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For shorter trips like that we just usually get a couple of good ice packs and put them in a small cooler. We always wrap the pulmozyme in a wash clothe or paper towel to prevent it from sitting right up against the ice. Technically speaking pulmozyme is ok at room temperature for up to 24...

For shorter trips like that we just usually get a couple of good ice packs and put them in a small cooler. We always wrap the pulmozyme in a wash clothe or paper towel to prevent it from sitting right up against the ice. Technically speaking pulmozyme is ok at room temperature for up to 24...

For shorter trips like that we just usually get a couple of good ice packs and put them in a small cooler. We always wrap the pulmozyme in a wash clothe or paper towel to prevent it from sitting right up against the ice. Technically speaking pulmozyme is ok at room temperature for up to 24...

For shorter trips like that we just usually get a couple of good ice packs and put them in a small cooler. We always wrap the pulmozyme in a wash clothe or paper towel to prevent it from sitting right up against the ice. Technically speaking pulmozyme is ok at room temperature for up to 24...

For shorter trips like that we just usually get a couple of good ice packs and put them in a small cooler. We always wrap the pulmozyme in a wash clothe or paper towel to prevent it from sitting right up against the ice. <br /> <br />Technically speaking pulmozyme is ok at room temperature for...

Ditto to the others - you should know what it is so that she can take advantage of some of the gene specific treatments coming down the pipeline should they be applicable to her gene type. It's a pretty common and reasonable request.

Ditto to the others - you should know what it is so that she can take advantage of some of the gene specific treatments coming down the pipeline should they be applicable to her gene type. It's a pretty common and reasonable request.

Ditto to the others - you should know what it is so that she can take advantage of some of the gene specific treatments coming down the pipeline should they be applicable to her gene type. It's a pretty common and reasonable request.

Ditto to the others - you should know what it is so that she can take advantage of some of the gene specific treatments coming down the pipeline should they be applicable to her gene type. It's a pretty common and reasonable request.

Ditto to the others - you should know what it is so that she can take advantage of some of the gene specific treatments coming down the pipeline should they be applicable to her gene type. It's a pretty common and reasonable request.

Ditto to <b>Ratatosk</b> post.... my daughters sweat test is in the "normal" range, and my son's is just 1 point into the borderline area, but genetic testing shows 2 genes on them both. I don't want to cause you to worry any more than necessary, but we went 8 years undiagnosed with my daughter...

Ditto to <b>Ratatosk</b> post.... my daughters sweat test is in the "normal" range, and my son's is just 1 point into the borderline area, but genetic testing shows 2 genes on them both. I don't want to cause you to worry any more than necessary, but we went 8 years undiagnosed with my daughter...

Ditto to <b>Ratatosk</b> post.... my daughters sweat test is in the "normal" range, and my son's is just 1 point into the borderline area, but genetic testing shows 2 genes on them both. I don't want to cause you to worry any more than necessary, but we went 8 years undiagnosed with my daughter...

Ditto to <b>Ratatosk</b> post.... my daughters sweat test is in the "normal" range, and my son's is just 1 point into the borderline area, but genetic testing shows 2 genes on them both. I don't want to cause you to worry any more than necessary, but we went 8 years undiagnosed with my daughter...

Ditto to <b>Ratatosk</b> post.... my daughters sweat test is in the "normal" range, and my son's is just 1 point into the borderline area, but genetic testing shows 2 genes on them both. <br /> <br />I don't want to cause you to worry any more than necessary, but we went 8 years undiagnosed with...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mama2emmett</b></i> Is it possible that it could be CF even without a failure to thrive or obvious GI involvement? Meg</end quote></div> Yes, many people with CF are pancreatic sufficient. I think the numbers are something like...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mama2emmett</b></i> Is it possible that it could be CF even without a failure to thrive or obvious GI involvement? Meg</end quote></div> Yes, many people with CF are pancreatic sufficient. I think the numbers are something like...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mama2emmett</b></i> Is it possible that it could be CF even without a failure to thrive or obvious GI involvement? Meg</end quote></div> Yes, many people with CF are pancreatic sufficient. I think the numbers are something like...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mama2emmett</b></i> Is it possible that it could be CF even without a failure to thrive or obvious GI involvement? Meg</end quote> Yes, many people with CF are pancreatic sufficient. I think the numbers are something like around...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mama2emmett</b></i> <br /> <br />Is it possible that it could be CF even without a failure to thrive or obvious GI involvement? <br /> <br />Meg</end quote> <br /> <br />Yes, many people with CF are pancreatic sufficient. I think the...