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It was the best decision we ever made. We did wait to be better prepared financially. We had are first when I was 34 and the last at 37. They've certainly been a big reason for me taking good care of myself. I'll admit I had the same thoughts and concerns you've expressed. I had a lot of...

The technician always prints 2 copies, one for me and one for the doctor. I go over them with the doctor during the visit.

Welcome to the +50 club. Most people fret about hitting these age milestones. I'm just happy to keep knocking them off. You're blessed to have a wonderful family and friends for support. For me it makes all the difference.

I've seen a counselor for the past several years. i started seeing one to deal with life work balance issues. Lately I've dealt more with the chronic disease stuff including a fear of dying early and diminishing health. I've been fortunate enough to be able to work but now I worry that I won't...

Welsh Witch - I was diagnosed in 1964. I've been older than the median age for as long as I can remember. Some where in grade school i stumbled onto the median age #s. I was within years of passing it at the time. It was pretty scary. My Grandmother was great. She said that lots of people in...

Angelo - I'm one year younger than you. I too lost my brother to CF. Our severity level and experiences were very different. He died to earlt to have any genetic testing. I'm only speculating but maybe it's the other genes you get from your parents. Maybe we got the same CF gene's but I got...

You said his lung functions had dropped from 102% to 90%. Based on these numbers he could be very similar to me. I've always had good lung functions for a CF patient. He's at an age where the permanence of this disease really starts to set in. It's also the age when anyone starts to break...

I'm 51, made it thru college, worked my whole adult life, been married 25 yrs, have 2 teenage daughters. I don't think I've missed much in life. CF throws a curve ball every once in a while but that's life. Many of my friends are facing their own health issues too. As others have said, over...

Green poo, yes. Vivanex no. My brother and I also had to sleep in mist tents. They pumped salt spray into this plastic tent that covered our beds. The thing was so loud you could barely sleep anyways. The bed would be soaked in the morning and the salt destroyed everything. It was awful.

The PCIP state programs are transitioning to a federal program under the ACA. There is information on the site about what needs to be done to transition to the federal program. Hopefully this helps. http://www.pcip.gov

I have a close friend at work who is a physician. He suffers from depression. We were in a conversation about our various challenges once and he blurted out "life must be easy when you're suppose to be dead already." I could tell he instantly regretted the comment. I actually laughed very...

I will be 51 in a few months. I'm always fascinated by the stories of people who were diagnosed late in life. I think I would have been one if not for my very sick brother and determined mother. She knew somthing was up with me too. I give her a lot of credit since it was the dark ages for this...

My flutter works great when I'm traveling and its cheap.

The level of benefits provided by secondary insurance will depend on what your husbands employer has purchased. Each employer can buy different levels of coverage, so your co-pays or deductibles after Medicare could change. If they make him a job offer they should be able to provide a summary...

These strings make me sad. I've been married for 25yrs. We were sailing along. Me in good health, with a solid job, and two beautiful daughters. Then 5 years ago my wife was diagnosed with MS. Overnight things changed for us. In the past we worried only about my CF and eventual decline. We now...

I went a long time without insulin. I was able to regulate my diet and excercise well enough. Eventually my pancreas stopped producing enough insulin. It helps to be active because excercise burns carbs.

I'm 50 years old and lead a very happy and productive life despite CF. I’m older than many of my caregivers including my doctor at the CF center. I echo everyone’s comments here. The advances in treatments, drugs and the basic understanding of the disease have come so far since my parents...

I've struggled with my weight off and on through the years. I'm pancreatic insufficient and have CFRD too. Luckily my FEVs are always solid 90s or better. It wasn't until the last few years that my clinic even worried about or discussed my weight. I guess now that I'm 50 they may be worried...

I agree with Bill. I've been taking over the counter allergy medicine with the consent of my CF team for as long as I can remember.

My liver enzymes have been elevated for at least 20 years. I couldn't tolerate actigall so I'm not taking anything for it. Even though they've been elevated they stabilized and now we just watch it. I get a liver ultrasound every couple of years.