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<blockquote>Quote<br><hr>Anyone who just tries to live for themselves will fall short because we have to many imperfections.<hr></blockquote>
I strongly disagree. I can't even put into words how wrong that statement is. I am not sure why you would even say it, your genuine opinion or not, in a...
I struggled for a long time about how I was going to reply to you because this is obviously such a sensitive topic. It's something that everyone deals with, and I believe that patients with any debilitative disease have to question their lives more than many other people. Cystic fibrosis is an...
I was told I had a mild form of the disease when I was younger, and now I've only been hospitalized three times in my life, and I was healthy for each one of them. They were just precautionary visits. I've led the most normal life that anyone with cf can live. Now I'm away at college living...
I am not religious. It's actually my lack of religion that helps me deal with having cf. Were I to accept that there was a God then I feel like I'd have to blame him for my condition, and I don't want to have to deal with hating God. Instead, I just believe he isn't there.
For others though...
I am just finishing up my teenage years. Good times. I never did the rebellious thing at the scale that your daughter has, but I defintiely dealt with cf related feelings that she is dealing with. As cfers, we often get this pretentious idea from our family and friends that we are living some...
I don't think researchers are looking to rewrite your genetic structure to find a cure. What they're looking to do is correct the problem that the gene causes at its root. Literally every medicine we have for cf just attacks the symptoms, and nothing goes to the heart of the problem, which is...
Good topic. For me, I let anyone know who I think needs to know, and that's a lot of people. I feel like CF is a huge part of me, and in order for anyone to know me, I tell them about the CF. It's just the way I look at things I guess. I'm going to tell a girl at college tonight because we've...
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