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What insurance company do you have. What did you need to show them to approve it?

You can also try a NG tube - placed via nasal canal.

17 years ago when I was doing a clinical trial for PBA, with baited breath that this was a "cure" thinking it was right around the corner. One of teh researchers mentioned that if this drug they were testing worked it would only take another 7 years for it to come out. Really I was devastated I...

Yeah they are one of my new favorite things and lots of vitamin a and k

Recently I had a tune up at the hospital and I notice what is on the food trays of some of the other patients. Junk, Coke, jello, mac and cheese - this is a problem. There is no way to get healthy eating from a vending machine. I have been using the G-Tube for over 20 years and only the last...

I have been re inspired recently to really embrace my G-Tube and not for the obvious reasons. This is a long post so I will split in two. G-Tube Advantage "Let food be your medicine and Medicine be your food" Hippocrates

Hi Janelle: Yeah a G-tube is essential. Getting nutrition is imperative. Leaving it up to the whims of when we need to eat is impossible. I have several posts on g-tube and nutrition. let me see what I can find and repost. Gluten Free is the way to be. If you are trying to be healthy and live...

If anyone needs Saline 7% or Zenpep got a few extra boxes/bottles for donation! FYI

yeah there is no silver bullet for everything. GF is only one part of it, it is hard and takes time. If there is damage in the intestines there is a high likelyhood of other food allergies due to the "tight junctions" being loose and other proteins get in there and wreak havoc. I went DF too...

Yeah running and playing is going to help. Swimming and such is good for us!

Gluten Free is the way to be. If you are trying to be healthy and live with CF you have to take a very aggressive approach to your health. We do not want to do anyting difficult and we all want the silver bullet, but we need a strong foundation to be able to fight this disease: Gluten, dairy and...

The globe-spanning presence of wheat and its exalted status among secular and sacred institutions alike differentiates this food from all others presently enjoyed by humans. Yet the unparalleled rise of wheat as the very catalyst for the emergence of ancient civilization has not occurred without...

Hi Karen: You are on the right path. Most CF's are gluten intolerant its just 98% do not know it. I am GF and it has made all the difference in my health, just wen I went GF 30 years ago. here are some of my other posts...

Look at this article www.greenmedinfo.com "The Dark Side of Wheat" With CF there is no short cut to health, we have to take a hard look at what we have in stock what is working and where we can optimize our health. We have to work harder and smarter. We have to do what our CF docs say and we...

It seems that there are some tall CF's. Do you think the younger people are taller on average.

It seems that there are some tall CF's. Do you think the younger people are taller on average.

I am 40 , male, 5' 7" and 3/4' - wt 145 - 150lbs

I am 40 , male, 5' 7" and 3/4' - wt 145 - 150lbs

I have a messed up front tooth. I broke it doing a neb (for real). It had to be removed and needs an impant. The first implant did not take due to low bone density and lack of growth. This is due to CFRD and osteopenia I would think. So waiting for a bone graft and a second implant. I have had...

I have a messed up front tooth. I broke it doing a neb (for real). It had to be removed and needs an impant. The first implant did not take due to low bone density and lack of growth. This is due to CFRD and osteopenia I would think. So waiting for a bone graft and a second implant. I have had...