Cystic Fibrosis Forum (EXP)

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    i need some one to talk to

    Hi, Ben. Are you there? Did you get my e-card? <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    I need some one to talk to

    HI, COurtney, if you want you can email me whenever. I have CF and I'd be glad to answer your questions. I'm 14, too. <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Recipes for CF Cookbook

    RE:Help Raise $ For Research! Read This Page!!!! Thanks everyone for sending in your recipes. Keep them coming! Thanks!!!! Katie
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    stubborn daughter

    Samantha, I applaud you for your strength. You are so right, no parent wants to see one of their children (or any child) suffer. Unfortunately, there is only so much we can do and so it is up to us to teach them to care for themselves as well. I am awfully glad to hear your BPer is stable. I...
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    Low PFTS with no explanation

    V, My daughter was in last year for a clean out and even though she was on 3 wicked strong IV antibiotics her numbers were plummetting while IN THE HOSPITAL. She also lost weight (approx. 5 lbs in a week). You didn't mention whether this was the case for you. In any event, it was an allergic...
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    Parents w/CF and Talking to Kids

    Hi Amy! I'm a non-CFer with a daughter who is a CFer. All I can offer up is that no one knows what the future holds for any of us. If the CF is under "control" there's no guarantee that a wayward truck won't come flying around some corner....I guess what I mean to say is that nothing is for...
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    Recipes for CF Cookbook

    RE:Help Raise $ For Research! Read This Page!!!! Thanks Julie. I'll be watching the inbox! <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Parents w/CF and Talking to Kids

    BTW, that last entry was obviously for the guy doing the project.....
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    Parents w/CF and Talking to Kids

    1) Katie 2)Uh.....forever? But I was diagnosed when I was nine....<img src="i/expressions/face-icon-small-smile.gif" border="0"> 3.)Possibly my great uncle....died a long time before CF was discovered....same symptoms though.... 4.) Annoying sometimes...otherwise, I couldn't care less....don't...
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    Random Talk

    Hi, Clashpunk82......again. <img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"><img...
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    HELP RAISE $ FOR RESEARCH!!! READ THIS PAGE!!!! (please)

    Thanks, Heather, for the advice. I've also asked my mother (she's a caterer, so she obviously reads bazillions of cookbooks!) to help me collaborate it. Thanks again!!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-happy.gif" border="0">...
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    Recipes for CF Cookbook(please)

    HELP RAISE $ FOR RESEARCH!!! READ THIS PAGE!!!! (please) Hey, guys. Okay, so I asked for some creative fundraising ideas, and Carey gave me the idea to create a recipe book for CFers with their fave recipes and personal stories. So now, I'm writing you guys to ask if you wouldn't mind sending...
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    LOOKING FOR A PEN PAL

    Hey, danielle, that last post was from me, I wasn't logged in....<img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Message to God

    I think that at one time or another, every CFer asks God, why me? if you exist, then why give me this lousy disease to deal with everyday? At one point or another, everyone blames Him. But, like my mom would say, "He has a plan for you. He's given you this disease to make you stronger, because...
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    16 year old male with CF

    hey this is megan feeley. im using my sister katies log-in name. i dont have cf but katie does.feel free to em me at gwen.feeley@comcast.net. <img src="i/expressions/face-icon-small-happy.gif" border="0">
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    sup i need a penpal badly

    hi rebecca! my name is megan feeley, and my sister katie (im using her log-in) has cf. im here if you ever want to talk! <img src="i/expressions/face-icon-small-happy.gif" border="0">
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    I need some one to talk to

    Hi I'm Katie, and I'm 14, too. I'm also prepping for HS. I have CF, as well. If you'd like to talk, my email is gwen.feeley@comcast.net I'm willing to talk to you whenever you need me. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Katie
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    How much is your life worth?

    I don't know if I could voice an opinion as to whether this is the "proper" forum for your thoughts, but I am grateful that you are out there thinking these thoughts, sharing these thoughts and hopefully acting on these thoughts. It's people like you who are willing to go out and voice what...
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    Life Insurance

    No words could ever be comforting to you at this painful time. I am so sorry for your loss and I will keep you in my prayers. As devastating your loss, I know that you will always be close to your son and be blessed with the memories of his beautiful face. God bless you and take care. Gwen...
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    stubborn daughter

    Samantha, Do you have someone who can help out with some of the responsibilities? I know that this isn't always possible what with jobs, etc. however, maybe that can be helpful. Also, do you do anything to take good care of you? You sound like a wicked busy mom who could stand a little quiet...
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