Cystic Fibrosis Forum (EXP)

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  1. M

    Another cfer got his wings

    My thoughts and prayers are with your family in this time of need. Thank the Lord he doesn't have to struggle anymore. Take care and be happy for him.
  2. M

    Another cfer got his wings

    My thoughts and prayers are with your family in this time of need. Thank the Lord he doesn't have to struggle anymore. Take care and be happy for him.
  3. M

    Another cfer got his wings

    My thoughts and prayers are with your family in this time of need. Thank the Lord he doesn't have to struggle anymore. Take care and be happy for him.
  4. M

    Another cfer got his wings

    My thoughts and prayers are with your family in this time of need. Thank the Lord he doesn't have to struggle anymore. Take care and be happy for him.
  5. M

    Another cfer got his wings

    My thoughts and prayers are with your family in this time of need. Thank the Lord he doesn't have to struggle anymore. Take care and be happy for him. <br />
  6. M

    Welcome Ambry Genetics

    Hi my dd has DDF508. I know that there is no way to predict severity, but my question is, is severity based off of how many functioning CFTR proteins they have. Even with this mutation, can she still have some functioning CFTR proteins. Or for some, is it that the other channels, like the...
  7. M

    Welcome Ambry Genetics

    Hi my dd has DDF508. I know that there is no way to predict severity, but my question is, is severity based off of how many functioning CFTR proteins they have. Even with this mutation, can she still have some functioning CFTR proteins. Or for some, is it that the other channels, like the...
  8. M

    Just cultured Nonmucoid pseudo for the first time

    My daughter Mariah cultured PA for the first time 2 months ago and she is now 11 months old. Last month her culture was clear and hopefully her culture from yesterday will be clear as well. We wouldn't have even known she had PA bc her only symptom was a runny nose. Her doc seemed to think it...
  9. M

    Just cultured Nonmucoid pseudo for the first time

    My daughter Mariah cultured PA for the first time 2 months ago and she is now 11 months old. Last month her culture was clear and hopefully her culture from yesterday will be clear as well. We wouldn't have even known she had PA bc her only symptom was a runny nose. Her doc seemed to think it...
  10. M

    Just cultured Nonmucoid pseudo for the first time

    My daughter Mariah cultured PA for the first time 2 months ago and she is now 11 months old. Last month her culture was clear and hopefully her culture from yesterday will be clear as well. We wouldn't have even known she had PA bc her only symptom was a runny nose. Her doc seemed to think it...
  11. M

    Just cultured Nonmucoid pseudo for the first time

    My daughter Mariah cultured PA for the first time 2 months ago and she is now 11 months old. Last month her culture was clear and hopefully her culture from yesterday will be clear as well. We wouldn't have even known she had PA bc her only symptom was a runny nose. Her doc seemed to think it...
  12. M

    Just cultured Nonmucoid pseudo for the first time

    My daughter Mariah cultured PA for the first time 2 months ago and she is now 11 months old. Last month her culture was clear and hopefully her culture from yesterday will be clear as well. We wouldn't have even known she had PA bc her only symptom was a runny nose. Her doc seemed to think it...
  13. M

    Starting Pulmozyme

    From my understanding, both staph and pseudomonas can be part of your normal flora, but they are oppurtunistic pathogens that can make you sick. And of course they are more prevalent in CFers because of the mucus.
  14. M

    Starting Pulmozyme

    From my understanding, both staph and pseudomonas can be part of your normal flora, but they are oppurtunistic pathogens that can make you sick. And of course they are more prevalent in CFers because of the mucus.
  15. M

    Starting Pulmozyme

    From my understanding, both staph and pseudomonas can be part of your normal flora, but they are oppurtunistic pathogens that can make you sick. And of course they are more prevalent in CFers because of the mucus.
  16. M

    Starting Pulmozyme

    From my understanding, both staph and pseudomonas can be part of your normal flora, but they are oppurtunistic pathogens that can make you sick. And of course they are more prevalent in CFers because of the mucus.
  17. M

    Starting Pulmozyme

    From my understanding, both staph and pseudomonas can be part of your normal flora, but they are oppurtunistic pathogens that can make you sick. And of course they are more prevalent in CFers because of the mucus.
  18. M

    Vitamin D3

    I give my 10 month old Vit D3 daily. It is 10000iu per 1ml and I only give her 2 drops so I am not sure what it is exactly, but she does great with it. It is supposed to be great for the winter time since most people don't get enough sun exposure during these months.
  19. M

    Vitamin D3

    I give my 10 month old Vit D3 daily. It is 10000iu per 1ml and I only give her 2 drops so I am not sure what it is exactly, but she does great with it. It is supposed to be great for the winter time since most people don't get enough sun exposure during these months.
  20. M

    Vitamin D3

    I give my 10 month old Vit D3 daily. It is 10000iu per 1ml and I only give her 2 drops so I am not sure what it is exactly, but she does great with it. It is supposed to be great for the winter time since most people don't get enough sun exposure during these months.
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