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<blockquote>Quote<br><hr>So it's death with no chance at life, or a chance at life with the risk of death. <hr></blockquote> That is the MOST eloquent and concise summary of the whole thing that I've ever read. Mind if I rip it off for my webpage? I'll give you credit. <img...

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>If you don't like your devices and you're healthy enough to do it, try 500 jumping jacks instead. It will give you some cardio and definitely clean out your lungs.<hr></blockquote> Interesting. Is there any clinical...

It's a germ that will make you go through tons of hoops before you can get a transplant, the only long-term fix for late stages of CF. Avoid it like the plague which it is.

What settings have you folks tried? Perhaps there's some that are more helpful than others. That's certainly the case with me...

Hi there. I'm appealing their latest decision to turn me down, and one of my arguments will be that it's probably going to be cheaper to pay for a lung transplant, one time, than vainly trying to extend my life with tons of hospital stays, antibiotics, miscellaneous CF treatments I wouldn't need...

In some ways, that's arguably worse. Severe pain will make you miserable for a short time, until you break down and deal with it (assuming it can be treated, which is not always true). Whereas, a consistent experience of flu-like symptoms will make you miserable all the freakin' time, but aren't...

Do people's votes actually affect any decisions made here? If not, it just seems the most tasteless show ever (far surpassing such tripe as "Who Wants to Marry a Millionaire" and that show where they ship troublesome kids off to a wilderness camp). If they <i>do</i> it seems like one of the most...

Are you getting O2 readings throughout the night? Lack of oxygen to muscles can cause them to ache later, I believe. I've experienced lots of these, especially this hospital stay (and a couple of others). The fact it seems (admittedly, subjectively, since I haven't reliably checked) correlated...

I looked (and have looked before) but I really doubt they'd foot even a significant fraction of such a huge medical bill. I wouldn't blame them, either, because if you could give a month's supply of Pulmozyme to 500 needy CF patients, or a lung transplant (that might not even work) to one... I...

Whoops. I did my best to correct that entry, up to quoting your clarification. Sorry 'bout that. Hope that Methodist hospital gets even more success with Greg; maybe they'll start competing with UNC and giving us cepacia-colonized people another option. Good thing Greg's okay otherwise, it might...

Doesn't sound good, Justyoda.... But take heart in the important things. <a target=new class=ftalternatingbarlinklarge href="http://users.rcn.com/rostmd/winace/poetry/playwright_view.htm">Like love</a>, which everyone should find at least once. Don't let illness hold you back from marrying or...

<a target=new class=ftalternatingbarlinklarge href="http://www.save-allan.org/wpblog">Read my newest health update at my blog</a> (specifically, <a target=new class=ftalternatingbarlinklarge href="http://www.save-allan.org/wpblog/?p=12">entry #12</a>). It covers my second denial (of that...

Stevehof... I was actually thinking of that exact analogy, which I'd read somewhere before (possibly this very board), when I wrote what I did! Did you invent it, or find it elsewhere, before, and say "Hah, that's great!" ? Kudos! <img src="i/expressions/face-icon-small-happy.gif" border="0">...

Hope you hear from someone, too. This isn't that common, however. From what I could tell last time I looked, there is no known association between specific CF mutation and severity of illness, so they're looking at modifier genes (unrelated ones) which might affect that, instead. As an aside...

I got diabetes and severe osteoporosis from steroids. Unless you want to be giving yourself wonderful little injections (in the stomach) before every meal, like everyone else with steroid experience, and be told you might accidentally get fractures in your spine from *sitting in a chair*, I...

I don't like email based forums as much either, but you can read the Cystic-L list via a web browser if you click the "Archive" link from their homepage. You'll have to create a password first, though. And you won't get the smack-dab newest messages that way (there'll be a negligible delay of a...

Just for the record, discuss any remedy you start taking with your doctor, and NEVER think of them as more than a supplement to your existing medications. "Natural" doesn't necessarily mean "harmless," as herbs can have side quite damaging physiological effects if misused, and they certainly...

Oh yeah, those dorks. <blockquote>Quote<br><hr> Patty is visiting her father Ralph at the nursing home. 'I've been sleeping really well these past few weeks,' Ralph says. 'Why?' Patty asks. 'Have the nurses been giving you something to help you sleep?' 'Yes,' Ralph says. 'Every night I'm...

I don't see why not, but ask your doctor. FYI, there was <a target=new class=ftalternatingbarlinklarge href="http://thorax.bmjjournals.com/cgi/content/abstract/60/1/55">a study in the journal Thorax</a> that suggested Viagra might be effective in correcting the CF mutation. Of course, I'm...

<blockquote>Quote<br><hr> <i>Originally posted by lovingBenandCambree</i> Have you never thought there was something other than what you are saying?<hr></blockquote> I haven't always been an atheist. Nor a materialist. Somewhere down the line I realized I was believing for reasons that were...