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  1. I

    Ipad

    Know it is my goal that every CF patient has an iPad! I was able to send two iPads out this time. One to Brad and one to Crystalina! Julie has been invaluable in her efforts to help us start our Foundation. All the paperwork is in! CFTechnology.org is the name, I will keep you apprised of the...
  2. I

    Ipad

    Mommafirst will have lots of good suggestions too! Yeah! iPad for Max! Jeanne
  3. I

    Ipad

    Kids Math Magnetic ABC BrainPop ArtPuzzle HD CookieDoodle JellyDoodle DrawingPad MeeGenius ShapeBuilder RubyRepeat Good Luck with the iPad...I love it! BTW Brad was our iPad winner for the survey...he may have some suggestions for you too. I know Max will get lots of use out of it! Jeanne
  4. I

    LightNLife/Lauren

    Life with CF (from LightNLife's Blog) Mornings start with a crackle, or maybe a wheeze; it's all just a part of this nasty disease. I spent my night upright just to breathe in and out; For me that's what life with CF is about. Cystic fibrosis, the monster within steals time and steals breath...
  5. I

    LightNLife/Lauren

    Life with CF (from LightNLife's Blog) Mornings start with a crackle, or maybe a wheeze; it's all just a part of this nasty disease. I spent my night upright just to breathe in and out; For me that's what life with CF is about. Cystic fibrosis, the monster within steals time and steals breath...
  6. I

    LightNLife/Lauren

    Life with CF (from LightNLife's Blog) <br /> <br />Mornings start with a crackle, or maybe a wheeze; <br />it's all just a part of this nasty disease. <br />I spent my night upright just to breathe in and out; <br />For me that's what life with CF is about. <br /> <br />Cystic fibrosis, the...
  7. I

    New News Feed

    We are excited to be using the Newsfeed from Medworm.com. The newsfeed is on the right side of the homepage. I think you can add blogs. check it out! Jeanne
  8. I

    New News Feed

    We are excited to be using the Newsfeed from Medworm.com. The newsfeed is on the right side of the homepage. I think you can add blogs. check it out! Jeanne
  9. I

    New News Feed

    We are excited to be using the Newsfeed from Medworm.com. <br /> <br />The newsfeed is on the right side of the homepage. <br /> <br />I think you can add blogs. <br /> <br />check it out! <br /> <br />Jeanne
  10. I

    Tedmed

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.medgadget.com/archives/2010/10/tedmed_2010_day_1_shaf_keshavjee_nathan_myhrvoid_nathan_wolfe_and_more.html">Pigs lungs</a>
  11. I

    Tedmed

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.medgadget.com/archives/2010/10/tedmed_2010_day_1_shaf_keshavjee_nathan_myhrvoid_nathan_wolfe_and_more.html">Pigs lungs</a>
  12. I

    Tedmed

    <a target=_blank class=ftalternatingbarlinklarge href="http://www.medgadget.com/archives/2010/10/tedmed_2010_day_1_shaf_keshavjee_nathan_myhrvoid_nathan_wolfe_and_more.html">Pigs lungs</a>
  13. I

    Amakacin availability

    This is a current article...doesn't say when it will be available. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosisnews.com/index.php?option=com_content&view=article&id=222/ ">http://www.cysticfibrosisnews....&view=article&id=222/ </a> Jeanne
  14. I

    Amakacin availability

    This is a current article...doesn't say when it will be available. <a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosisnews.com/index.php?option=com_content&view=article&id=222/ ">http://www.cysticfibrosisnews....&view=article&id=222/ </a> Jeanne
  15. I

    Amakacin availability

    This is a current article...doesn't say when it will be available. <br /> <br /> <br /><a target=_blank class=ftalternatingbarlinklarge href="http://www.cysticfibrosisnews.com/index.php?option=com_content&view=article&id=222/ ">http://www.cysticfibrosisnews....&view=article&id=222/ </a><br />...
  16. I

    Locked up...

    Remember Pandora.com for creating your own radio stations and I love this Art Puzzle app<a target=_blank class=ftalternatingbarlinklarge href="http://itunes.apple.com/us/app/artpuzzle-hd/id370532087?mt=8">Art Puzzle</a>
  17. I

    Locked up...

    Remember Pandora.com for creating your own radio stations and I love this Art Puzzle app<a target=_blank class=ftalternatingbarlinklarge href="http://itunes.apple.com/us/app/artpuzzle-hd/id370532087?mt=8">Art Puzzle</a>
  18. I

    Locked up...

    Remember Pandora.com for creating your own radio stations <br /> <br />and I love this Art Puzzle app<a target=_blank class=ftalternatingbarlinklarge href="http://itunes.apple.com/us/app/artpuzzle-hd/id370532087?mt=8">Art Puzzle</a>
  19. I

    C is for cancer

    Steph, It is hard to imagine the roller coaster ride of this cancer diagnosis along with a lung transplant evaluation. I am so glad it is Stage 1 and it seems with your great attitude and care team, you will do better than can even be imagined! Thoughts and prayers for this journey! Jeanne
  20. I

    C is for cancer

    Steph, It is hard to imagine the roller coaster ride of this cancer diagnosis along with a lung transplant evaluation. I am so glad it is Stage 1 and it seems with your great attitude and care team, you will do better than can even be imagined! Thoughts and prayers for this journey! Jeanne
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