Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. A

    flu mist

    My doctor wrote a letter to the army doctors telling them that my husband and roomate have to have the shot and can not have the mist due to my health. Nick did get the mist when it first came out and I got sick for about 2 weeks after he got it. I would say not to let family members get it...
  2. A

    flu mist

    My doctor wrote a letter to the army doctors telling them that my husband and roomate have to have the shot and can not have the mist due to my health. Nick did get the mist when it first came out and I got sick for about 2 weeks after he got it. I would say not to let family members get it...
  3. A

    maybe a clot in my port

    I have had more of these then I can count. I just had one about 2 weeks ago. I just call the clinic and they order TPA. They will flush your port with it, let it sit for an hour in the line and it breaks up any sheeths or clots in the line. Also know that your line could have just moved and is...
  4. A

    maybe a clot in my port

    I have had more of these then I can count. I just had one about 2 weeks ago. I just call the clinic and they order TPA. They will flush your port with it, let it sit for an hour in the line and it breaks up any sheeths or clots in the line. Also know that your line could have just moved and is...
  5. A

    maybe a clot in my port

    I have had more of these then I can count. I just had one about 2 weeks ago. I just call the clinic and they order TPA. They will flush your port with it, let it sit for an hour in the line and it breaks up any sheeths or clots in the line. Also know that your line could have just moved and is...
  6. A

    Pulmozyme and Tobi Cost Help

    If anyone has not gotten this from your doctor I recieved this but do not need it with our ins. It is the Pulmozyme Co-Pay card program to help pay co pays over $30. Also a coupon for a $10 per co-pay for tobi. If you dont have this info yet and you could use it please email me at...
  7. A

    Pulmozyme and Tobi Cost Help

    If anyone has not gotten this from your doctor I recieved this but do not need it with our ins. It is the Pulmozyme Co-Pay card program to help pay co pays over $30. Also a coupon for a $10 per co-pay for tobi. If you dont have this info yet and you could use it please email me at...
  8. A

    Pulmozyme and Tobi Cost Help

    If anyone has not gotten this from your doctor I recieved this but do not need it with our ins. It is the Pulmozyme Co-Pay card program to help pay co pays over $30. Also a coupon for a $10 per co-pay for tobi. If you dont have this info yet and you could use it please email me at...
  9. A

    Military and CF!!!!

    My husband is active duty army and we are stationed at Ft. Campbell
  10. A

    Military and CF!!!!

    My husband is active duty army and we are stationed at Ft. Campbell
  11. A

    Military and CF!!!!

    My husband is active duty army and we are stationed at Ft. Campbell
  12. A

    Military and CF!!!!

    My husband is active duty army and we are stationed at Ft. Campbell
  13. A

    Military and CF!!!!

    My husband is active duty army and we are stationed at Ft. Campbell
  14. A

    Military and CF!!!!

    My husband is active duty army and we are stationed at Ft. Campbell
  15. A

    Kristina

    Her name was Kristena Witten she was 23 years old. She lived in IN but always went to the louisville clinic. I grew up with her. She went into the hospital not feeling good low oxygen numbers and they couldnt get her back up. They had to vent her and could not whein her off. She was diagnosed...
  16. A

    Kristina

    Her name was Kristena Witten she was 23 years old. She lived in IN but always went to the louisville clinic. I grew up with her. She went into the hospital not feeling good low oxygen numbers and they couldnt get her back up. They had to vent her and could not whein her off. She was diagnosed...
  17. A

    Kristina

    Her name was Kristena Witten she was 23 years old. She lived in IN but always went to the louisville clinic. I grew up with her. She went into the hospital not feeling good low oxygen numbers and they couldnt get her back up. They had to vent her and could not whein her off. She was diagnosed...
  18. A

    Sweat Test Results

    No he isnt having any sympotoms. He did have to go on soy because the other formulas made him very gassy and constipated. Every now and then he has been a little constipated since I started him on rice cereal this past week. No he has not had the ambry or any genetic testing done. Just the IRT...
  19. A

    Sweat Test Results

    No he isnt having any sympotoms. He did have to go on soy because the other formulas made him very gassy and constipated. Every now and then he has been a little constipated since I started him on rice cereal this past week. No he has not had the ambry or any genetic testing done. Just the IRT...
  20. A

    Sweat Test Results

    No he isnt having any sympotoms. He did have to go on soy because the other formulas made him very gassy and constipated. Every now and then he has been a little constipated since I started him on rice cereal this past week. No he has not had the ambry or any genetic testing done. Just the IRT...
Top