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Im really excited for the drug, can't wait for Ataluren to be out to the public. Ive already told my doc that when it comes out, that I want to be on that drug. I will be very persistant when that time comes to get my hands on it. Both of my mutations are G542X. And good luck on the trial...

Im really excited for the drug, can't wait for Ataluren to be out to the public. Ive already told my doc that when it comes out, that I want to be on that drug. I will be very persistant when that time comes to get my hands on it. <br /> <br />Both of my mutations are G542X. <br /> <br />And...

You've heard the term, "My food went down the wrong pipe". Well, everyone does it sometime in there life, maybe once a year or two, but do any of you do this constantly? It seems like I have been lately, and it hurts going down, sometimes it doesnt and I have to puke the little bit out that...

You've heard the term, "My food went down the wrong pipe". Well, everyone does it sometime in there life, maybe once a year or two, but do any of you do this constantly? It seems like I have been lately, and it hurts going down, sometimes it doesnt and I have to puke the little bit out that...

You've heard the term, "My food went down the wrong pipe". Well, everyone does it sometime in there life, maybe once a year or two, but do any of you do this constantly? <br /> <br />It seems like I have been lately, and it hurts going down, sometimes it doesnt and I have to puke the little bit...

I didnt know that they made travel vests!?! Is there a link someone could give me to see it? How much smaller is the vest compared to the bigger ones?

I didnt know that they made travel vests!?! Is there a link someone could give me to see it? How much smaller is the vest compared to the bigger ones?

I didnt know that they made travel vests!?! Is there a link someone could give me to see it? How much smaller is the vest compared to the bigger ones?

I didnt know that they made travel vests!?! Is there a link someone could give me to see it? How much smaller is the vest compared to the bigger ones?

I didnt know that they made travel vests!?! Is there a link someone could give me to see it? How much smaller is the vest compared to the bigger ones?

She has a new post and also bumping.

She has a new post and also bumping.

She has a new post and also bumping.

She has a new post and also bumping.

She has a new post and also bumping.

I have also been following Eva's blog as well and she is an inspiration to us all! I hope and pray that she gets her NEW lungs soon! Love and prayers to Eva and her family.

I have also been following Eva's blog as well and she is an inspiration to us all! I hope and pray that she gets her NEW lungs soon! Love and prayers to Eva and her family.

I have also been following Eva's blog as well and she is an inspiration to us all! I hope and pray that she gets her NEW lungs soon! Love and prayers to Eva and her family.

I have also been following Eva's blog as well and she is an inspiration to us all! I hope and pray that she gets her NEW lungs soon! Love and prayers to Eva and her family.

I have also been following Eva's blog as well and she is an inspiration to us all! I hope and pray that she gets her NEW lungs soon! Love and prayers to Eva and her family.