Cystic Fibrosis Forum (EXP)
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What to do if you don't like your clinic?
Hi @jdeastin! Good luck with your clinic appointments - I have switched clinics because I did not feel I was getting the care or time I needed at a clinic and I am SO happy that I switched. I was going to the Las Vegas clinic and wasn't as pleased with it (which was 2 hours away from my...- MissAlexsBP
- Post #8
- Forum: Adults
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Altera Cayston machine
Hi @Bellithorp! Sorry to hear you are having so much trouble with your Altera! I have been on Cayston every other month for a couple years now and I have only had to replace my Altera once! It sounds silly, but it is not the batteries dying, is it? I go through 4 AA batteries about once a...- MissAlexsBP
- Post #2
- Forum: Families
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Burkholderia cepacia help, PLEASE
Hi @believingjesus! My understanding is that everyone's body handles cepacia differently and each strain of cepacia affects people differently. I have cultured Multivorans strain of cepacia for several years now and have luckily not seen a huge difference in my health. I am not on any...- MissAlexsBP
- Post #5
- Forum: Adults
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