Cystic Fibrosis Forum (EXP)

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  1. M

    Cayston

    you could do germ guardian which then you have that AND the sterilizer out--what a pita. Or I have been dipping them in a bowl of alcohol and then I have a ceiling fan in teh kitchen so it dries out in plenty of time.
  2. M

    Blood donation

    I assure you that you can't, despite being a genetic disease you will not be allowed, I have a permanent rejection letter that is called something else to prove it. We have blood drives at my work all the time and I went to donate only to find out I couldnt which I actually was very embaressed...
  3. M

    Blood donation

    I assure you that you can't, despite being a genetic disease you will not be allowed, I have a permanent rejection letter that is called something else to prove it. We have blood drives at my work all the time and I went to donate only to find out I couldnt which I actually was very embaressed...
  4. M

    Blood donation

    I assure you that you can't, despite being a genetic disease you will not be allowed, I have a permanent rejection letter that is called something else to prove it. <br /> <br />We have blood drives at my work all the time and I went to donate only to find out I couldnt which I actually was...
  5. M

    Contamination from Nebulizers?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>aljrbella</b></i> Ok, I have been reading alot about nebulizer contamination studies for those with asthma and COPD. So, I am wondering.... My son does not have any symptoms yet. And, chest xrays are normal. But he has been...
  6. M

    Contamination from Nebulizers?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>aljrbella</b></i> Ok, I have been reading alot about nebulizer contamination studies for those with asthma and COPD. So, I am wondering.... My son does not have any symptoms yet. And, chest xrays are normal. But he has been...
  7. M

    Contamination from Nebulizers?

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>aljrbella</b></i> <br /> <br />Ok, I have been reading alot about nebulizer contamination studies for those with asthma and COPD. So, I am wondering.... <br /> <br />My son does not have any symptoms yet. And, chest xrays are...
  8. M

    Contamination from Nebulizers?

    my instinct is to get a doctor that you trust and then either listen to their advice or provide them with rational for your concern and discuss it. You shouldnt ever make decisions for your helath care (let alone your childs) on a whim for something you think may correlate. please provide the...
  9. M

    Contamination from Nebulizers?

    my instinct is to get a doctor that you trust and then either listen to their advice or provide them with rational for your concern and discuss it. You shouldnt ever make decisions for your helath care (let alone your childs) on a whim for something you think may correlate. please provide the...
  10. M

    Contamination from Nebulizers?

    my instinct is to get a doctor that you trust and then either listen to their advice or provide them with rational for your concern and discuss it. You shouldnt ever make decisions for your helath care (let alone your childs) on a whim for something you think may correlate. <br /> <br />please...
  11. M

    Cayston

    yes you have to clean it each time and you are supposed to sterilize it at teh end of the day. I have two so I have been using one in the morning, washing, soaking in alcohol, air drying, then using 2nd one at lunch doing same wash process on that one, then by night time the first one is dry. I...
  12. M

    Cayston

    yes you have to clean it each time and you are supposed to sterilize it at teh end of the day. I have two so I have been using one in the morning, washing, soaking in alcohol, air drying, then using 2nd one at lunch doing same wash process on that one, then by night time the first one is dry. I...
  13. M

    Cayston

    yes you have to clean it each time and you are supposed to sterilize it at teh end of the day. I have two so I have been using one in the morning, washing, soaking in alcohol, air drying, then using 2nd one at lunch doing same wash process on that one, then by night time the first one is dry. I...
  14. M

    Question about Aspergillus/ABPA

    I have severe allergies, postiive reaction to everything tested for, ABPA, and candida overgrowth syndrome, all whcih cause issues such as you described. You can go to my blog and search for candida and ABPA and let me know if you have any questions. If you have aspergillus in culture they...
  15. M

    Question about Aspergillus/ABPA

    I have severe allergies, postiive reaction to everything tested for, ABPA, and candida overgrowth syndrome, all whcih cause issues such as you described. You can go to my blog and search for candida and ABPA and let me know if you have any questions. If you have aspergillus in culture they...
  16. M

    Question about Aspergillus/ABPA

    I have severe allergies, postiive reaction to everything tested for, ABPA, and candida overgrowth syndrome, all whcih cause issues such as you described. You can go to my blog and search for candida and ABPA and let me know if you have any questions. If you have aspergillus in culture they...
  17. M

    Cayston

    Bethy - you may want to consider alternating TOBI with colistin, I recently switched off of TOBI to colistin and was having much better results now I am trying cayston. I dont have plans to regularly alternate but if I did it wout by colistin. Day 3 of cayston here, too early to say anything...
  18. M

    Cayston

    Bethy - you may want to consider alternating TOBI with colistin, I recently switched off of TOBI to colistin and was having much better results now I am trying cayston. I dont have plans to regularly alternate but if I did it wout by colistin. Day 3 of cayston here, too early to say anything...
  19. M

    Cayston

    Bethy - you may want to consider alternating TOBI with colistin, I recently switched off of TOBI to colistin and was having much better results now I am trying cayston. I dont have plans to regularly alternate but if I did it wout by colistin. <br /> <br />Day 3 of cayston here, too early to...
  20. M

    Late diagnosis - Pseudomonas colonization

    well I can put a dent against your theory, I was diagnosed at 21 culturing pseudomonas from the get go.
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