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Hi, Im Aileen and I'm 17 years old and was just curious as to how you guys deal with gaining weight etc I'm finding it so hard at the moment to keep it up and doctors have mentioned peg feeding to me in the past but at the time I didn't like the idea of it. Now I'm beginning to think that it...

Right now I'm quite worried. Iv had a bit of a cold the last few days and have been coughing during the night and now on just one hand the palm side of just my fingers look like there stained blue....looks like iv been holding something blue. I'm scared it could be something serious but find it...

Hi guys, Thought it would be cool to finally chat with other people with cf and help out etc :) I'm 17 years old with ddf508 and would be happy to talk to anyone, u can add me on Facebook my names Aileen Henderson :)

Just wondering if people out there are the same as me and are having/had children? Im only 17 so no plans yet but i just like to know these things for future! :p My lungs are resonably good and iv only had IV antibiotics once so from that side of things I think iv a good chance of hopefully...

So basically Im hating the way I look at the moment....problem is because of the whole cf thing Iv a really enlarged spleen its huge and it makes my stomach stick out and I hate it so much I also get really bad bloating which makes things even worse! Are any of you guys out there the same as me...

Hi, Just wondering if any of you guys know where I could by a new AD belt to use with my pepmask? Mine is getting old! Thanks :)

Hey guys, Wondering if any of you know about kalydeco for ddf508 patients. Iv read so many things about when its coming, that it isn't happening, that it wont work and its hard to know what to believe! :( I hear of so many people on it and are doing amazing, I just need it so bad now and hope...

Hey guys, Im Aileen and Im 17 years old living in Ireland with ddf508. I spend alot of my time singing and playing guitar, I love it so much and I find its great for my lungs! I would love if you could check out my you tube channel http://www.youtube.com/user/AileenMusic1696 I also have a...

For people on tobi podhaler! Have any of you had the side effect where it makes you really tight all the time and makes your voice go really hoarse! No matter how much ventolin I take I'm still tight and I feel worse when I'm on my month on it but doctor had advised not to change :(

Is there anyone out there like this or is it just me! I'm not very productive at all! I bring tiny amounts up a day even after physio etc and I'm not sure weather this is good or bad and my lung functions around 55-58% so somethings wrong somewhere. My doctor always asks if I bring a...

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Hey, wondering if anyone else out there is having the same problems as me! Iv always had clammy hot hands but recently they've gotten really bad! They get really really sweaty I can see the wetness on them and its getting really annoying because I play guitar and piano and its not so easy with...