Cystic Fibrosis Forum (EXP)

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  1. H

    Human Growth Hormone (HGH)

    My little girl who has CF if five years old and started growth hormones about two months ago. She has gained weight and she also had the highest pfts at our last appointment, this could be a coincidence but from a moms point a view I think it is helping. We went to see Dr Warwick last week and...
  2. H

    Human Growth Hormone (HGH)

    My little girl who has CF if five years old and started growth hormones about two months ago. She has gained weight and she also had the highest pfts at our last appointment, this could be a coincidence but from a moms point a view I think it is helping. We went to see Dr Warwick last week and...
  3. H

    Human Growth Hormone (HGH)

    My little girl who has CF if five years old and started growth hormones about two months ago. She has gained weight and she also had the highest pfts at our last appointment, this could be a coincidence but from a moms point a view I think it is helping. We went to see Dr Warwick last week and...
  4. H

    Human Growth Hormone (HGH)

    My little girl who has CF if five years old and started growth hormones about two months ago. She has gained weight and she also had the highest pfts at our last appointment, this could be a coincidence but from a moms point a view I think it is helping. We went to see Dr Warwick last week and...
  5. H

    Human Growth Hormone (HGH)

    My little girl who has CF if five years old and started growth hormones about two months ago. She has gained weight and she also had the highest pfts at our last appointment, this could be a coincidence but from a moms point a view I think it is helping. We went to see Dr Warwick last week and...
  6. H

    F508 and W1282x

    Hello - My daughter has the same mutations as your grandaughter, Maci is five years old and was not diagnosed until she was 3yrs old. It is wonderful that they found this while she is still so young, the faster the treatment begins the better. My little girl has been pretty healthy the...
  7. H

    F508 and W1282x

    Hello - My daughter has the same mutations as your grandaughter, Maci is five years old and was not diagnosed until she was 3yrs old. It is wonderful that they found this while she is still so young, the faster the treatment begins the better. My little girl has been pretty healthy the...
  8. H

    F508 and W1282x

    Hello - My daughter has the same mutations as your grandaughter, Maci is five years old and was not diagnosed until she was 3yrs old. It is wonderful that they found this while she is still so young, the faster the treatment begins the better. My little girl has been pretty healthy the...
  9. H

    F508 and W1282x

    Hello - My daughter has the same mutations as your grandaughter, Maci is five years old and was not diagnosed until she was 3yrs old. It is wonderful that they found this while she is still so young, the faster the treatment begins the better. My little girl has been pretty healthy the...
  10. H

    F508 and W1282x

    Hello - My daughter has the same mutations as your grandaughter, Maci is five years old and was not diagnosed until she was 3yrs old. It is wonderful that they found this while she is still so young, the faster the treatment begins the better. My little girl has been pretty healthy the...
  11. H

    PTC124

    Hey do you guys know any news from france on the pediactric trial.
  12. H

    PTC124

    Hey do you guys know any news from france on the pediactric trial.
  13. H

    PTC124

    Hey do you guys know any news from france on the pediactric trial.
  14. H

    PTC124

    Hey do you guys know any news from france on the pediactric trial.
  15. H

    PTC124

    Hey do you guys know any news from france on the pediactric trial.
  16. H

    Salt water swimming pools

    Hi - I have a salt water swimming pool, and actually we turned ours into one because our doctor said it was better than the chlorine pools. I am totally confused now, Maci swam all last summer and never cultured anything until this winter. I will definately try to find out more info on this as...
  17. H

    Salt water swimming pools

    Hi - I have a salt water swimming pool, and actually we turned ours into one because our doctor said it was better than the chlorine pools. I am totally confused now, Maci swam all last summer and never cultured anything until this winter. I will definately try to find out more info on this as...
  18. H

    Salt water swimming pools

    Hi - I have a salt water swimming pool, and actually we turned ours into one because our doctor said it was better than the chlorine pools. I am totally confused now, Maci swam all last summer and never cultured anything until this winter. I will definately try to find out more info on this as...
  19. H

    PTC124

    I have wondered that same thing, but I would guess that the cpt will not stop until they see how the meds work for the kids, but that is a guess. Christa
  20. H

    PTC124

    I have wondered that same thing, but I would guess that the cpt will not stop until they see how the meds work for the kids, but that is a guess. Christa
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