Cystic Fibrosis Forum (EXP)

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  1. A

    New, Diagnosed at 6 days

    Welcome to the site. Sounds like you are doing very well and have a good team of doctors.
  2. A

    New, Diagnosed at 6 days

    Welcome to the site. Sounds like you are doing very well and have a good team of doctors.
  3. A

    New, Diagnosed at 6 days

    Welcome to the site. Sounds like you are doing very well and have a good team of doctors.
  4. A

    New, Diagnosed at 6 days

    Welcome to the site. Sounds like you are doing very well and have a good team of doctors.
  5. A

    New, Diagnosed at 6 days

    Welcome to the site. <br /> <br />Sounds like you are doing very well and have a good team of doctors.
  6. A

    4 yr old has another sweat test tomorrow

    dueling doctors... I love it :-) Count your blessings for the endo doc who wants to pursue the sweat test again. Yes, if I were you, I'd push for genetic testing. While uncommon to have CF with a sweat test as low as 6, it definitely has happened, so it is not out of the realm of possibility...
  7. A

    4 yr old has another sweat test tomorrow

    dueling doctors... I love it :-) Count your blessings for the endo doc who wants to pursue the sweat test again. Yes, if I were you, I'd push for genetic testing. While uncommon to have CF with a sweat test as low as 6, it definitely has happened, so it is not out of the realm of possibility...
  8. A

    4 yr old has another sweat test tomorrow

    dueling doctors... I love it :-) Count your blessings for the endo doc who wants to pursue the sweat test again. Yes, if I were you, I'd push for genetic testing. While uncommon to have CF with a sweat test as low as 6, it definitely has happened, so it is not out of the realm of possibility...
  9. A

    4 yr old has another sweat test tomorrow

    dueling doctors... I love it :-) Count your blessings for the endo doc who wants to pursue the sweat test again. Yes, if I were you, I'd push for genetic testing. While uncommon to have CF with a sweat test as low as 6, it definitely has happened, so it is not out of the realm of possibility...
  10. A

    4 yr old has another sweat test tomorrow

    dueling doctors... I love it :-) <br /> <br />Count your blessings for the endo doc who wants to pursue the sweat test again. <br /> <br />Yes, if I were you, I'd push for genetic testing. While uncommon to have CF with a sweat test as low as 6, it definitely has happened, so it is not out of...
  11. A

    3 mo. old - Borderline sweat test

    Welcome to the site. I know waiting is hard, but like someone else already said, that's good that they went straight for the genetic testing, hopefully it was not just a screening of less than 100 genes - that's usually what they like to do first. It can take a pretty persistent mom to get...
  12. A

    3 mo. old - Borderline sweat test

    Welcome to the site. I know waiting is hard, but like someone else already said, that's good that they went straight for the genetic testing, hopefully it was not just a screening of less than 100 genes - that's usually what they like to do first. It can take a pretty persistent mom to get...
  13. A

    3 mo. old - Borderline sweat test

    Welcome to the site. I know waiting is hard, but like someone else already said, that's good that they went straight for the genetic testing, hopefully it was not just a screening of less than 100 genes - that's usually what they like to do first. It can take a pretty persistent mom to get...
  14. A

    3 mo. old - Borderline sweat test

    Welcome to the site. I know waiting is hard, but like someone else already said, that's good that they went straight for the genetic testing, hopefully it was not just a screening of less than 100 genes - that's usually what they like to do first. It can take a pretty persistent mom to get...
  15. A

    3 mo. old - Borderline sweat test

    Welcome to the site. <br /> <br />I know waiting is hard, but like someone else already said, that's good that they went straight for the genetic testing, hopefully it was not just a screening of less than 100 genes - that's usually what they like to do first. It can take a pretty persistent...
  16. A

    Many Thanks!

    Not to be a Negative Nelly, please keep a few things in mind: 1) That could still mean they have not yet identified the genes that she has - many people find their gene mutations years later after the identified genes had been discovered. 2) You could ask for nasal potential difference...
  17. A

    Many Thanks!

    Not to be a Negative Nelly, please keep a few things in mind: 1) That could still mean they have not yet identified the genes that she has - many people find their gene mutations years later after the identified genes had been discovered. 2) You could ask for nasal potential difference...
  18. A

    Many Thanks!

    Not to be a Negative Nelly, please keep a few things in mind: 1) That could still mean they have not yet identified the genes that she has - many people find their gene mutations years later after the identified genes had been discovered. 2) You could ask for nasal potential difference...
  19. A

    Many Thanks!

    Not to be a Negative Nelly, please keep a few things in mind: 1) That could still mean they have not yet identified the genes that she has - many people find their gene mutations years later after the identified genes had been discovered. 2) You could ask for nasal potential difference...
  20. A

    Many Thanks!

    Not to be a Negative Nelly, please keep a few things in mind: <br />1) That could still mean they have not yet identified the genes that she has - many people find their gene mutations years later after the identified genes had been discovered. <br /> <br />2) You could ask for nasal potential...
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