Cystic Fibrosis Forum (EXP)

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  1. I

    To take the 1 in 4 chance?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>littledebbie</b></i> I am 26 wCF and if my parents could have made the decision to have me - a child with CF- or not I would have told them no. </end quote></div> Maybe i missunderstood what you were saying. If so I apologise. I...
  2. I

    To take the 1 in 4 chance?

    LIFE is all we have. Its all anyone has. How long it lasts depends on a lot of factors. CF makes it shorter than the average. It might makes it more painfull than the average but it's still LIFE. No matter how bad CF is. There isn't one person who hasn't enjoyed at least part of their life as a...
  3. I

    First visit since oregano

    Great to hear ye have been having such good results with oregano oil. Sean, I was wondering if you could list some of the sources for whatever reseatch you did before starting? Its not that I don't take your word for it or anything but I'm sure you'd agree that people should do a bit of reading...
  4. I

    First visit since oregano

    Great to hear ye have been having such good results with oregano oil. Sean, I was wondering if you could list some of the sources for whatever reseatch you did before starting? Its not that I don't take your word for it or anything but I'm sure you'd agree that people should do a bit of reading...
  5. I

    Doc telling not to look up cf sites

    Sounds like you have a great friend there "shells friend". I'm sure we all wish we knew someone who went to so much effort to find out about cf. I attend Castlebar. I've never been in the situation where I suggested something that I had read on the net to my doc but I think that he would be...
  6. I

    Doc telling not to look up cf sites

    Sounds like you have a great friend there "shells friend". I'm sure we all wish we knew someone who went to so much effort to find out about cf. I attend Castlebar. I've never been in the situation where I suggested something that I had read on the net to my doc but I think that he would be...
  7. I

    Doc telling not to look up cf sites

    Shell, Do you mind me asking what hospital you were told this? I can understand doctors not wanting patients to get over worried about symtoms they may read or get over excited about wacky cures they find on the net but theres no excuses for telling people that they shouldn't keep themselves...
  8. I

    Doc telling not to look up cf sites

    Shell, Do you mind me asking what hospital you were told this? I can understand doctors not wanting patients to get over worried about symtoms they may read or get over excited about wacky cures they find on the net but theres no excuses for telling people that they shouldn't keep themselves...
  9. I

    a game!!!

    actual item This one's easy: (dont think it was asked before but I havent read them all) stairs of lift?
  10. I

    CF regime

    <blockquote>Quote<br><hr><i>Originally posted by: <b>Emily65Roses</b></i><br>... but as I'm sure most of you know, if you've got a good enough line, you can taste some meds as they're infusing. And Ceftaz literally tastes exactly how cat piss smells...<hr></blockquote> Ok I know this is an old...
  11. I

    in classroom, what do u do when u needed to cough?

    <b>Gross warning on this reply!!!</b> I dont think its that gross to swallow it. It comes from your lungs anyway and lets face it it doesnt really taste that bad. I wouldnt go for it if it was on a menu but it could be worse. Some of those supplements they give you are way worse. I have always...
  12. I

    Anyone have the DF508 and G551D Mutations?

    I have cf and I have a brother with cf. Even though we both have the same mutations (obviously) there is a big difference in how cf has effected us. Im older but much smaller and my lungs are worse. We both have digestive problems and he has sinus problems that I dont have. As far as I can...
  13. I

    could it be

    If you have two different mutations this means that you have to give one of them to your children. With each child there is a 50/50 chance of giving them each mutation. So theres is a 50% chance that they would have the same mutations if you have two different ones. However if your asking...
  14. I

    could it be

    <blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i><br>dr going to sweat test me because of symp of cf...........<hr></blockquote> As far as I could gather they have yet to find out
  15. I

    The Vest - how often?

    We dont have vests where im from. I was wondering how exactly they work? Do you have to make a concious effort to do a series of breaths and coughs and stuff or does it just make you cough wheither you want to or not? I do autogenic drainage (spelling??) which is basically a series of shallow...
  16. I

    could it be

    If you have two d508 mutations (ie. you have cf) then this doubles the chance of you having a child with cf (assuming that your partner is a carrier) which he/she obviously is). This is because the child gets one gene from you (which has to be a cf gene if you have cf) and one from your...
  17. I

    Are there any other Christian users?

    I think its sad that someone has taught an 11 year old (Ilovejesus) that if everyone doesnt believe in what he believes in that they will go to hell. What kind of christianity is that? ilovejesus, you are much younger than most people on this forum and I think it would be safe to say that most...
  18. I

    chat room

    anyone in chat now?
  19. I

    MRSA anyone?

    I dont. I went to Lourdes years ago but I'm cant go to any meetings now because of MRSA. <img src="i/expressions/face-icon-small-sad.gif" border="0">
  20. I

    MRSA anyone?

    I dont want to start an argument or anything but you say it NEVER goes away. But if you dont culture it how do you know its there? By culture do you mean "the lab finds a large amount of it and It is causing you to be sick" or "the lab finds ANY small trace of it" Im not sure if the question...
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