Cystic Fibrosis Forum (EXP)

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  1. D

    VX770

    I dont blame any of you for feeling the way you do. I would feel the same if my kids didnt have the g551d. I really believe the 770/809/661 combo will work for df508 though.....and even with the good news, us getting the 770 might be a couple of years or more away, and we here in Australia have...
  2. D

    VX770

    I dont blame any of you for feeling the way you do. I would feel the same if my kids didnt have the g551d. I really believe the 770/809/661 combo will work for df508 though.....and even with the good news, us getting the 770 might be a couple of years or more away, and we here in Australia have...
  3. D

    Video Day in a life of my son & I shown at NACFC conference - see link

    Fantastic Lauren. Im so glad I have known you. Thank you for sharing your amazing story. The stuff coming out of the conference just takes my breathe away.
  4. D

    Video Day in a life of my son & I shown at NACFC conference - see link

    Fantastic Lauren. Im so glad I have known you. Thank you for sharing your amazing story. The stuff coming out of the conference just takes my breathe away.
  5. D

    Video Day in a life of my son & I shown at NACFC conference - see link

    Fantastic Lauren. Im so glad I have known you. Thank you for sharing your amazing story. The stuff coming out of the conference just takes my breathe away.
  6. D

    VX -770 for Australians

    ps to you question livingloving...we accessed the trial because I tracked it down due to posts on here by Lauren (Loulou) and Amy (Noexcuses) back a couple of years ago. Lauren had been in the ph2b and I read about her experiences. They alearted everyone ot the ph3 trial starting up...I am so...
  7. D

    VX -770 for Australians

    ps to you question livingloving...we accessed the trial because I tracked it down due to posts on here by Lauren (Loulou) and Amy (Noexcuses) back a couple of years ago. Lauren had been in the ph2b and I read about her experiences. They alearted everyone ot the ph3 trial starting up...I am so...
  8. D

    VX -770 for Australians

    ps to you question livingloving...we accessed the trial because I tracked it down due to posts on here by Lauren (Loulou) and Amy (Noexcuses) back a couple of years ago. Lauren had been in the ph2b and I read about her experiences. They alearted everyone ot the ph3 trial starting up...I am so...
  9. D

    Fantastic and exciting news at the cf conference..

    http://www.facebook.com/groups/153375788050316/<br>
  10. D

    Fantastic and exciting news at the cf conference..

    http://www.facebook.com/groups/153375788050316/<br>
  11. D

    Fantastic and exciting news at the cf conference..

    http://www.facebook.com/groups/153375788050316/<br>
  12. D

    VX -770 for Australians

    okay <img src="i/expressions/face-icon-small-smile.gif" border="0"> I've been having trouble posting on here. I did write a response to you the other day but it didnt work <img src="i/expressions/face-icon-small-sad.gif" border="0"> Mima are you on FB? Someone has set up a great page on FB where...
  13. D

    VX -770 for Australians

    okay <img src="i/expressions/face-icon-small-smile.gif" border="0"> I've been having trouble posting on here. I did write a response to you the other day but it didnt work <img src="i/expressions/face-icon-small-sad.gif" border="0"> Mima are you on FB? Someone has set up a great page on FB where...
  14. D

    VX -770 for Australians

    okay <img src="i/expressions/face-icon-small-smile.gif" border="0"> I've been having trouble posting on here. I did write a response to you the other day but it didnt work <img src="i/expressions/face-icon-small-sad.gif" border="0"> Mima are you on FB? Someone has set up a great page on FB where...
  15. D

    VX -770 for Australians

    Hi Mima just a test post to see if it works..
  16. D

    VX -770 for Australians

    Hi Mima just a test post to see if it works..
  17. D

    VX -770 for Australians

    Hi Mima just a test post to see if it works..
  18. D

    VX -770 for Australians

    Im in Australia (my son has been in the trial but my other two havent) and contacted Vertex about the expanded access. It isnt possible to get onto the drug yet, we will have to wait til the FDA apporves it and than see how we can get it here. We need to get it onto the PBS too or it will cost a...
  19. D

    VX -770 for Australians

    Im in Australia (my son has been in the trial but my other two havent) and contacted Vertex about the expanded access. It isnt possible to get onto the drug yet, we will have to wait til the FDA apporves it and than see how we can get it here. We need to get it onto the PBS too or it will cost a...
  20. D

    VX -770 for Australians

    Im in Australia (my son has been in the trial but my other two havent) and contacted Vertex about the expanded access. It isnt possible to get onto the drug yet, we will have to wait til the FDA apporves it and than see how we can get it here. We need to get it onto the PBS too or it will cost a...
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