Cystic Fibrosis Forum (EXP)

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  1. B

    Compressor issue or neb cups??

    Ours has broken down 3 times in the past 2 months and I have had Pari overnight a new one to me each time with a return label for the old one. I then put the old one in the box and sent it back via UPS. The second time it broke customer service at PARI said that it would take a week or so...
  2. B

    Compressor issue or neb cups??

    Ours has broken down 3 times in the past 2 months and I have had Pari overnight a new one to me each time with a return label for the old one. I then put the old one in the box and sent it back via UPS. The second time it broke customer service at PARI said that it would take a week or so...
  3. B

    Compressor issue or neb cups??

    Ours has broken down 3 times in the past 2 months and I have had Pari overnight a new one to me each time with a return label for the old one. I then put the old one in the box and sent it back via UPS. <br /> <br />The second time it broke customer service at PARI said that it would take a...
  4. B

    Anyone in Orange County, California?

    We are very new to all of this, but I am need of advice on clinics. I am becoming more and more unhappy with the care my son is receiving at his current clinic - CHOC. The doctor we see is good, when we get to see her and she has been pro-active in her advice. We usually see the nurses and...
  5. B

    Anyone in Orange County, California?

    We are very new to all of this, but I am need of advice on clinics. I am becoming more and more unhappy with the care my son is receiving at his current clinic - CHOC. The doctor we see is good, when we get to see her and she has been pro-active in her advice. We usually see the nurses and...
  6. B

    Anyone in Orange County, California?

    We are very new to all of this, but I am need of advice on clinics. I am becoming more and more unhappy with the care my son is receiving at his current clinic - CHOC. The doctor we see is good, when we get to see her and she has been pro-active in her advice. We usually see the nurses and...
  7. B

    Anyone in Orange County, California?

    We are very new to all of this, but I am need of advice on clinics. I am becoming more and more unhappy with the care my son is receiving at his current clinic - CHOC. The doctor we see is good, when we get to see her and she has been pro-active in her advice. We usually see the nurses and...
  8. B

    Anyone in Orange County, California?

    We are very new to all of this, but I am need of advice on clinics. I am becoming more and more unhappy with the care my son is receiving at his current clinic - CHOC. The doctor we see is good, when we get to see her and she has been pro-active in her advice. We usually see the nurses and...
  9. B

    Infant Coughs

    Hi - like the others have said, it could be reflux issues. We had a similar situation with our little boy when he was 5 months old, and finally the clinic took me seriously and put him on Reglen and Prevacid and things have improved with the reflux symptons. Tom's lungs also sounded clear...
  10. B

    Infant Coughs

    Hi - like the others have said, it could be reflux issues. We had a similar situation with our little boy when he was 5 months old, and finally the clinic took me seriously and put him on Reglen and Prevacid and things have improved with the reflux symptons. Tom's lungs also sounded clear...
  11. B

    Infant Coughs

    Hi - like the others have said, it could be reflux issues. We had a similar situation with our little boy when he was 5 months old, and finally the clinic took me seriously and put him on Reglen and Prevacid and things have improved with the reflux symptons. Tom's lungs also sounded clear...
  12. B

    Infant Coughs

    Hi - like the others have said, it could be reflux issues. We had a similar situation with our little boy when he was 5 months old, and finally the clinic took me seriously and put him on Reglen and Prevacid and things have improved with the reflux symptons. Tom's lungs also sounded clear...
  13. B

    Infant Coughs

    Hi - like the others have said, it could be reflux issues. We had a similar situation with our little boy when he was 5 months old, and finally the clinic took me seriously and put him on Reglen and Prevacid and things have improved with the reflux symptons. <br /> <br />Tom's lungs also...
  14. B

    New Enzymes

    Sarah, my little boy has had changes since switching to the new formula of creon as well, so I think you may be be on to something! He was averaging 1 -2 b/m a day, now he is anywhere between 6-9 per day. My clinic dietician says that he is having enough creon for what he is eating, so they...
  15. B

    New Enzymes

    Sarah, my little boy has had changes since switching to the new formula of creon as well, so I think you may be be on to something! He was averaging 1 -2 b/m a day, now he is anywhere between 6-9 per day. My clinic dietician says that he is having enough creon for what he is eating, so they...
  16. B

    New Enzymes

    Sarah, my little boy has had changes since switching to the new formula of creon as well, so I think you may be be on to something! He was averaging 1 -2 b/m a day, now he is anywhere between 6-9 per day. My clinic dietician says that he is having enough creon for what he is eating, so they...
  17. B

    New Enzymes

    Sarah, my little boy has had changes since switching to the new formula of creon as well, so I think you may be be on to something! He was averaging 1 -2 b/m a day, now he is anywhere between 6-9 per day. My clinic dietician says that he is having enough creon for what he is eating, so they...
  18. B

    New Enzymes

    Sarah, my little boy has had changes since switching to the new formula of creon as well, so I think you may be be on to something! He was averaging 1 -2 b/m a day, now he is anywhere between 6-9 per day. My clinic dietician says that he is having enough creon for what he is eating, so they...
  19. B

    Vote for BEF!

    Done and sent to everyone I know to do the same! Natalie, Mom to Tom w/cf, DDF508, and Jack, 3 no cf
  20. B

    Vote for BEF!

    Done and sent to everyone I know to do the same! Natalie, Mom to Tom w/cf, DDF508, and Jack, 3 no cf
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