are actually very loose. Jack had an ear infection before Christmas and his pediatrition perscribed Augmentum. Big...
  8. J

    Trouble shooting

    Carey905 here... My son was born with Meconium Ileus and had a third of his small intestine removed. I believe due to this his gut gets slows down at times. His stools are actually very loose. Jack had an ear infection before Christmas and his pediatrition perscribed Augmentum. Big...
  9. J

    Trouble shooting

    Carey905 here... My son was born with Meconium Ileus and had a third of his small intestine removed. I believe due to this his gut gets slows down at times. His stools are actually very loose. Jack had an ear infection before Christmas and his pediatrition perscribed Augmentum. Big...
  10. J

    Trouble shooting

    Carey905 here... My son was born with Meconium Ileus and had a third of his small intestine removed. I believe due to this his gut gets slows down at times. His stools are actually very loose. Jack had an ear infection before Christmas and his pediatrition perscribed Augmentum. Big...
  11. J

    What have we learnt that we were not told???

    that is insane! Clinics not promoting the vest until after there are problems?!?!?! With our clinic the whole atmosphere is...Prevention Prevention Prevention!!!!! My son got his vest at 15 months even though he was on the small side and he has not had any lung issues. I guess with all the...
  12. J

    What have we learnt that we were not told???

    that is insane! Clinics not promoting the vest until after there are problems?!?!?! With our clinic the whole atmosphere is...Prevention Prevention Prevention!!!!! My son got his vest at 15 months even though he was on the small side and he has not had any lung issues. I guess with all the...
  13. J

    What have we learnt that we were not told???

    that is insane! Clinics not promoting the vest until after there are problems?!?!?! With our clinic the whole atmosphere is...Prevention Prevention Prevention!!!!! My son got his vest at 15 months even though he was on the small side and he has not had any lung issues. I guess with all the...
  14. J

    What have we learnt that we were not told???

    that is insane! Clinics not promoting the vest until after there are problems?!?!?! With our clinic the whole atmosphere is...Prevention Prevention Prevention!!!!! My son got his vest at 15 months even though he was on the small side and he has not had any lung issues. I guess with all the...
  15. J

    What have we learnt that we were not told???

    that is insane! Clinics not promoting the vest until after there are problems?!?!?! With our clinic the whole atmosphere is...Prevention Prevention Prevention!!!!! My son got his vest at 15 months even though he was on the small side and he has not had any lung issues. I guess with all the...
  16. J

    Blue Cross Blue Shield...now its WAR

    I would look into disability for your son. We did for my son that has a G-Tube and also is on Peptamen Jr. Because my son was listed as disabled we got medicare for my son and since we have that we also have WIC (a state program that helps pay for food for low income familys or familys that are...
  17. J

    Blue Cross Blue Shield...now its WAR

    I would look into disability for your son. We did for my son that has a G-Tube and also is on Peptamen Jr. Because my son was listed as disabled we got medicare for my son and since we have that we also have WIC (a state program that helps pay for food for low income familys or familys that are...
  18. J

    Blue Cross Blue Shield...now its WAR

    I would look into disability for your son. We did for my son that has a G-Tube and also is on Peptamen Jr. Because my son was listed as disabled we got medicare for my son and since we have that we also have WIC (a state program that helps pay for food for low income familys or familys that are...
  19. J

    Blue Cross Blue Shield...now its WAR

    I would look into disability for your son. We did for my son that has a G-Tube and also is on Peptamen Jr. Because my son was listed as disabled we got medicare for my son and since we have that we also have WIC (a state program that helps pay for food for low income familys or familys that are...
  20. J

    Blue Cross Blue Shield...now its WAR

    I would look into disability for your son. We did for my son that has a G-Tube and also is on Peptamen Jr. Because my son was listed as disabled we got medicare for my son and since we have that we also have WIC (a state program that helps pay for food for low income familys or familys that are...
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