Cystic Fibrosis Forum (EXP)

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  1. C

    Getting a vest for the First Time

    Hello,<br><br>We are about to get a vest for our 2yro.the clinic says we have to commit to one type..i would love your feedback on which one works best for your toddler? <br><br>Thanks so much for your input.<br><br>Best,<br><br>Susan<br>
  2. C

    Getting a vest for the First Time

    Hello,<br><br>We are about to get a vest for our 2yro.the clinic says we have to commit to one type..i would love your feedback on which one works best for your toddler? <br><br>Thanks so much for your input.<br><br>Best,<br><br>Susan<br>
  3. C

    Getting a vest for the First Time

    Hello,<br><br>We are about to get a vest for our 2yro.the clinic says we have to commit to one type..i would love your feedback on which one works best for your toddler? <br><br>Thanks so much for your input.<br><br>Best,<br><br>Susan<br>
  4. C

    Getting a vest for the First Time

    Hello,<br><br>We are about to get a vest for our 2yro.the clinic says we have to commit to one type..i would love your feedback on which one works best for your toddler? <br><br>Thanks so much for your input.<br><br>Best,<br><br>Susan<br>
  5. C

    In your experience does insurance co cover Ivf for CF carriers ?

    Hello, as always thanking you in advance for the great insights on this site.. . so.. my husband and I carry the CF gene..our daughter has CF she is 16 mths and doing great ( knocking on wood) we are thinking about another child and it appears our insurance would cover IVF and PGD given...
  6. C

    In your experience does insurance co cover Ivf for CF carriers ?

    Hello, as always thanking you in advance for the great insights on this site.. . so.. my husband and I carry the CF gene..our daughter has CF she is 16 mths and doing great ( knocking on wood) we are thinking about another child and it appears our insurance would cover IVF and PGD given...
  7. C

    In your experience does insurance co cover Ivf for CF carriers ?

    Hello, <br /> <br />as always thanking you in advance for the great insights on this site.. <br /> <br />. <br />so.. my husband and I carry the CF gene..our daughter has CF she is 16 mths and doing great ( knocking on wood) <br /> <br />we are thinking about another child and it appears our...
  8. C

    IVF and PGD for couple that are both cariers

    Hello, as always thanking you in advance for the great insights on this site.. .. so.. my husband and I carry the CF gene..our daughter has CF she is 16 mths and doing great ( knocking on wood) we are thinking about another child and it appears our insurance would cover IVF and PGD given the...
  9. C

    IVF and PGD for couple that are both cariers

    Hello, as always thanking you in advance for the great insights on this site.. .. so.. my husband and I carry the CF gene..our daughter has CF she is 16 mths and doing great ( knocking on wood) we are thinking about another child and it appears our insurance would cover IVF and PGD given the...
  10. C

    IVF and PGD for couple that are both cariers

    Hello, <br /> <br />as always thanking you in advance for the great insights on this site.. <br /> <br />.. <br />so.. my husband and I carry the CF gene..our daughter has CF she is 16 mths and doing great ( knocking on wood) <br /> <br />we are thinking about another child and it appears our...
  11. C

    Fecal Elastase

    Greetings, I just got a result from a fecal elastase that was 29 for My 12 mth old? the clinic said " this just shows she needs her enzymes" but as this is so far below 200 i am freaked out ? did anyone else do this test and if so what kind of number did you get ? if it was this low does that...
  12. C

    Fecal Elastase

    Greetings, I just got a result from a fecal elastase that was 29 for My 12 mth old? the clinic said " this just shows she needs her enzymes" but as this is so far below 200 i am freaked out ? did anyone else do this test and if so what kind of number did you get ? if it was this low does that...
  13. C

    Fecal Elastase

    Greetings, <br /> <br />I just got a result from a fecal elastase that was 29 for My 12 mth old? the clinic said " this just shows she needs her enzymes" but as this is so far below 200 i am freaked out ? <br />did anyone else do this test and if so what kind of number did you get ? if it was...
  14. C

    Suctioning an infant

    Hello everyone .. We just moved with our 11 mth old .. The old clinic had us suction her nose ( with a yanker machine..) twice a day .. New clinc says this is not necessary .. Have to say I am relieved as it was becoming really difficult and was always a dreaded task .. Just curious if anyone...
  15. C

    Suctioning an infant

    Hello everyone .. We just moved with our 11 mth old .. The old clinic had us suction her nose ( with a yanker machine..) twice a day .. New clinc says this is not necessary .. Have to say I am relieved as it was becoming really difficult and was always a dreaded task .. Just curious if anyone...
  16. C

    Suctioning an infant

    Hello everyone .. <br />We just moved with our 11 mth old .. The old clinic had us suction her nose ( with a yanker machine..) twice a day .. New clinc says this is not necessary .. Have to say I am relieved as it was becoming really difficult and was always a dreaded task .. Just curious if...
  17. C

    Moving to New Brunswick NJ ..

    Hello, My husband and I are moving to New Brunswick NJ with our 8mth old.( she is doing great thank goodness !) .We are leaving a wonderful centre in the Dallas Area and would appreciate any input regarding CF centres in this area. many thanks !
  18. C

    Moving to New Brunswick NJ ..

    Hello, My husband and I are moving to New Brunswick NJ with our 8mth old.( she is doing great thank goodness !) .We are leaving a wonderful centre in the Dallas Area and would appreciate any input regarding CF centres in this area. many thanks !
  19. C

    Moving to New Brunswick NJ ..

    Hello, <br /> <br />My husband and I are moving to New Brunswick NJ with our 8mth old.( she is doing great thank goodness !) .We are leaving a wonderful centre in the Dallas Area and would appreciate any input regarding CF centres in this area. <br /> <br />many thanks !
  20. C

    Anyone have problems with Cigna denying a claim for synagis ?

    Thank you all for your great advise...I am learning that fighting to get my daughter proper care is my new job!
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