Search results

RE: Emily, barbara, Senatorgrahm, kiwilady, letsrockcfem, lynsey and chuck, rose4cale, haylz, WinAce, Mockingbird MANY More 1. Jennifer Nelson 2. I have CF, but diagnosed as an adult at age 31 3. 35 y.o. 4. jleighnelson@hotmail.com 5. will email address info

Amy, You can show to your mom and sis that the chances of a person being a carrier (i.e. your biological father & mother, and stepfather) are greater than they may think. Here is a link to check out and it shows the carrier frequency by each ethnic/population group...

Hi Jennifer, Wanted to answer your question about producing sputum on demand. I am actually always able to do it after my spirometry...gets things really loosened up after all that blowing! Also, on my chest x-ray/CT's I have bronchiectasis in both my upper left and right lobes and in my...

I was not diagnosed until I was 31 so I never had sputum cultures done on a regular basis until that time. But in those 3 years, I have cultured staph, pseudomonas, and I have been colonized with more than one strain of stenotrophomonas maltophilia for over a year now. I was pretty sick with...

Hi, I too have horrible problems with irregularity!!! I think my last bout of constipation was about a week, but the one prior to that was going on 12 days with no BM and I was in complete misery!! I looked about 4 months pregnant and felt so horrible. I have to now take MiraLax regularly...

Hi everyone, Thank you for all of the replies! Well, I know that we have a complete home air filtration system and that the filter was recently changed, as well as the furnace filter. We do not have any pets except a guinea pig, and it stays in my daughter's room upstairs (our room is on the...

every morning for over a month. I don't know what's going on!! <img src="i/expressions/face-icon-small-confused.gif" border="0"> I wake up and as soon as I get up, my lungs feel very constricted and tight and I can't get in enough air. I have to use my albuterol inhaler right away and that...

It's funny you should ask this question because I've wondered this about CF'ers. Since I am still fairly new to CF (diagnosed 3 years ago) it has been a learning process. I seemingly have had more problems healthwise the past couple years...if it isn't one thing, it's another. So I would have...

I had to go in for some bloodwork last Friday due to this constant off & on nausea I've been having. Everything came back pretty good with the exception of my glucose level which was 55...ref range 64-105. I have dealt with hypoglycemic episodes for years but have never had my glucose dip...

Same here...when I have coughed up blood, (and it is scary that first time!) it usually is about a couple tablespoons and then tapers off after a half and hour to a couple hours. I always have some bad pain though after I cough up blood...I can tell right where the bleed is coming from. And...

Here is anything and everything you want to know about Pulmozyme: http://www.pulmozyme.com/patient/3_3_faq_about_cf_and_pulmozyme.jsp Jen 34 w/cf <img src="i/expressions/face-icon-small-smile.gif" border="0">

Hi Debbie, Thanks for the reply. I actually am already on Nexium...have been on something prescription for GERD (i.e. Prevacid, now Neixum) for several years. I just wasn't sure how common nausea could be in general for people with CF due to digestive issues. I do know that certain...

Do any of you experience on and off nausea (or have in the past) and could it be related to PI?? I have been having problems with nausea for about a year and a half...some times it is worse than others. When it's worse, I take Zofran and most of the time that helps. I have told my gastro doc...

Yes, I too at time use the OTC gas remedies, and have some success with it. Gas-X and Mylanta Gas tabs are both pretty good. Also, you may want to ask your doc about adding acidophilus capsules to your regimin each day. It's also good anyway for us gals who are on antibiotics a lot and get...

I have also ordered some things from the Boomer Esiason Foundation...that website is: http://www.esiason.org/ Just click on "BEF Store" at the top of the page <img src="i/expressions/face-icon-small-smile.gif" border="0"> Jen 34 w/cf

I did not have any problems either. I seemed to get mine within a week or so, but that was right when they started to sell them. I know her order volume has increased a lot over the past several months so the actual arrival time may be a bit longer now, especially since you're overseas. But...

I am all over the place on this one...sometimes it's once daily, sometimes it's 2 or 3 times, then other times I don't go for days (and days) on end!! (no pun intended <img src="i/expressions/face-icon-small-wink.gif" border="0"> ) My bowels are always a guessing game <img...

I get insanely hungry too about a week before...that is how I know I have about a week until "it" shows. However the day it arrives, the hunger disappears. I figure I am fortunate that I have that week that I am actually pretty hungary because the rest of them month I almost have to remind...

Hi....not sure who it was that replied back but wantedyou to know that I actually see Dr. Ober too down in Indy....currently every six months. (We used to live in Indy before moving up north and wanted to keep ties with Dr. Ober and Jana so I have to at least see him every 6 months) In...

I was wanting to find out from those of you who attend the adult CF clinic @ Lutheran General in Chicago, what your opinion of Dr. Arvey Stone is. Are you happy with his care, are you happy with the staff, and the clinic overall? Thanks in advance! Jen 34 w/cf