Cystic Fibrosis Forum (EXP)

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  1. H

    Hemoptysis

    Greetings, Frankly if it slows and stops on its own as fast as yours has been, I wouldn't even consider calling the hospital. What one needs to worry about is a high flow of blood.
  2. H

    Hemoptysis

    Greetings, Frankly if it slows and stops on its own as fast as yours has been, I wouldn't even consider calling the hospital. What one needs to worry about is a high flow of blood.
  3. H

    brown sputum

    Brown/black is likely aged blood. think of a scab and the color it looks like, then toss a little green in to the color mix... wow sounds like art class all over again!!
  4. H

    brown sputum

    Brown/black is likely aged blood. think of a scab and the color it looks like, then toss a little green in to the color mix... wow sounds like art class all over again!!
  5. H

    brown sputum

    Brown/black is likely aged blood. think of a scab and the color it looks like, then toss a little green in to the color mix... wow sounds like art class all over again!!
  6. H

    WHAT WOULD YOU DO~help!

    Aspergillous isn't uncommon to see in a CF patent's lungs. As long as it doesn't colonize nothing to worry about. The Pseudomonas won't let it colonize. As for keeping her at home more packing her up into the hospital that's a personal call, as a kid and even an adult it takes me 6-8 weeks to...
  7. H

    WHAT WOULD YOU DO~help!

    Aspergillous isn't uncommon to see in a CF patent's lungs. As long as it doesn't colonize nothing to worry about. The Pseudomonas won't let it colonize. As for keeping her at home more packing her up into the hospital that's a personal call, as a kid and even an adult it takes me 6-8 weeks to...
  8. H

    WHAT WOULD YOU DO~help!

    Aspergillous isn't uncommon to see in a CF patent's lungs. As long as it doesn't colonize nothing to worry about. The Pseudomonas won't let it colonize. As for keeping her at home more packing her up into the hospital that's a personal call, as a kid and even an adult it takes me 6-8 weeks to...
  9. H

    How long do enzymes last?

    This is a rough one, but 20 minuets before a meal is WAY to long. The idea of somebody getting your little one to go get meds a few minuets early isn't so bad. You could also consider after launch rather then before. Less then idea I know, the teacher Idea could work as well. Infact that may be...
  10. H

    How long do enzymes last?

    This is a rough one, but 20 minuets before a meal is WAY to long. The idea of somebody getting your little one to go get meds a few minuets early isn't so bad. You could also consider after launch rather then before. Less then idea I know, the teacher Idea could work as well. Infact that may be...
  11. H

    How long do enzymes last?

    This is a rough one, but 20 minuets before a meal is WAY to long. The idea of somebody getting your little one to go get meds a few minuets early isn't so bad. You could also consider after launch rather then before. Less then idea I know, the teacher Idea could work as well. Infact that may be...
  12. H

    I NEED YOUR INPUT PLEASE

    Sadly the Pseudomonas is likely to be around for the long hall. The doc's are likely looking at the tobi as a month on month off kinda of thing. they also may consider it a one shot deal. The matter of 3 rounds then off provided the lab work comes back looking peachy really is subjective. CF...
  13. H

    I NEED YOUR INPUT PLEASE

    Sadly the Pseudomonas is likely to be around for the long hall. The doc's are likely looking at the tobi as a month on month off kinda of thing. they also may consider it a one shot deal. The matter of 3 rounds then off provided the lab work comes back looking peachy really is subjective. CF...
  14. H

    I NEED YOUR INPUT PLEASE

    Sadly the Pseudomonas is likely to be around for the long hall. The doc's are likely looking at the tobi as a month on month off kinda of thing. they also may consider it a one shot deal. The matter of 3 rounds then off provided the lab work comes back looking peachy really is subjective. CF...
  15. H

    blood

    I will from time to time, mostly tho its with infection. The amount of blood your bringing up could be a concern. If it seems to be free flowing with out tapering off I would get into an ER. Other wise let your local clinic know in the morning. If your not sure, you might want to consult the...
  16. H

    blood

    I will from time to time, mostly tho its with infection. The amount of blood your bringing up could be a concern. If it seems to be free flowing with out tapering off I would get into an ER. Other wise let your local clinic know in the morning. If your not sure, you might want to consult the...
  17. H

    blood

    I will from time to time, mostly tho its with infection. The amount of blood your bringing up could be a concern. If it seems to be free flowing with out tapering off I would get into an ER. Other wise let your local clinic know in the morning. If your not sure, you might want to consult the...
  18. H

    New Hospital = dissapointment

    Sounds like you hit a streak of negligence, I would poke around the hospitals web-sight there should be means of voicing such problems to the management staff. I would also bring this up with your CF clinic. Also when admitted to a hospital the squeaky wheal thing is some what valid. An...
  19. H

    New Hospital = dissapointment

    Sounds like you hit a streak of negligence, I would poke around the hospitals web-sight there should be means of voicing such problems to the management staff. I would also bring this up with your CF clinic. Also when admitted to a hospital the squeaky wheal thing is some what valid. An...
  20. H

    New Hospital = dissapointment

    Sounds like you hit a streak of negligence, I would poke around the hospitals web-sight there should be means of voicing such problems to the management staff. I would also bring this up with your CF clinic. Also when admitted to a hospital the squeaky wheal thing is some what valid. <br />An...
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