Cystic Fibrosis Forum (EXP)

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  1. M

    Testing questions

    Well, I finally got our doctor to do some CF testing. apparently the test, tested for 36 mutations. Well, all of her other labs are coming back "normal" including celiac (what she thought was probably it). Her pre-albumin was low and her pancreatic function? was "low normal" which she says she...
  2. M

    Testing questions

    Well, I finally got our doctor to do some CF testing. apparently the test, tested for 36 mutations. Well, all of her other labs are coming back "normal" including celiac (what she thought was probably it). Her pre-albumin was low and her pancreatic function? was "low normal" which she says she...
  3. M

    Has anyone had silent aspiration?

    My daughter has had a g-tube since she was about 8 months old, she's now 2. They normally start with something called a peg tube, it's long and kinda annoyingf. Then they move onto something called a mickey button, it's pretty small and the most common 9there are other types of button and we...
  4. M

    Has anyone had silent aspiration?

    My daughter has had a g-tube since she was about 8 months old, she's now 2. They normally start with something called a peg tube, it's long and kinda annoyingf. Then they move onto something called a mickey button, it's pretty small and the most common 9there are other types of button and we...
  5. M

    Has anyone had silent aspiration?

    My daughter has had a g-tube since she was about 8 months old, she's now 2. They normally start with something called a peg tube, it's long and kinda annoyingf. Then they move onto something called a mickey button, it's pretty small and the most common 9there are other types of button and we...
  6. M

    Has anyone had silent aspiration?

    My daughter has had a g-tube since she was about 8 months old, she's now 2. They normally start with something called a peg tube, it's long and kinda annoyingf. Then they move onto something called a mickey button, it's pretty small and the most common 9there are other types of button and we...
  7. M

    Has anyone had silent aspiration?

    My daughter has had a g-tube since she was about 8 months old, she's now 2. They normally start with something called a peg tube, it's long and kinda annoyingf. Then they move onto something called a mickey button, it's pretty small and the most common 9there are other types of button and we...
  8. M

    Asking for testing... UPDATE in first post

    Small update: It was time for a "well baby visit" for all 3 of my kids. My son has had a chronic cough off and one since he was little. Albuterol helps, but isn't a cure all. They have said it could be asthma. Well, he's 5 now and has not gained ANY weight since he was 3 1/2. So he's gone...
  9. M

    Asking for testing... UPDATE in first post

    Small update: It was time for a "well baby visit" for all 3 of my kids. My son has had a chronic cough off and one since he was little. Albuterol helps, but isn't a cure all. They have said it could be asthma. Well, he's 5 now and has not gained ANY weight since he was 3 1/2. So he's gone...
  10. M

    Asking for testing... UPDATE in first post

    Small update: It was time for a "well baby visit" for all 3 of my kids. My son has had a chronic cough off and one since he was little. Albuterol helps, but isn't a cure all. They have said it could be asthma. Well, he's 5 now and has not gained ANY weight since he was 3 1/2. So he's gone...
  11. M

    Asking for testing... UPDATE in first post

    Small update: It was time for a "well baby visit" for all 3 of my kids. My son has had a chronic cough off and one since he was little. Albuterol helps, but isn't a cure all. They have said it could be asthma. Well, he's 5 now and has not gained ANY weight since he was 3 1/2. So he's gone...
  12. M

    Asking for testing... UPDATE in first post

    Small update: <br /> <br />It was time for a "well baby visit" for all 3 of my kids. My son has had a chronic cough off and one since he was little. Albuterol helps, but isn't a cure all. They have said it could be asthma. Well, he's 5 now and has not gained ANY weight since he was 3 1/2. So...
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