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  1. C

    What mutations mean?

    My daughter has the same thing ddf508 and she is 11 months old1 I was wondering the same thing, How do I know how bad that is, will that depond on how long she will live? So meny QA's
  2. C

    Good cf Centers???

    Hi everyone mom of One w/cf, 3/nocf and one no longer w/us I just moved from Mi. were at the U of M AnnArbor Hosp. they ranked 3rd in the Nation for cf center care, they were so personal with you in treating you they got to know you and your child very well, and toke meny percations in...
  3. C

    Good cf Centers???

    Hi everyone mom of One w/cf, 3/nocf and one no longer w/us I just moved from Mi. were at the U of M AnnArbor Hosp. they ranked 3rd in the Nation for cf center care, they were so personal with you in treating you they got to know you and your child very well, and toke meny percations in...
  4. C

    Good cf Centers???

    Hi everyone mom of One w/cf, 3/nocf and one no longer w/us I just moved from Mi. were at the U of M AnnArbor Hosp. they ranked 3rd in the Nation for cf center care, they were so personal with you in treating you they got to know you and your child very well, and toke meny percations in...
  5. C

    Do you think this is possible?

    It is SICKING to think there are people out there who say and do things to get attention, It is atrue sickness and I know people like that. I remember the day the doc's told me my son (no longer w/us) had cf i nearly passed out! He started getting sick 2 days after he was born and he wasn't...
  6. C

    Do you think this is possible?

    It is SICKING to think there are people out there who say and do things to get attention, It is atrue sickness and I know people like that. I remember the day the doc's told me my son (no longer w/us) had cf i nearly passed out! He started getting sick 2 days after he was born and he wasn't...
  7. C

    Do you think this is possible?

    It is SICKING to think there are people out there who say and do things to get attention, It is atrue sickness and I know people like that. I remember the day the doc's told me my son (no longer w/us) had cf i nearly passed out! He started getting sick 2 days after he was born and he wasn't...
  8. C

    do you wait 15 min. after enzymes to eat?

    <img src="i/expressions/face-icon-small-frown.gif" border="0"> My little girl 11months w/cf takes them w/ her fitst bite! All though sometimes that don't work, I'm still in the prosses of finding out what works I've nursed her sence the day she was born and getting her to want to take that...
  9. C

    do you wait 15 min. after enzymes to eat?

    <img src="i/expressions/face-icon-small-frown.gif" border="0"> My little girl 11months w/cf takes them w/ her fitst bite! All though sometimes that don't work, I'm still in the prosses of finding out what works I've nursed her sence the day she was born and getting her to want to take that...
  10. C

    do you wait 15 min. after enzymes to eat?

    <img src="i/expressions/face-icon-small-frown.gif" border="0"> My little girl 11months w/cf takes them w/ her fitst bite! All though sometimes that don't work, I'm still in the prosses of finding out what works I've nursed her sence the day she was born and getting her to want to take that...
  11. C

    thought he had celiacs, found out he had CF

    I know the gene to look for It's like Deltaf5 something like that!
  12. C

    thought he had celiacs, found out he had CF

    I know the gene to look for It's like Deltaf5 something like that!
  13. C

    thought he had celiacs, found out he had CF

    I know the gene to look for It's like Deltaf5 something like that!
  14. C

    thought he had celiacs, found out he had CF

    Yes they checked him by doing a stomach scope and a biopsy of the small intestne! He had the blood work done 1st that showed the markers for celic but the biopsy showed he didn't have it. Just a wheet algery. He has been throwing up almost every day for a year! So now he is on previced and...
  15. C

    thought he had celiacs, found out he had CF

    Yes they checked him by doing a stomach scope and a biopsy of the small intestne! He had the blood work done 1st that showed the markers for celic but the biopsy showed he didn't have it. Just a wheet algery. He has been throwing up almost every day for a year! So now he is on previced and...
  16. C

    thought he had celiacs, found out he had CF

    Yes they checked him by doing a stomach scope and a biopsy of the small intestne! He had the blood work done 1st that showed the markers for celic but the biopsy showed he didn't have it. Just a wheet algery. He has been throwing up almost every day for a year! So now he is on previced and...
  17. C

    should we do more testing?

    My baby girl tested pos. before she was born, could the test be wrong even tho she need the ezymes? why is her tummy so desended?
  18. C

    should we do more testing?

    My baby girl tested pos. before she was born, could the test be wrong even tho she need the ezymes? why is her tummy so desended?
  19. C

    should we do more testing?

    My baby girl tested pos. before she was born, could the test be wrong even tho she need the ezymes? why is her tummy so desended?
  20. C

    should we do more testing?

    Hey im new to this can any one chat with me for a sec
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