Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. H

    Asking People to Visit?

    Yeah I hear the boredom thing. I hate TV, so that isn't even an option for me most of the time. Sometimes you'll get a cool nurse or CNA that will sit down and chat for a bit. I usually take books and stuff and my laptop or iPad or both. Regarding isolation, what are you culturing that they...
  2. H

    Rehab frustration

    I think the water therapy is a good suggestion.
  3. H

    Asking People to Visit?

    Personally, when I am sick I like to be left alone. I rarely have visitors, except for really close friends and family and they typically only stay a short time (less than an hour).
  4. H

    CF related Sunburns? (Not caused by antibiotics)

    I have noticed increased sensitivity when on quinolones, but an SPF 15 is enough to prevent burns. I am almost full-blooded Irish and I tan quite well. Like Incomudrox, there is some native American in my family tree, but I am nowhere near 1/4, my grandmother is 1/4, though.
  5. H

    New vest without compressor?

    I have seen it and it looks interesting. I don't know anyone personally using it, though.
  6. H

    CFRD. Just checked two hrs after lunch is 164

    As Bill said, there is no reason to panic. 164mg/dl is a little higher than you would like to see, and her doctors will be able to use the glucose diary to figure out the best course of treatment for her. When I was on prednisone for ABPA, I had a BSG of over 500mg/dl. The highest I've ever...
  7. H

    Question about TOBI(tobramycin)

    In the US, we have premixed plastic ampules.
  8. H

    Doctor suggesting evaluation for transplant

    Also, keep in mind that they like to list early, as it can take years for a match to be found. I know people who have been listed and then gone "inactive" as they either stabilized or improved.
  9. H

    Pneumonia

    ^^ I agree
  10. H

    Pneumonia

    If there's an infiltrate on CXR, it's pneumonia. The big questions here are: What's the bacteria? What are they sensitive to? What antibiotics have been used already, for how long and in what route?
  11. H

    Question about TOBI(tobramycin)

    It's an ampule. Personally, I wouldn't risk trying to save the unused medication. The only thing you could do, would be to break the ampule and draw the entire contents into a sterile syringe. Refrigerate the syringe and then dose 20mg at a time. You risk contaminating the medication doing...
  12. H

    My aquagenic wrinkling factor test results.

    AWP= Aquagenic Wrinkling of Palms. I agree that it doesn't have much to do with sebaceous gland production. The problem, as Mark said, is the chloride ion transport and a hypertonic cellular environment. When exposed to a hypotonic solution, water follows the concentration gradient to...
  13. H

    Who cooks?

    mmm, I love me some curry.
  14. H

    My aquagenic wrinkling factor test results.

    Sadly, there was a miscommunication with my clinic and I don't have an appointment on the 18th. With that said, I emailed some photos of my own AWP test that I did today along with the list of supplements I am taking. I asked if there were any other scientific markers (such as nasal PD or...
  15. H

    CFRD, what are the early signs?

    <div class="FTQUOTE"><begin quote><em>Originally posted by: <strong>saveferris2009</strong></em>with 140+ causing bacteria to flourish</end quote> Can you point me to where you found this? I've looked at quite a few studies and can't find a hard number at which bacterial growth is accelerated...
  16. H

    CFRD, what are the early signs?

    I would ask your doc about a glucose tolerance test. Depending on the results, an endocrinologist consult might be helpful. Just make sure it's an endo who is familiar with CFRD.
  17. H

    My aquagenic wrinkling factor test results.

    Remarkable. I have a clinic appointment in a week and I am going to demonstrate this for them in real-time. It will be interesting to get their reaction.
  18. H

    Acid food and cold water

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>teacup</b></i> Havoc, I know about pH in body, but he really coughgs up (clean) blood and/or feel the blood in his lungs after eating somethin very acid... And the blood, he says, comes from his lungs. I know it really sounds strange...
  19. H

    Nocturnal

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>reginadpruitt</b></i> Have you ever been evaluated by a psychiatrist for bipolar disorder?</end quote> Yes, and he said that bipolar is a bit of a fad these days (much like ADHD was a decade ago). Given that there are 4 levels of...
  20. H

    One more night oxygen question

    There is also a product called Ayr. It's a water based gel which is great for moisturizing your nose. Any pharmacy should have this and you can use it until you can get a humidifier for your concentrator.
Top