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@Oboe oh yes! I did that when I was younger might be good to go back to it, thanks for that :)

Thank you hoping the brown stuff clears out soon and goes back to normal! @Oboe what exactly is postural drainage?

Thanks for advice guys....doctors took me off pulmozyme yesterday and told me to stay off it for the weekend but I'm still coughing up brown sputum...is this old stuff getting cleared out anyone know? Thanks for your help :)

Thanks for that yeah doctors are only deciding to try me on it now so I'll try stay on it a while and hopefully things will work out! Hope you are all doing well :)

Hey! So at the moment I'm in hospital for my 2nd time having ivs...due to blood in my sputum :( I am usually on hypertonic saline but while I'm in they have changed me to pulmozyme and I started it yesterday but since then I have this gurgling sensation in my throat and I really hate it it feels...

Just wondering...recently while iv been on tobi my sputum is blobs of blood, have any of you guys experienced this with tobi? Gonna get checked out 2moro anyways

Thanks for that idea I'll suggest it to doctors :) hopefully kalydeco will be available for ddf508 soon!

Do people with cf get hotter then other people? My problem is our classroom in school gets super hot and other people say it's a little hot but I get way worse and end up overheating so much it makes me feel sick. I get like this anyways in hot situations but is anyone else the same and have u...

Hi guys, Thanks so much for advice :) I am on vit k called menadiol and also Aqua Adek. In June my vit k was ok and I'm also getting it checked again soon so results of that will be good to know. Thanks for advice hope this stops soon! :(

Hey, so some of you have probably seen a previous post by me about this and its really starting to worry me :( so basically I randomly cough up blood just blood and its not sputum its almost like the blood you would get if you cut your finger. Doctors havnt paid much attention to it and just say...

Ok so your oxygen is quite good, u seem similar to me I used to be on antibiotics every month or so but oral not ivs and doctors started me on Zithromax are u on that? It's basically an oral antibiotic that I take 3 times a week and it seems to help a lot :) if your just on Tobi sometimes it's...

Please don't think your going to die that's highly unlikely at your age and at least your pfts are above 30 so that's good :) there's so many antibiotics out there maybe you and your doctors need to review what antibiotics u should be put on? What's your oxygen levels like and are you on any...

Hey! I'm 17 with cf and can kind of relate to your girlfriend although iv never been in a relationship long enough to tell someone but well done u seem like a great couple not letting it affect you :) I can only imagine how hard it is telling someone and not knowing how they'll react! All I can...

@Matt31 Hi :) sorry wat do you mean by heavy growth? I'm doing alternate months of cayston and tobi and I wouldn't consider myself mild...but also not severe my lung function is in the high 50s and I do get sick quite often and have trouble gaining weight etc but iv only been admitted for Iv...

Hey everyone so just a quick question to see if any of you experienced the same thing....iv had pseudomonas in my sputum since as long as I can remember but over the last year or so it hasn't been showing up at all just staph, the doctor said it's more than likely still there so not to get too...

Wow great idea! :) I'm into music and singing myself! Hope it all goes well for you good job! :)

Exact same happened with me!! Congratulations something less to worry about! :)

So I'm thinking of starting hot yoga and just looking for some feedback on it :) ino yogas suppose to be brilliant but I'm unsure whether doing the hot yoga (it's in a hot room of about 37 degrees) will be good for cf or not with germs etc Have any of you experienced it and what did you think...

I was thinking of starting hot yoga but I'm unsure if the hot room will be good or bad for people who have cf. Ino that yoga should be very good it's just the hot room I'm not sure about with germs etc? Have any of you experienced hot yoga and did you think it was good? :)

Thank you so much! In the past iv coughed up only blood and doctors said it was nothing serious but was worried because of it being pure phlegm! You put me at ease a bit and iv decided to start antibiotics today because I think I need them now! Thank you and hope your well :)