Cystic Fibrosis Forum (EXP)

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  1. S

    7 year old Conner Jones cystic fibrosis/prune belly syndrome!

    7 year old Conner had cystic fibrosis/prune belly syndrome! He lost his battle last night. I pray Blessings on his family and friends. <br />BREATHE EASY CONNER!!! <br />God bless you, you'll always be remembered !!! <br />Fly high and spread your wings and play like the little boy you couldn't...
  2. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Don't worry I'm not thinking that you would hold anything against me. If I knew that I had the b. cepacia that would be when I deserve some responsibility. But the fact is, that I did just find out literally just two weeks ago! I will definitely look up some of those recommendations. Thank you...
  3. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Don't worry I'm not thinking that you would hold anything against me. If I knew that I had the b. cepacia that would be when I deserve some responsibility. But the fact is, that I did just find out literally just two weeks ago! I will definitely look up some of those recommendations. Thank you...
  4. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Don't worry I'm not thinking that you would hold anything against me. If I knew that I had the b. cepacia that would be when I deserve some responsibility. But the fact is, that I did just find out literally just two weeks ago! I will definitely look up some of those recommendations. Thank you...
  5. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Don't worry I'm not thinking that you would hold anything against me. If I knew that I had the b. cepacia that would be when I deserve some responsibility. But the fact is, that I did just find out literally just two weeks ago! I will definitely look up some of those recommendations. Thank you...
  6. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Don't worry I'm not thinking that you would hold anything against me. If I knew that I had the b. cepacia that would be when I deserve some responsibility. But the fact is, that I did just find out literally just two weeks ago! I will definitely look up some of those recommendations. Thank you...
  7. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Lol. on moving to cali. I know how that goes. My father in law lives down there in Antioch. Talk about budget crisis! Anyway, it seems that you have a really good routine going for you. I did until I got more things piled on me. This is kind of what I am doing. Keep in mind that I do not have a...
  8. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Lol. on moving to cali. I know how that goes. My father in law lives down there in Antioch. Talk about budget crisis! Anyway, it seems that you have a really good routine going for you. I did until I got more things piled on me. This is kind of what I am doing. Keep in mind that I do not have a...
  9. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Lol. on moving to cali. I know how that goes. My father in law lives down there in Antioch. Talk about budget crisis! Anyway, it seems that you have a really good routine going for you. I did until I got more things piled on me. This is kind of what I am doing. Keep in mind that I do not have a...
  10. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Lol. on moving to cali. I know how that goes. My father in law lives down there in Antioch. Talk about budget crisis! Anyway, it seems that you have a really good routine going for you. I did until I got more things piled on me. This is kind of what I am doing. Keep in mind that I do not have a...
  11. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    Lol. on moving to cali. I know how that goes. My father in law lives down there in Antioch. Talk about budget crisis! Anyway, <br />it seems that you have a really good routine going for you. I did until I got more things piled on me. <br />This is kind of what I am doing. Keep in mind that I...
  12. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    You know, thats a good question. My travel to my clinic is about 4 and half hours too! I know its just insane! I have HMO insurance and unless it's like a severe emergency, no other state will accept my insurance. Although, My husband and I are talking about moving to either another state, or...
  13. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    You know, thats a good question. My travel to my clinic is about 4 and half hours too! I know its just insane! I have HMO insurance and unless it's like a severe emergency, no other state will accept my insurance. Although, My husband and I are talking about moving to either another state, or...
  14. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    You know, thats a good question. My travel to my clinic is about 4 and half hours too! I know its just insane! I have HMO insurance and unless it's like a severe emergency, no other state will accept my insurance. Although, My husband and I are talking about moving to either another state, or...
  15. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    You know, thats a good question. My travel to my clinic is about 4 and half hours too! I know its just insane! I have HMO insurance and unless it's like a severe emergency, no other state will accept my insurance. Although, My husband and I are talking about moving to either another state, or...
  16. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    You know, thats a good question. My travel to my clinic is about 4 and half hours too! I know its just insane! I have HMO insurance and unless it's like a severe emergency, no other state will accept my insurance. <br />Although, My husband and I are talking about moving to either another...
  17. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    I am based out of Oregon. We only have one clinic in our whole state. It is the Oregon Health Science University. This new information makes alot of sense to me. When I called to ask what strain I had, I also asked when I first cultered positive for it. The dr.s said 9-5-2000. So yes, I...
  18. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    I am based out of Oregon. We only have one clinic in our whole state. It is the Oregon Health Science University. This new information makes alot of sense to me. When I called to ask what strain I had, I also asked when I first cultered positive for it. The dr.s said 9-5-2000. So yes, I...
  19. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    I am based out of Oregon. We only have one clinic in our whole state. It is the Oregon Health Science University. This new information makes alot of sense to me. When I called to ask what strain I had, I also asked when I first cultered positive for it. The dr.s said 9-5-2000. So yes, I...
  20. S

    I was just diagnosed with B. Cepacia! What is B. Cepacia???

    I am based out of Oregon. We only have one clinic in our whole state. It is the Oregon Health Science University. This new information makes alot of sense to me. When I called to ask what strain I had, I also asked when I first cultered positive for it. The dr.s said 9-5-2000. So yes, I...
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