Cystic Fibrosis Forum (EXP)

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  1. N

    Lilly in the hospital

    I haven't been on in quite a while but I needed some support. Our 12 week old daughter Lilly has been hospitalized because of an exacerbation of her CF. WE're at Children's in Minneapolis MN. They found today among a couple others Pseudomonas Aeruginosa in her lungs. She also has ecoli, a...
  2. N

    Lilly in the hospital

    I haven't been on in quite a while but I needed some support. Our 12 week old daughter Lilly has been hospitalized because of an exacerbation of her CF. WE're at Children's in Minneapolis MN. They found today among a couple others Pseudomonas Aeruginosa in her lungs. She also has ecoli, a...
  3. N

    Lilly in the hospital

    I haven't been on in quite a while but I needed some support. Our 12 week old daughter Lilly has been hospitalized because of an exacerbation of her CF. WE're at Children's in Minneapolis MN. They found today among a couple others Pseudomonas Aeruginosa in her lungs. She also has ecoli, a...
  4. N

    Lilly in the hospital

    I haven't been on in quite a while but I needed some support. Our 12 week old daughter Lilly has been hospitalized because of an exacerbation of her CF. WE're at Children's in Minneapolis MN. They found today among a couple others Pseudomonas Aeruginosa in her lungs. She also has ecoli, a...
  5. N

    Lilly in the hospital

    I haven't been on in quite a while but I needed some support. Our 12 week old daughter Lilly has been hospitalized because of an exacerbation of her CF. WE're at Children's in Minneapolis MN. They found today among a couple others Pseudomonas Aeruginosa in her lungs. She also has ecoli, a...
  6. N

    Question...

    Okay, but then how do you keep yourselves safe and protected when going to CF clinics? I know you can't put yourself or your children in a plastic bubble, but what kind of measures and precautions do the clinics take to control the environment; and what do you yourselves do to limit contamination?
  7. N

    Question...

    Okay, but then how do you keep yourselves safe and protected when going to CF clinics? I know you can't put yourself or your children in a plastic bubble, but what kind of measures and precautions do the clinics take to control the environment; and what do you yourselves do to limit contamination?
  8. N

    Question...

    Okay, but then how do you keep yourselves safe and protected when going to CF clinics? I know you can't put yourself or your children in a plastic bubble, but what kind of measures and precautions do the clinics take to control the environment; and what do you yourselves do to limit contamination?
  9. N

    Question...

    Okay, but then how do you keep yourselves safe and protected when going to CF clinics? I know you can't put yourself or your children in a plastic bubble, but what kind of measures and precautions do the clinics take to control the environment; and what do you yourselves do to limit contamination?
  10. N

    Question...

    Okay, but then how do you keep yourselves safe and protected when going to CF clinics? I know you can't put yourself or your children in a plastic bubble, but what kind of measures and precautions do the clinics take to control the environment; and what do you yourselves do to limit contamination?
  11. N

    Question...

    Why can't CF ers meet other CF ers?
  12. N

    Question...

    Why can't CF ers meet other CF ers?
  13. N

    Question...

    Why can't CF ers meet other CF ers?
  14. N

    Question...

    Why can't CF ers meet other CF ers?
  15. N

    Question...

    Why can't CF ers meet other CF ers?
  16. N

    I'm desperate for hope

    Okay so I posted yesterday about my newborn baby girl being diagnosed with cf and her mutations are DeltaF508 and R117H. I understand that overall no one can be sure about how severe her case will be based on genes alone, but everywhere I have read the R117H mutation has been said to be less...
  17. N

    I'm desperate for hope

    Okay so I posted yesterday about my newborn baby girl being diagnosed with cf and her mutations are DeltaF508 and R117H. I understand that overall no one can be sure about how severe her case will be based on genes alone, but everywhere I have read the R117H mutation has been said to be less...
  18. N

    I'm desperate for hope

    Okay so I posted yesterday about my newborn baby girl being diagnosed with cf and her mutations are DeltaF508 and R117H. I understand that overall no one can be sure about how severe her case will be based on genes alone, but everywhere I have read the R117H mutation has been said to be less...
  19. N

    I'm desperate for hope

    Okay so I posted yesterday about my newborn baby girl being diagnosed with cf and her mutations are DeltaF508 and R117H. I understand that overall no one can be sure about how severe her case will be based on genes alone, but everywhere I have read the R117H mutation has been said to be less...
  20. N

    I'm desperate for hope

    Okay so I posted yesterday about my newborn baby girl being diagnosed with cf and her mutations are DeltaF508 and R117H. I understand that overall no one can be sure about how severe her case will be based on genes alone, but everywhere I have read the R117H mutation has been said to be less...
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