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Hi, the result of the sweat test does not reflect any severity of the disease, just keep this in mind ;-) If your son turns to have 90, don't panic, it's just like 70 or 61.

Hi, That's for our experience. Our CF daughter has been taking Omega-3 polyunsaturated fatty acid pills (1/day) , for 9 months now, as per the pediatrics' prescription. The pediatrics checked as this was the first time such a question was raised. Studies on CF-mice showed Omega-3 to help on...

Hi, overhere for our 22 month old daughter we give daily ADECK vitamins. This is medics, so these vitamins are not naturals but synthetized. As an addition we give 1 tea-cup of "Hippophae rhamnoides " by WELEDA (http://usa.weleda.com/ingredients/ingredient.asp?id=197) which contains full of...

I don"t know overthere but in France, stools are analyzed (grease rate) to adjust the quantity of enzymes. Are there such exams in the US ? We have the stools analyzed every 4 weeks or so for our 21 month-old-daughter. The enzymes have alwmost been adjusted after every analysis. I don't think...

Well.. I haven't read all the replies because the network I'm currently using is not enabling a comfortable browsing, so I apologize in advance for any duplicates in my comments. This is a global internet problem. Not related to any desease of whatever. This is emphasized here because of the...

Well, that's a question I have in mind. What to say and when ? My C/F daugher is pretty yound (18 months) but we have decided, since the very first day (she was diagnosed at 1 month old) to explain everything. The physiotherapist will come for that reason, you need to take your medicines...

for those who speak french, my web site is : http://oliver68.free.fr forum and chatroom available

<blockquote>Quote<br><hr><i>Originally posted by: <b>allie1</b></i>My daughter was recently diagnosed with cf and I'm realizing how frustrating these enzymes can be. Am I off base expecting her stools to appear completely normal or will they always be a little greasy and yellow? She is on...

Hi Val do brasil,interesting how eating seems to be a daily fight... I would say it depends on her mood. She's gaining weight, that's the most important !The treatment is first with classic antibiotics (eg bactrim, penicillin), or sprays, based on which bacteria is involved. IVs come after, or...

Thanks Brad. This is what we call something like "root-cell".This looks like science fiction to me, but let's hope !

Well Dr Becq is a member of the Scientific Council of the major CF-Association over here, so I guess this is good news !http://www.vaincrelamuco.org/annuaire/annuaire.php

Pseudomonas and staphilococcus aureus can easily be caught at the hospital, quickly cross-transmitted, caught at home. Or simply walking in the street, close to people caughing in the air....In France, we are strongly advised to follow some rules. Here are some samples :wash hands every time...

excuse me, could you pls explain what "stem cell" is ?Is it the "basic" universal cell which could "replace" any part of our body ? The main cell.Thx,

<blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i>Welcome!! What is kinesitherapy? I have never heard of it. Thank you,Sharon, mom of Sophia, 3 and Jack, 11 months, both with cf<hr></blockquote>Well, the kinetherapist is not a doctor but is kind of, who "heals" by touching...

Oups, sorry I missed my login for the previous post. I did not intend to post as "anonymous".