Cystic Fibrosis Forum (EXP)

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  1. W

    CF has taken over my life!!!!!

    Try to find creative, unobtrusive ways of taking them. Carry a tiny pill box in your pocket. Get your parents to bribe you with an X-Box if you promise you'll do treatments while playing it. That kinda thing. Ultimately, it's for your own good, but that doesn't mean you can't benefit--from...
  2. W

    How to tell her

    Yeah, I told my girl--on AIM, as it happens, since she was 3000 miles away at the time--as soon as I realized what I felt for her was more than a grade-school crush. I had an easy catalyst for that decision; got hospitalized, and didn't want to make up a white lie about where I'd be going, like...
  3. W

    Can CF Kill

    People die from a lot of things. Yes, including CF. But you don't need to dwell on that unless you absolutely have to. Try to keep on top of it, and live as if every day was your last while maintaining reasonable plans for the future anyway.
  4. W

    Advice re: temperature/vomiting/feeling faint and no appetite

    I've felt the no appetite thing, and have had constant, recurring, unexplained low-grade fevers when I was otherwise feeling okay, and my lung-related stats were fine. Usually, it <i>was</i> an infection, albeit not one heavy enough to put me in the hospital. I'd suspect that first, but if you...
  5. W

    Stinging port

    Yeah, B. cepacia is a real meanie. It takes one heck of a round of antibiotics to put that sucker down, even temporarily. If you don't mind me asking, Jan, where's your husband listed for transplant? UNC? This is technically off-topic, so if you don't mind answering, you can email me at...
  6. W

    Stinging port

    That happens with mine, most of the time. Often, it'll give a drop or so back, but there's no guarantee. On rare occasions, it'll work enough to give a blood test. I'm on the same IV Tobramycin and Meropenem myself at the moment, and had to insist on an IV pump to inject the latter over an hour...
  7. W

    Having more children?

    <blockquote><hr><i>Originally posted by Jennifer</i> I think what you are failing to realize here is this; you suggest that becoming pregnant knowing that you have a %25 chance of having a baby with an illness is wrong and reckless even thought the odds are %75 chance the baby will not have CF...
  8. W

    i just wanted to know???

    Thinking. Loving. Reminiscing. Considering what the future might hold, for myself, people I value, and humanity at large. Writing poems, and reading those by the greats. <i>"IS life worth living? Yes, so long As there is wrong to right, Wail of the weak against the strong, Or tyranny to fight...
  9. W

    Having more children?

    <blockquote>Quote <hr><i>Originally posted by: <b>Anonymous</b></i> WinAce I really feel sorry for you and you're hardened heart.<hr></blockquote> Relax, the echocardiogram was quite normal. But thanks for the concern! Julie, <i>I'm</i> not the one potentially contributing to more people with...
  10. W

    Wanting to be Pregnant, Just for the Sake of Being Pregnant?

    <blockquote>Quote <hr>Pregnancy and birth are our last best hope that our bodies will do SOMETHING right.<hr></blockquote> Your bodies <i>are</i> doing something right. With any luck, being caring, sensitive, wonderful human beings whose existence would be unquestionably worthwhile, regardless...
  11. W

    Having more children?

    <i>"The risk of having a child with Down syndrome is 1/1,300 for a 25-year-old woman; at age 35, the risk increases to 1/365. At age 45, the risk of a having a child with Down syndrome increases to 1/30."</i> (<a href="http://www.aafp.org/afp/20000815/825.html">Down Syndrome: Prenatal Risk...
  12. W

    Having more children?

    Relax, I've not been offended by <i>far</i> worse. I don't expect to change your mind. As I said, if something I write eventually contributes to one more needy child being adopted, or a healthy child being born and enjoying life to the fullest, <i>rather</i> than some parents taking reckless...
  13. W

    Having more children?

    <blockquote>Quote <hr><i>Originally posted by: <b>Anonymous</b></i> WinAce, are you aware that there is a 3-4% chance of EVERY pregnancy resulting in some sort of defect?<hr></blockquote> And did you know that "some" sort of defect--at a prevalence of 3-4%--is quite a bit less morally...
  14. W

    Cf and religion

    So, basically, you're: * Appealing to popularity--lots of people believe it, so it's more likely to be true; * Appealing to authority--lots of philosophers and teachers and other smart people believe(d) it, so it's more likely to be true; * Arguing that we should be careful to draw conclusions...
  15. W

    Having more children?

    Once again: <b>(1)</b> Yes, people do have a right to say you're being reckless if you intentionally have a child knowing, in advance, that it'll come down with a (likely fatal) illness and (if not) something that will haunt them for as long as they live, adding an inordinate amount of issues...
  16. W

    Cf and religion

    Skepticism is merely the opposite of gullibility, an unwillingness to give a blank check of credibility to any claim just because it's made, or because others believe it. Any other connotations you associate with it are your own, and--given things like <a...
  17. W

    How to tell her

    In my opinion, you do NOT want to wait any longer. If you're looking to start any kind of serious relationship with her, she deserves to know right now. It's likely this illness <i>will</i> affect your life in a huge number of ways in the future, so give her a chance to mull over those risks...
  18. W

    Cf and religion

    <blockquote>Quote <hr><i>Originally posted by: <b>Purplelungs</b></i> I like this saying: "I would rather live like there is a God and die to find out there isnt, than to live like there is no God and die to find out there is."<hr></blockquote> Surely you'd know better than to like <a...
  19. W

    Cf and religion

    Mockingbird, We've learned a lot since the centuries past, when religious answers (and I use the term loosely) actually seemed credible. We didn't know much about the world back then, and even less so about why hexes can <i>seem</i> to work, dreams can <i>seem</i> prophetic, prayers can...
  20. W

    Cf and religion

    While that message got truncated, here's the rest of my post: For reasonable, unbiased information about agnosticism (and other flavors of non-theism) check out <a href="http://www.infidels.org/index.shtml">The Secular Web</a>. One piece of advice, stay away from anything related to American...
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