Cystic Fibrosis Forum (EXP)

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  1. B

    our friend

    My advice is to just treat her normally and unless she starts to talk about cf don't bring it up. I don't tell a lot of people cuz people tend to ask me if i'm feeling ok and stuff like that i am fine when people are just interested in what cf is like but it really bugs me when they act like...
  2. B

    our friend

    My advice is to just treat her normally and unless she starts to talk about cf don't bring it up. I don't tell a lot of people cuz people tend to ask me if i'm feeling ok and stuff like that i am fine when people are just interested in what cf is like but it really bugs me when they act like...
  3. B

    our friend

    My advice is to just treat her normally and unless she starts to talk about cf don't bring it up. I don't tell a lot of people cuz people tend to ask me if i'm feeling ok and stuff like that i am fine when people are just interested in what cf is like but it really bugs me when they act like...
  4. B

    our friend

    My advice is to just treat her normally and unless she starts to talk about cf don't bring it up. I don't tell a lot of people cuz people tend to ask me if i'm feeling ok and stuff like that i am fine when people are just interested in what cf is like but it really bugs me when they act like...
  5. B

    whats the point?

    i feel like that a lot too i don't really have any advice except that no one knows when they are going to die even healthy people so just go about your life as if you would live forever just make sure you are enjoying it. I did read this really good book its called Forever changes, it was...
  6. B

    whats the point?

    i feel like that a lot too i don't really have any advice except that no one knows when they are going to die even healthy people so just go about your life as if you would live forever just make sure you are enjoying it. I did read this really good book its called Forever changes, it was...
  7. B

    whats the point?

    i feel like that a lot too i don't really have any advice except that no one knows when they are going to die even healthy people so just go about your life as if you would live forever just make sure you are enjoying it. I did read this really good book its called Forever changes, it was...
  8. B

    whats the point?

    i feel like that a lot too i don't really have any advice except that no one knows when they are going to die even healthy people so just go about your life as if you would live forever just make sure you are enjoying it. I did read this really good book its called Forever changes, it was...
  9. B

    whats the point?

    i feel like that a lot too i don't really have any advice except that no one knows when they are going to die even healthy people so just go about your life as if you would live forever just make sure you are enjoying it. I did read this really good book its called Forever changes, it was...
  10. B

    Okay I need your HELP !

    I have thought about that too and ur post has inspired me so i just sent them an e-mail that they should add a show maybe if they get two they will realize that it is a good idea!
  11. B

    Okay I need your HELP !

    I have thought about that too and ur post has inspired me so i just sent them an e-mail that they should add a show maybe if they get two they will realize that it is a good idea!
  12. B

    Okay I need your HELP !

    I have thought about that too and ur post has inspired me so i just sent them an e-mail that they should add a show maybe if they get two they will realize that it is a good idea!
  13. B

    Okay I need your HELP !

    I have thought about that too and ur post has inspired me so i just sent them an e-mail that they should add a show maybe if they get two they will realize that it is a good idea!
  14. B

    Okay I need your HELP !

    I have thought about that too and ur post has inspired me so i just sent them an e-mail that they should add a show maybe if they get two they will realize that it is a good idea!
  15. B

    Ports

    So the doc brought up the idea of getting a port the last time i was in the hospital and i want to know about them from people who have them. She said i could get it either in my arm or my chest. I am thinking i would do the arm cuz that seems less akward to hook up to ivs. But is it supper...
  16. B

    Ports

    So the doc brought up the idea of getting a port the last time i was in the hospital and i want to know about them from people who have them. She said i could get it either in my arm or my chest. I am thinking i would do the arm cuz that seems less akward to hook up to ivs. But is it supper...
  17. B

    Ports

    So the doc brought up the idea of getting a port the last time i was in the hospital and i want to know about them from people who have them. She said i could get it either in my arm or my chest. I am thinking i would do the arm cuz that seems less akward to hook up to ivs. But is it supper...
  18. B

    Ports

    So the doc brought up the idea of getting a port the last time i was in the hospital and i want to know about them from people who have them. She said i could get it either in my arm or my chest. I am thinking i would do the arm cuz that seems less akward to hook up to ivs. But is it supper...
  19. B

    Ports

    So the doc brought up the idea of getting a port the last time i was in the hospital and i want to know about them from people who have them. <br />She said i could get it either in my arm or my chest. I am thinking i would do the arm cuz that seems less akward to hook up to ivs. But is it...
  20. B

    Letting off some steam

    i agree cf sucks and people need to just leave us alone. Last time i was in the hospital i had this really annoying rt and she talked to us for like my whole treatment about how cf kids just need to do their treatments and its just 20 min its no big deal. It made me so mad cuz she doesn't get...
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