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She could be getting sick of the formula. Is your daughter on special formula for CF? I don't know what routine is for babies as my son is 6 and they are just now looking into CF, however, he had to do nutritional supplements as a baby due to Failure to thrive. My yongest child had the formula...

All kids go through it. My 6 year old currently eats 1 meal a day and want snacks about an hour after meal time. Because he has not been gaining weight as a "normal" child his age should and is currently going under a lot of testing to find out if he has CF the Dr. said "feed him what he will...

attaching a photo let me go step by steps. I will have to attach a photo myself to explain it step by step. 1. click on attach file 2. click browse on the top of next screen 3. select the photo you want to attach 4. double click on the photo (it will now have it in the box to the left of the...

I read this and had to say I know the feeling. Watching a child grow is a wonderous event that we get to appreciate in life. As for attaching a photo let me go through the steps. I will have to attach a photo myself to explain it step by step. 1. click on attach file 2. click browse on the top...

So I have heard reference to a "minor" mutation (I use the term loosely); is there such a thing? Do all mutations of CF end with the same result? Or do "minor" CFers live longer then other CFers? I don't understand this. The doctors say our son may have a "minor" mutation and that is why it has...

<div class="FTQUOTE"><begin quote>I feel for you! It took 4 years of searching for a doc that would listen to me to finally get Courtney diagnosed. Once we got a doc to listen it took about 2 months to finally get the diagnoses. Courtney was 10 years old when we finally found out she had CF...

you can copy and paste this in your browser to view. I created this today so I can keep my family and friends up to date on my son. It is a great alternative to tons of emails. If you want to check it out please sign Maxwell's guest book. It makes him feel important! It is also a way for those...

I want to start off my response by asking a question. <div class="FTQUOTE"><begin quote>My daughter was diagnosed at the age of 11 (4yrs. ago) and my husband's family is very familiar with cf and my side was/is not. </end quote></div> How do they not catch it till this late? I am currently...

I remember those days. What a beautifil boy! Candace-waiting for an answer

Yet another appointment new Dr. different recommendations. Maxwell was seen by an ENT sleep therapist today. He has a sleep therapy evaluation on the 26th of June. This Dr. flat out said I do not know a lot about treating CF, but I have been trained to spot signs and the Allergist is on the...

I have to say as a mother of 4 that the gift of loving the child is the best of all. I had complications with 3 of the four pregnancies. Maxwell our child in question possible CF was my only "normal" pregnancy and the largest, and healthiest of his 3 siblings. He was the only one that <b>did...

<div class="FTQUOTE"><begin quote>So if he was black or hispanic....chances are good the test would have been denied since the chances of him having it would be less? What a crock?! </end quote></div> Well the statistics show that it is less likely in other races and yes I agree it is a crock...

One thing I was told by Alyssa (see her blog) was make sure you get the numbers of the SWCL test. As for the symtoms follow you instinct. Research what the Dr. is looking into... Know your stuff! webmd and the Cystic Fibrosis Foundation are great places for info... I don't know a whole lot...

I have been wondering... For the past month (since we 1st saw the allergy specialist) Maxwell has been doing "sinus flushes" 2 times a day. We have noticed that one sinus has about 1/2 clearance (the other is still blocked). However, it sounds like the build up has relocated. He has been...

After leaving several messages with the Dr. speaking with the Dr. at Denver Children's Hospital, the hospital that ran the test (PVH), & the CFF Denver chapter we have concluded that the 49 chloride along with a medical history of Failure-to-Thrive (infant), Hyperthyroid (infant), anemia...

We have finally got the results back. Our 3rd child had a 49; borderline. Now I am fighting because the hospital that ran the test says that CFF lists 25-60 as normal and 60-80 high.. No in between. However, CFF says 0-40 normal; 40-60 borderline/grey are; above 60 abnormal/definate. Now with...

I was born with a tooth that had no enamal. My daughter now 8 had 4 baby teeth (top front) that were the same. We had not been on meds at all. My teeth are now fine with the exception of one molar that never had a perminate root (still baby tooth) and the ones that she has lost have came in...

It has been 24 hours since the sweat chloride test was finished.. The dr. was supposed to have the results within the hour. I have called twice and gotten no response. My mother says no news is good news, but is it really. I envy everyone that knows what they are dealing with and are able to...

My son Maxwell (5) has a scheduled sweat chloride test on Monday (the day before he turns 6). I am concerned for many reasons. The doctor ordering the test has also tested Max for IgG deficiencies, they came back clear. Maxwell has had recurrent sinusitus since birth, along with Failure to...