Cystic Fibrosis Forum (EXP)

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  1. M

    ADEK

    What enzyme are you on? Ultrase offers Comprehensive Care Program for CF - where you can get ADEKs. I'm not familiar with this program. Creon offers More EXTRAHELPINGS - where you can get SourceCF softgels. I think they both require that you are not on Medicare/Medicaid or federal/state...
  2. M

    ADEK

    What enzyme are you on? Ultrase offers Comprehensive Care Program for CF - where you can get ADEKs. I'm not familiar with this program. Creon offers More EXTRAHELPINGS - where you can get SourceCF softgels. I think they both require that you are not on Medicare/Medicaid or federal/state...
  3. M

    ADEK

    What enzyme are you on? Ultrase offers Comprehensive Care Program for CF - where you can get ADEKs. I'm not familiar with this program. Creon offers More EXTRAHELPINGS - where you can get SourceCF softgels. I think they both require that you are not on Medicare/Medicaid or federal/state...
  4. M

    ADEK

    What enzyme are you on? Ultrase offers Comprehensive Care Program for CF - where you can get ADEKs. I'm not familiar with this program. Creon offers More EXTRAHELPINGS - where you can get SourceCF softgels. I think they both require that you are not on Medicare/Medicaid or federal/state...
  5. M

    ADEK

    What enzyme are you on? <br /> <br />Ultrase offers Comprehensive Care Program for CF - where you can get ADEKs. I'm not familiar with this program. <br /> <br />Creon offers More EXTRAHELPINGS - where you can get SourceCF softgels. <br /> <br />I think they both require that you are not on...
  6. M

    Have you read the book SixtyFive Roses?

    I found that the absolute worst source of data about CF has been from books. Other than the ones you get from clinic - it's woefully out of date. This site and other "real people" are going to be one of the best sources of information for you - good and bad.
  7. M

    Have you read the book SixtyFive Roses?

    I found that the absolute worst source of data about CF has been from books. Other than the ones you get from clinic - it's woefully out of date. This site and other "real people" are going to be one of the best sources of information for you - good and bad.
  8. M

    Have you read the book SixtyFive Roses?

    I found that the absolute worst source of data about CF has been from books. Other than the ones you get from clinic - it's woefully out of date. This site and other "real people" are going to be one of the best sources of information for you - good and bad.
  9. M

    Have you read the book SixtyFive Roses?

    I found that the absolute worst source of data about CF has been from books. Other than the ones you get from clinic - it's woefully out of date. This site and other "real people" are going to be one of the best sources of information for you - good and bad.
  10. M

    Have you read the book SixtyFive Roses?

    I found that the absolute worst source of data about CF has been from books. Other than the ones you get from clinic - it's woefully out of date. <br /> <br />This site and other "real people" are going to be one of the best sources of information for you - good and bad.
  11. M

    Has anyone tried The Specific Carbohydrate Diet (SCD)?

    Considering that the book refers to it as "cystic fibrosis of the pancreas" (an outdated term) on the back cover indicates to me that it is a hoax to prey on the unsuspecting. Patients with cystic fibrosis cannot hope to regain "normal" function in the intestines due to a lack of enzymes...
  12. M

    Has anyone tried The Specific Carbohydrate Diet (SCD)?

    Considering that the book refers to it as "cystic fibrosis of the pancreas" (an outdated term) on the back cover indicates to me that it is a hoax to prey on the unsuspecting. Patients with cystic fibrosis cannot hope to regain "normal" function in the intestines due to a lack of enzymes...
  13. M

    Has anyone tried The Specific Carbohydrate Diet (SCD)?

    Considering that the book refers to it as "cystic fibrosis of the pancreas" (an outdated term) on the back cover indicates to me that it is a hoax to prey on the unsuspecting. Patients with cystic fibrosis cannot hope to regain "normal" function in the intestines due to a lack of enzymes...
  14. M

    Has anyone tried The Specific Carbohydrate Diet (SCD)?

    Considering that the book refers to it as "cystic fibrosis of the pancreas" (an outdated term) on the back cover indicates to me that it is a hoax to prey on the unsuspecting. Patients with cystic fibrosis cannot hope to regain "normal" function in the intestines due to a lack of enzymes...
  15. M

    Has anyone tried The Specific Carbohydrate Diet (SCD)?

    Considering that the book refers to it as "cystic fibrosis of the pancreas" (an outdated term) on the back cover indicates to me that it is a hoax to prey on the unsuspecting. <br /> <br />Patients with cystic fibrosis cannot hope to regain "normal" function in the intestines due to a lack of...
  16. M

    Doxycycline and Sun

    You don't need to 100% avoid the sun. You just need to be aware that you are going to be much more sensitive to sunburns. The time you can be exposed to the sun before you have UV damage is much less. However, since it is winter... your risk of UV exposure is less than in the summer. <a...
  17. M

    Doxycycline and Sun

    You don't need to 100% avoid the sun. You just need to be aware that you are going to be much more sensitive to sunburns. The time you can be exposed to the sun before you have UV damage is much less. However, since it is winter... your risk of UV exposure is less than in the summer. <a...
  18. M

    Doxycycline and Sun

    You don't need to 100% avoid the sun. You just need to be aware that you are going to be much more sensitive to sunburns. The time you can be exposed to the sun before you have UV damage is much less. However, since it is winter... your risk of UV exposure is less than in the summer. <a...
  19. M

    Doxycycline and Sun

    You don't need to 100% avoid the sun. You just need to be aware that you are going to be much more sensitive to sunburns. The time you can be exposed to the sun before you have UV damage is much less. However, since it is winter... your risk of UV exposure is less than in the summer. <a...
  20. M

    Doxycycline and Sun

    You don't need to 100% avoid the sun. <br /> <br />You just need to be aware that you are going to be much more sensitive to sunburns. The time you can be exposed to the sun before you have UV damage is much less. <br /> <br />However, since it is winter... your risk of UV exposure is less than...
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