Cystic Fibrosis Forum (EXP)

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  1. J

    Immunoglobulin Deficiency? Anyone have this or been tested for this?

    I don't have CF but had a period in my life where I went from one sickness to the next. I could never get on top of it despite every effort. Although I wasn't specifically tested for this disorder, my doctor gave me a series of Immunoglobulin injections which really turned things around for...
  2. J

    Immunoglobulin Deficiency? Anyone have this or been tested for this?

    I don't have CF but had a period in my life where I went from one sickness to the next. I could never get on top of it despite every effort. Although I wasn't specifically tested for this disorder, my doctor gave me a series of Immunoglobulin injections which really turned things around for...
  3. J

    Immunoglobulin Deficiency? Anyone have this or been tested for this?

    I don't have CF but had a period in my life where I went from one sickness to the next. I could never get on top of it despite every effort. Although I wasn't specifically tested for this disorder, my doctor gave me a series of Immunoglobulin injections which really turned things around for...
  4. J

    message of hope for you all from my son

    This is so exciting. I will be waiting with hopeful expectations for the results of the VX809/VX770 trials. Does anyone know if this trial has commenced and if so what stage it is up to. Here's holding high hopes for all the DDF508s out there.
  5. J

    message of hope for you all from my son

    This is so exciting. I will be waiting with hopeful expectations for the results of the VX809/VX770 trials. Does anyone know if this trial has commenced and if so what stage it is up to. Here's holding high hopes for all the DDF508s out there.
  6. J

    message of hope for you all from my son

    This is so exciting. I will be waiting with hopeful expectations for the results of the VX809/VX770 trials. Does anyone know if this trial has commenced and if so what stage it is up to. Here's holding high hopes for all the DDF508s out there.
  7. J

    ANOTHER CF CHILD AT MY DAUGHTER'S SCHOOL

    Seems this is not an uncommon dilemma despite being statistically improbable. We too have experienced this issue with a boy in the year above my daughter having CF. At first I did feel a bit panicked so I really empathize with you on this one. I think communication is the key here. I...
  8. J

    ANOTHER CF CHILD AT MY DAUGHTER'S SCHOOL

    Seems this is not an uncommon dilemma despite being statistically improbable. We too have experienced this issue with a boy in the year above my daughter having CF. At first I did feel a bit panicked so I really empathize with you on this one. I think communication is the key here. I...
  9. J

    ANOTHER CF CHILD AT MY DAUGHTER'S SCHOOL

    Seems this is not an uncommon dilemma despite being statistically improbable. We too have experienced this issue with a boy in the year above my daughter having CF. At first I did feel a bit panicked so I really empathize with you on this one. <br /> <br />I think communication is the key...
  10. J

    With an eating disorder.

    Hi Sara You are definitely not alone. There are other people out there with eating disorders and CF. My daughter was one of those people. I have been thinking about a reply to your post and want you to know this reply comes from a very non judgmental position as a mum who had to weather more...
  11. J

    With an eating disorder.

    Hi Sara You are definitely not alone. There are other people out there with eating disorders and CF. My daughter was one of those people. I have been thinking about a reply to your post and want you to know this reply comes from a very non judgmental position as a mum who had to weather more...
  12. J

    With an eating disorder.

    Hi Sara <br />You are definitely not alone. There are other people out there with eating disorders and CF. My daughter was one of those people. I have been thinking about a reply to your post and want you to know this reply comes from a very non judgmental position as a mum who had to weather...
  13. J

    Study - PTSD in parents of CF'ers

    This post has made me feel so much more "normal" for a cf mum. Its been sixteen years now since my daughter was born and I still have anxiety attacks with memories of the telephone call that came to inform me my baby had cf. I live with anxiety that makes each day a challenge, currently trying...
  14. J

    Study - PTSD in parents of CF'ers

    This post has made me feel so much more "normal" for a cf mum. Its been sixteen years now since my daughter was born and I still have anxiety attacks with memories of the telephone call that came to inform me my baby had cf. I live with anxiety that makes each day a challenge, currently trying...
  15. J

    Study - PTSD in parents of CF'ers

    This post has made me feel so much more "normal" for a cf mum. Its been sixteen years now since my daughter was born and I still have anxiety attacks with memories of the telephone call that came to inform me my baby had cf. I live with anxiety that makes each day a challenge, currently trying...
  16. J

    RIP Sweet Melissa ...

    Safe in the arms of Jesus.....heartfelt prayers to all Melissa's family and friends for peace and assurance at this very sad time.
  17. J

    RIP Sweet Melissa ...

    Safe in the arms of Jesus.....heartfelt prayers to all Melissa's family and friends for peace and assurance at this very sad time.
  18. J

    RIP Sweet Melissa ...

    Safe in the arms of Jesus.....heartfelt prayers to all Melissa's family and friends for peace and assurance at this very sad time.
  19. J

    RIP Sweet Melissa ...

    Safe in the arms of Jesus.....heartfelt prayers to all Melissa's family and friends for peace and assurance at this very sad time.
  20. J

    RIP Sweet Melissa ...

    Safe in the arms of Jesus.....heartfelt prayers to all Melissa's family and friends for peace and assurance at this very sad time.
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