Cystic Fibrosis Forum (EXP)

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  1. C

    Having More Children

    Thanks so much for the advice Megan. It's a very hard decision, but my husband and I feel that $10,000 is nothing compared to the cost of a child with cf! Let me know how things go! Thanks,
  2. C

    Having More Children

    Hi! My husband and I are both carriers of the DF508 and currently have a 1 year old son with CF. Both my husband and I agree that this last year has been the best year of our life but also the scariest. We never know what tomorrow may bring. We have made a decision that we cannot handle...
  3. C

    Having More Children

    Hi! My husband and I are both carriers of the DF508 and currently have a 1 year old son with CF. Both my husband and I agree that this last year has been the best year of our life but also the scariest. We never know what tomorrow may bring. We have made a decision that we cannot handle...
  4. C

    Having More Children

    Hi! My husband and I are both carriers of the DF508 and currently have a 1 year old son with CF. Both my husband and I agree that this last year has been the best year of our life but also the scariest. We never know what tomorrow may bring. We have made a decision that we cannot handle...
  5. C

    Having More Children

    Hi! My husband and I are both carriers of the DF508 and currently have a 1 year old son with CF. Both my husband and I agree that this last year has been the best year of our life but also the scariest. We never know what tomorrow may bring. We have made a decision that we cannot handle...
  6. C

    Having More Children

    Hi! <br /> My husband and I are both carriers of the DF508 and currently have a 1 year old son with CF. Both my husband and I agree that this last year has been the best year of our life but also the scariest. We never know what tomorrow may bring. <br /> We have made a decision that we...
  7. C

    weight issues

    My son is in the same boat. He will be a year on Sunday and is under 19 pounds. Our nutritionist ordered us Nutren Junior which is made by nestle but is given as a prescription that has 250 cal per 8 oz and it's milk. I started giving 1 a day to my son and he doesn't love the taste right now...
  8. C

    weight issues

    My son is in the same boat. He will be a year on Sunday and is under 19 pounds. Our nutritionist ordered us Nutren Junior which is made by nestle but is given as a prescription that has 250 cal per 8 oz and it's milk. I started giving 1 a day to my son and he doesn't love the taste right now...
  9. C

    weight issues

    My son is in the same boat. He will be a year on Sunday and is under 19 pounds. Our nutritionist ordered us Nutren Junior which is made by nestle but is given as a prescription that has 250 cal per 8 oz and it's milk. I started giving 1 a day to my son and he doesn't love the taste right now...
  10. C

    weight issues

    My son is in the same boat. He will be a year on Sunday and is under 19 pounds. Our nutritionist ordered us Nutren Junior which is made by nestle but is given as a prescription that has 250 cal per 8 oz and it's milk. I started giving 1 a day to my son and he doesn't love the taste right now...
  11. C

    weight issues

    My son is in the same boat. He will be a year on Sunday and is under 19 pounds. Our nutritionist ordered us Nutren Junior which is made by nestle but is given as a prescription that has 250 cal per 8 oz and it's milk. I started giving 1 a day to my son and he doesn't love the taste right now...
  12. C

    Hyper-tonic saline question

    My son is 11 months old and we do the Hypertonic Saline 2x a day. He gets the full dose each time. I have noticed a huge difference with this and he only coughs when he seems to have mucus. He does this also while the vest is on him. I do not know much at all about the Polmozyme as our clinic...
  13. C

    Hyper-tonic saline question

    My son is 11 months old and we do the Hypertonic Saline 2x a day. He gets the full dose each time. I have noticed a huge difference with this and he only coughs when he seems to have mucus. He does this also while the vest is on him. I do not know much at all about the Polmozyme as our clinic...
  14. C

    Hyper-tonic saline question

    My son is 11 months old and we do the Hypertonic Saline 2x a day. He gets the full dose each time. I have noticed a huge difference with this and he only coughs when he seems to have mucus. He does this also while the vest is on him. I do not know much at all about the Polmozyme as our clinic...
  15. C

    Hyper-tonic saline question

    My son is 11 months old and we do the Hypertonic Saline 2x a day. He gets the full dose each time. I have noticed a huge difference with this and he only coughs when he seems to have mucus. He does this also while the vest is on him. I do not know much at all about the Polmozyme as our clinic...
  16. C

    Hyper-tonic saline question

    My son is 11 months old and we do the Hypertonic Saline 2x a day. He gets the full dose each time. I have noticed a huge difference with this and he only coughs when he seems to have mucus. He does this also while the vest is on him. I do not know much at all about the Polmozyme as our clinic...
  17. C

    MDI vs. Nebulizer

    Well our treatment schedule goes as follows; We begin with the albuterol through the neb for approx. 12 minutes. We then do the hypertonic saline through the neb and wait two minutes then turn on his vest. He then begins to fight us as he does not cough AT ALL with the hyper Sal but he just...
  18. C

    MDI vs. Nebulizer

    Well our treatment schedule goes as follows; We begin with the albuterol through the neb for approx. 12 minutes. We then do the hypertonic saline through the neb and wait two minutes then turn on his vest. He then begins to fight us as he does not cough AT ALL with the hyper Sal but he just...
  19. C

    MDI vs. Nebulizer

    Well our treatment schedule goes as follows; We begin with the albuterol through the neb for approx. 12 minutes. We then do the hypertonic saline through the neb and wait two minutes then turn on his vest. He then begins to fight us as he does not cough AT ALL with the hyper Sal but he just...
  20. C

    MDI vs. Nebulizer

    Well our treatment schedule goes as follows; We begin with the albuterol through the neb for approx. 12 minutes. We then do the hypertonic saline through the neb and wait two minutes then turn on his vest. He then begins to fight us as he does not cough AT ALL with the hyper Sal but he just...
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