Search results

Hi Steve, My son has DF508 and we just got news that the other is p.Ile1023_Val1024del. Our clinic team wasn't able to tell us anything about this specific gene and we're just curious about what it means for our son or if there is any information available on this in combination with the DF508...

I wish i had some encouraging words for you -- but i'm still trying to get my own mother to even read about Cystic Fibrosis (which she told my husband and i the less she knew the better <img src="i/expressions/face-icon-small-shocked.gif" border="0"> ) and that her boyfriend, who smokes, is NOT...

I wish i had some encouraging words for you -- but i'm still trying to get my own mother to even read about Cystic Fibrosis (which she told my husband and i the less she knew the better <img src="i/expressions/face-icon-small-shocked.gif" border="0"> ) and that her boyfriend, who smokes, is NOT...

I wish i had some encouraging words for you -- but i'm still trying to get my own mother to even read about Cystic Fibrosis (which she told my husband and i the less she knew the better <img src="i/expressions/face-icon-small-shocked.gif" border="0"> ) and that her boyfriend, who smokes, is NOT...

I recently learned of this issue a few weeks back but had gotten caught up with other things in life and had forgotten about it until my friend posted the Huffington Post Article on Facebook (her son has a form of mitochondrial disease) and it resparked my anger all over again for SGK. I first...

I recently learned of this issue a few weeks back but had gotten caught up with other things in life and had forgotten about it until my friend posted the Huffington Post Article on Facebook (her son has a form of mitochondrial disease) and it resparked my anger all over again for SGK. I first...

I recently learned of this issue a few weeks back but had gotten caught up with other things in life and had forgotten about it until my friend posted the Huffington Post Article on Facebook (her son has a form of mitochondrial disease) and it resparked my anger all over again for SGK. I first...

Sent a private message to you <img src="i/expressions/face-icon-small-smile.gif" border="0">

Sent a private message to you <img src="i/expressions/face-icon-small-smile.gif" border="0">

Sent a private message to you <img src="i/expressions/face-icon-small-smile.gif" border="0">

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>edan</b></i> Jeanne, I might also add that I believe UV light is supposed to be REALLY BAD for CF lungs because it creates ozone. The IQAir does not have UV. Also of note, my husband is really allergic to dust mites. My...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>edan</b></i> Jeanne, I might also add that I believe UV light is supposed to be REALLY BAD for CF lungs because it creates ozone. The IQAir does not have UV. Also of note, my husband is really allergic to dust mites. My...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>edan</b></i> <br /> <br />Jeanne, <br /> <br /> <br /> <br />I might also add that I believe UV light is supposed to be REALLY BAD for CF lungs because it creates ozone. The IQAir does not have UV. <br /> <br /> <br /> <br />Also of...

While i can't offer any guidance with the ostomy bag i just wanted to welcome you to the forums. I am sorry you had to join us here but please know that these boards are so incredibly helpful and supportive. I've found a new extended family that i'm so thankful for. I'm sure one of the parents...

While i can't offer any guidance with the ostomy bag i just wanted to welcome you to the forums. I am sorry you had to join us here but please know that these boards are so incredibly helpful and supportive. I've found a new extended family that i'm so thankful for. I'm sure one of the parents...

While i can't offer any guidance with the ostomy bag i just wanted to welcome you to the forums. I am sorry you had to join us here but please know that these boards are so incredibly helpful and supportive. I've found a new extended family that i'm so thankful for. I'm sure one of the parents...

dbl

dbl

dbl

I don't know about the recommended or researched ones for CF patients (although i'd love to know if there are as well) but we are currently using Therapures throughout our home. We have smaller ones for the bedrooms (3) and a larger one for the living area where we do all treatments and...