Cystic Fibrosis Forum (EXP)

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  1. B

    strange diagnosis

    Well....my son was diagnosed a couple month ago (DDF508). his CF doctor asked me a few questions and they decided to run an Ambry panel on me. I came back as a DF508/ Poly T variant??? It sounds like I either have one of the milder forms of CF or as they put it...a carrier with some symptoms...
  2. B

    strange diagnosis

    Well....my son was diagnosed a couple month ago (DDF508). his CF doctor asked me a few questions and they decided to run an Ambry panel on me. I came back as a DF508/ Poly T variant??? It sounds like I either have one of the milder forms of CF or as they put it...a carrier with some symptoms...
  3. B

    strange diagnosis

    Well....my son was diagnosed a couple month ago (DDF508). his CF doctor asked me a few questions and they decided to run an Ambry panel on me. I came back as a DF508/ Poly T variant??? It sounds like I either have one of the milder forms of CF or as they put it...a carrier with some symptoms...
  4. B

    strange diagnosis

    Well....my son was diagnosed a couple month ago (DDF508). his CF doctor asked me a few questions and they decided to run an Ambry panel on me. I came back as a DF508/ Poly T variant??? It sounds like I either have one of the milder forms of CF or as they put it...a carrier with some symptoms...
  5. B

    strange diagnosis

    Well....my son was diagnosed a couple month ago (DDF508). his CF doctor asked me a few questions and they decided to run an Ambry panel on me. I came back as a DF508/ Poly T variant??? It sounds like I either have one of the milder forms of CF or as they put it...a carrier with some symptoms...
  6. B

    anyone need a vest that is having difficulty getting one?

    it would be nice if there was a place where people could go to donate their equipment. there is a large gray area where people don't have enough insurance and they make too much money to qualify for any help. In some areas of the country where 1 bedroom apartments are 2k per month you'll almost...
  7. B

    anyone need a vest that is having difficulty getting one?

    it would be nice if there was a place where people could go to donate their equipment. there is a large gray area where people don't have enough insurance and they make too much money to qualify for any help. In some areas of the country where 1 bedroom apartments are 2k per month you'll almost...
  8. B

    anyone need a vest that is having difficulty getting one?

    it would be nice if there was a place where people could go to donate their equipment. there is a large gray area where people don't have enough insurance and they make too much money to qualify for any help. In some areas of the country where 1 bedroom apartments are 2k per month you'll almost...
  9. B

    anyone need a vest that is having difficulty getting one?

    it would be nice if there was a place where people could go to donate their equipment. there is a large gray area where people don't have enough insurance and they make too much money to qualify for any help. In some areas of the country where 1 bedroom apartments are 2k per month you'll almost...
  10. B

    anyone need a vest that is having difficulty getting one?

    it would be nice if there was a place where people could go to donate their equipment. there is a large gray area where people don't have enough insurance and they make too much money to qualify for any help. In some areas of the country where 1 bedroom apartments are 2k per month you'll almost...
  11. B

    Pseudomonas...

    it was my understanding that hearing loss could be a side affect for the inhaled tobi as well, but it shouldn't last long. I think an aggressive approach to pseudomonas makes sense. this bateria can lead to conditions which can cause extensive lung damage which is responsible for both the...
  12. B

    Pseudomonas...

    it was my understanding that hearing loss could be a side affect for the inhaled tobi as well, but it shouldn't last long. I think an aggressive approach to pseudomonas makes sense. this bateria can lead to conditions which can cause extensive lung damage which is responsible for both the...
  13. B

    Pseudomonas...

    it was my understanding that hearing loss could be a side affect for the inhaled tobi as well, but it shouldn't last long. I think an aggressive approach to pseudomonas makes sense. this bateria can lead to conditions which can cause extensive lung damage which is responsible for both the...
  14. B

    Pseudomonas...

    it was my understanding that hearing loss could be a side affect for the inhaled tobi as well, but it shouldn't last long. I think an aggressive approach to pseudomonas makes sense. this bateria can lead to conditions which can cause extensive lung damage which is responsible for both the...
  15. B

    Pseudomonas...

    it was my understanding that hearing loss could be a side affect for the inhaled tobi as well, but it shouldn't last long. <br /> <br />I think an aggressive approach to pseudomonas makes sense. this bateria can lead to conditions which can cause extensive lung damage which is responsible for...
  16. B

    anyone need a vest that is having difficulty getting one?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jana</b></i> Well, I'm also in Northern VA and could use a vest. I appreciate you going to the trouble of trying to help someone with this. It may be an older model and have no warranty, but it would be better than what I have right...
  17. B

    anyone need a vest that is having difficulty getting one?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jana</b></i> Well, I'm also in Northern VA and could use a vest. I appreciate you going to the trouble of trying to help someone with this. It may be an older model and have no warranty, but it would be better than what I have right...
  18. B

    anyone need a vest that is having difficulty getting one?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jana</b></i> Well, I'm also in Northern VA and could use a vest. I appreciate you going to the trouble of trying to help someone with this. It may be an older model and have no warranty, but it would be better than what I have right...
  19. B

    anyone need a vest that is having difficulty getting one?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jana</b></i> Well, I'm also in Northern VA and could use a vest. I appreciate you going to the trouble of trying to help someone with this. It may be an older model and have no warranty, but it would be better than what I have right...
  20. B

    anyone need a vest that is having difficulty getting one?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Jana</b></i> <br /> <br />Well, I'm also in Northern VA and could use a vest. I appreciate you going to the trouble of trying to help someone with this. It may be an older model and have no warranty, but it would be better than what...
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