Cystic Fibrosis Forum (EXP)

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  1. N

    Newborn diagnosed with CF

    Thank you so much for the love and support. It's barely been 24 hours since we found out so it hasnt quite sunk in yet. I guess I just don't know what to think. I want my children to well outlive me. I'm just wishing for the best on monday at the appt. Thanks again, Laura
  2. N

    Newborn diagnosed with CF

    Thank you so much for the love and support. It's barely been 24 hours since we found out so it hasnt quite sunk in yet. I guess I just don't know what to think. I want my children to well outlive me. I'm just wishing for the best on monday at the appt. Thanks again, Laura
  3. N

    Newborn diagnosed with CF

    Thank you so much for the love and support. It's barely been 24 hours since we found out so it hasnt quite sunk in yet. I guess I just don't know what to think. I want my children to well outlive me. I'm just wishing for the best on monday at the appt. Thanks again, Laura
  4. N

    Newborn diagnosed with CF

    Thank you so much for the love and support. It's barely been 24 hours since we found out so it hasnt quite sunk in yet. I guess I just don't know what to think. I want my children to well outlive me. I'm just wishing for the best on monday at the appt. Thanks again, Laura
  5. N

    Newborn diagnosed with CF

    Thank you so much for the love and support. It's barely been 24 hours since we found out so it hasnt quite sunk in yet. I guess I just don't know what to think. I want my children to well outlive me. I'm just wishing for the best on monday at the appt. Thanks again, Laura
  6. N

    Newborn diagnosed with CF

    My newborn baby girl has been diagnosed with cf. It was found in her newborn screening. We go to the children's hospital on Monday to do a sweat test, meet with ENT and see a pulmonary specialist. Her mutations are <b>DeltaF508</b> and <b>R117H</b>. Soes anyone have these mutations or...
  7. N

    Newborn diagnosed with CF

    My newborn baby girl has been diagnosed with cf. It was found in her newborn screening. We go to the children's hospital on Monday to do a sweat test, meet with ENT and see a pulmonary specialist. Her mutations are <b>DeltaF508</b> and <b>R117H</b>. Soes anyone have these mutations or...
  8. N

    Newborn diagnosed with CF

    My newborn baby girl has been diagnosed with cf. It was found in her newborn screening. We go to the children's hospital on Monday to do a sweat test, meet with ENT and see a pulmonary specialist. Her mutations are <b>DeltaF508</b> and <b>R117H</b>. Soes anyone have these mutations or...
  9. N

    Newborn diagnosed with CF

    My newborn baby girl has been diagnosed with cf. It was found in her newborn screening. We go to the children's hospital on Monday to do a sweat test, meet with ENT and see a pulmonary specialist. Her mutations are <b>DeltaF508</b> and <b>R117H</b>. Soes anyone have these mutations or...
  10. N

    Newborn diagnosed with CF

    My newborn baby girl has been diagnosed with cf. It was found in her newborn screening. We go to the children's hospital on Monday to do a sweat test, meet with ENT and see a pulmonary specialist. Her mutations are <b>DeltaF508</b> and <b>R117H</b>. Soes anyone have these mutations or...
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