Cystic Fibrosis Forum (EXP)

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  1. M

    Hospital Tips

    special socks, the hospital ones slip off, her feet get cold and she likes fuzzy socks with non slip bottoms, or funky slippers. She is 7 and she gets so happy every day with a new pair. Also I let her make a list of stuff to pack prior ro admitting. We prepack with lotions, sanitizers that...
  2. M

    First stay, does it get any easier?

    Yes, the stays get easier. The ins and outs and coping becomes routine. The seeing our kids in pain, does not. My Allissa is 7 now. She was diagnosed at 5 days and spent 6 months in the hospital. It was hell and I can barely remember it. My advice to you, is be vigilent, but let the nurses take...
  3. M

    First stay, does it get any easier?

    Yes, the stays get easier. The ins and outs and coping becomes routine. The seeing our kids in pain, does not. My Allissa is 7 now. She was diagnosed at 5 days and spent 6 months in the hospital. It was hell and I can barely remember it. My advice to you, is be vigilent, but let the nurses take...
  4. M

    CF kids are still just kids

    My daughter Allissa was at the ent after her last sinus surgery and was very upset because she didn't want them to touch her nose: Allissa "Momma, why do I have to do this?" Me ""Because it's just a part of your CF and God wouldn't give it to you if you weren't strong enough" Allissa (holding...
  5. M

    CF kids are still just kids

    My daughter Allissa was at the ent after her last sinus surgery and was very upset because she didn't want them to touch her nose: Allissa "Momma, why do I have to do this?" Me ""Because it's just a part of your CF and God wouldn't give it to you if you weren't strong enough" Allissa (holding...
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