Cystic Fibrosis Forum (EXP)

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  1. M

    could it be cepacia?

    Tammy- I am soo sorry to hear that it came back Cepacia. I remember that dreaded call and conversation with Cory's doctor as if it were yesterday. I felt like my world stopped. I think I went home and cried for 2 days. Then I hit the computer and talked to anyone that would talk to me about...
  2. M

    could it be cepacia?

    Tammy- I am soo sorry to hear that it came back Cepacia. I remember that dreaded call and conversation with Cory's doctor as if it were yesterday. I felt like my world stopped. I think I went home and cried for 2 days. Then I hit the computer and talked to anyone that would talk to me about...
  3. M

    could it be cepacia?

    Tammy- I am soo sorry to hear that it came back Cepacia. I remember that dreaded call and conversation with Cory's doctor as if it were yesterday. I felt like my world stopped. I think I went home and cried for 2 days. Then I hit the computer and talked to anyone that would talk to me about...
  4. M

    could it be cepacia?

    Tammy- I am soo sorry to hear that it came back Cepacia. I remember that dreaded call and conversation with Cory's doctor as if it were yesterday. I felt like my world stopped. I think I went home and cried for 2 days. Then I hit the computer and talked to anyone that would talk to me about...
  5. M

    could it be cepacia?

    Tammy- <br />I am soo sorry to hear that it came back Cepacia. I remember that dreaded call and conversation with Cory's doctor as if it were yesterday. I felt like my world stopped. I think I went home and cried for 2 days. Then I hit the computer and talked to anyone that would talk to me...
  6. M

    Inogen One

    also you can request a seat next to a plug in so you have it plugged in on the flight if you need it when flying.
  7. M

    Inogen One

    also you can request a seat next to a plug in so you have it plugged in on the flight if you need it when flying.
  8. M

    Inogen One

    also you can request a seat next to a plug in so you have it plugged in on the flight if you need it when flying.
  9. M

    Inogen One

    also you can request a seat next to a plug in so you have it plugged in on the flight if you need it when flying.
  10. M

    Inogen One

    also you can request a seat next to a plug in so you have it plugged in on the flight if you need it when flying.
  11. M

    Inogen One

    Lauren- We just and went and picked up Cory portable oxygen concentrator. He received the ever go by respironics. We live that one because it comes with 2 batteries (on 2 liters it last 4 hours per battery. It is a little loud (almost as loud as the home one). While we were there he did show...
  12. M

    Inogen One

    Lauren- We just and went and picked up Cory portable oxygen concentrator. He received the ever go by respironics. We live that one because it comes with 2 batteries (on 2 liters it last 4 hours per battery. It is a little loud (almost as loud as the home one). While we were there he did show...
  13. M

    Inogen One

    Lauren- We just and went and picked up Cory portable oxygen concentrator. He received the ever go by respironics. We live that one because it comes with 2 batteries (on 2 liters it last 4 hours per battery. It is a little loud (almost as loud as the home one). While we were there he did show...
  14. M

    Inogen One

    Lauren- We just and went and picked up Cory portable oxygen concentrator. He received the ever go by respironics. We live that one because it comes with 2 batteries (on 2 liters it last 4 hours per battery. It is a little loud (almost as loud as the home one). While we were there he did show...
  15. M

    Inogen One

    Lauren- <br />We just and went and picked up Cory portable oxygen concentrator. He received the ever go by respironics. We live that one because it comes with 2 batteries (on 2 liters it last 4 hours per battery. It is a little loud (almost as loud as the home one). <br />While we were there...
  16. M

    Cepacia

    Cory has culture Cepacia for the last 5 years He has Genomovar III (Cenocepacia) His FEV1 is currently around 22%. That is 1 week out of the hospital and still on IV's Going for transplant evaluation on Set. 2nd
  17. M

    Cepacia

    Cory has culture Cepacia for the last 5 years He has Genomovar III (Cenocepacia) His FEV1 is currently around 22%. That is 1 week out of the hospital and still on IV's Going for transplant evaluation on Set. 2nd
  18. M

    Cepacia

    Cory has culture Cepacia for the last 5 years He has Genomovar III (Cenocepacia) His FEV1 is currently around 22%. That is 1 week out of the hospital and still on IV's Going for transplant evaluation on Set. 2nd
  19. M

    Cepacia

    Cory has culture Cepacia for the last 5 years He has Genomovar III (Cenocepacia) His FEV1 is currently around 22%. That is 1 week out of the hospital and still on IV's Going for transplant evaluation on Set. 2nd
  20. M

    Cepacia

    Cory has culture Cepacia for the last 5 years <br />He has Genomovar III (Cenocepacia) <br />His FEV1 is currently around 22%. That is 1 week out of the hospital and still on IV's <br />Going for transplant evaluation on Set. 2nd
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