Cystic Fibrosis Forum (EXP)

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  1. C

    809

    http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=615856
  2. C

    809/770

    Just go here: http://www.cff.org/research/ClinicalResearch/Find/ Thats how I got my son involved. I have to travel. But if you stay with it, the drug company will pick up some costs and you get paid (though not very much).
  3. C

    809/770

    Just go here: http://www.cff.org/research/ClinicalResearch/Find/ Thats how I got my son involved. I have to travel. But if you stay with it, the drug company will pick up some costs and you get paid (though not very much).
  4. C

    809/770

    my son is 20. im from NY. dont want to say exactly where the trial is.
  5. C

    809/770

    my son is 20. im from NY. dont want to say exactly where the trial is.
  6. C

    809/770

    He just started 809 or placebo only for the first two weeks. He will start 770 or placebo with it on Monday. I'm pretty sure hes been on the 809 at least to some extent. He takes three pills and they are testing dosage. One in four chance they are all placebo and so on. He has been coughing and...
  7. C

    809/770

    He just started 809 or placebo only for the first two weeks. He will start 770 or placebo with it on Monday. I'm pretty sure hes been on the 809 at least to some extent. He takes three pills and they are testing dosage. One in four chance they are all placebo and so on. He has been coughing and...
  8. C

    To those on kalydeco---Lauren (your thoughts, please)

    I want to say that after reading this thread I have renewed hope my son in on vx809. we just started a trial with 809/770. they are testing dosage for the deltas (my son is a double delta508). as of today he has been taking three 809's a day. we have a 1 in 4 chance they are all placebo. 1 in 4...
  9. C

    To those on kalydeco---Lauren (your thoughts, please)

    I want to say that after reading this thread I have renewed hope my son in on vx809. we just started a trial with 809/770. they are testing dosage for the deltas (my son is a double delta508). as of today he has been taking three 809's a day. we have a 1 in 4 chance they are all placebo. 1 in 4...
  10. C

    809/770

    My son is now in a trial with 770/809. He is starting out on just 809 for 2 weeks. Then he will start it in combo with 770. He is a Double Delta508. Anyone who has been in this trail that has any positive affects? And what is the differnce with 661 in combo with 770?
  11. C

    809/770

    My son is now in a trial with 770/809. He is starting out on just 809 for 2 weeks. Then he will start it in combo with 770. He is a Double Delta508. Anyone who has been in this trail that has any positive affects? And what is the differnce with 661 in combo with 770?
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