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Holly had several sweat test....her lowest was a 10 & ambry found 2 mutations. She is CF positive. She was pancreatic sufficient when she was dx but now requires enzymes. She was tested at an accredited center where she is still seen. Although I think it's very rare to find a positive...
the first enzymes holly tried were ultrace or something along that line, can't really remember & they caused her cramping so we switched to pancrease & shes fine. she also had the fecal fat to determine if she was PS because when she was originally dx she was ps & now isn't.
the first enzymes holly tried were ultrace or something along that line, can't really remember & they caused her cramping so we switched to pancrease & shes fine. she also had the fecal fat to determine if she was PS because when she was originally dx she was ps & now isn't.
the first enzymes holly tried were ultrace or something along that line, can't really remember & they caused her cramping so we switched to pancrease & shes fine. she also had the fecal fat to determine if she was PS because when she was originally dx she was ps & now isn't.
the first enzymes holly tried were ultrace or something along that line, can't really remember & they caused her cramping so we switched to pancrease & shes fine. she also had the fecal fat to determine if she was PS because when she was originally dx she was ps & now isn't.
the first enzymes holly tried were ultrace or something along that line, can't really remember & they caused her cramping so we switched to pancrease & shes fine. she also had the fecal fat to determine if she was PS because when she was originally dx she was ps & now isn't.
i want to add a montage to holly's great strides page, how do you do this? our walk isn't until november but i already have friends donating & posting it on myspace for help in donating & i want it to be there!!
i want to add a montage to holly's great strides page, how do you do this? our walk isn't until november but i already have friends donating & posting it on myspace for help in donating & i want it to be there!!
i want to add a montage to holly's great strides page, how do you do this? our walk isn't until november but i already have friends donating & posting it on myspace for help in donating & i want it to be there!!
i want to add a montage to holly's great strides page, how do you do this? our walk isn't until november but i already have friends donating & posting it on myspace for help in donating & i want it to be there!!
i want to add a montage to holly's great strides page, how do you do this? our walk isn't until november but i already have friends donating & posting it on myspace for help in donating & i want it to be there!!
I like to think I am optimistic but realistically I don't think there will be a CURE in Holly's lifetime. Do I think that there will be treatment to manage it better...YES, do I think it's gonna get easier...YES but I still think that it might because something that there are only meds to...
I like to think I am optimistic but realistically I don't think there will be a CURE in Holly's lifetime. Do I think that there will be treatment to manage it better...YES, do I think it's gonna get easier...YES but I still think that it might because something that there are only meds to...
I like to think I am optimistic but realistically I don't think there will be a CURE in Holly's lifetime. Do I think that there will be treatment to manage it better...YES, do I think it's gonna get easier...YES but I still think that it might because something that there are only meds to...
I like to think I am optimistic but realistically I don't think there will be a CURE in Holly's lifetime. Do I think that there will be treatment to manage it better...YES, do I think it's gonna get easier...YES but I still think that it might because something that there are only meds to...
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