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I have just found out that our CF CLinic, which I was of the understanding were accredited by the CFF are not, despite them telling me they were part of the organisation on our first visit. Apparently they lost there status due to adult patients. We are only 3 months into this with our new bub...

I have just found out that our CF CLinic, which I was of the understanding were accredited by the CFF are not, despite them telling me they were part of the organisation on our first visit. Apparently they lost there status due to adult patients. We are only 3 months into this with our new bub...

I have just found out that our CF CLinic, which I was of the understanding were accredited by the CFF are not, despite them telling me they were part of the organisation on our first visit. Apparently they lost there status due to adult patients. We are only 3 months into this with our new bub...

HI Chelsea, we do nebs then CPT also, like the others have said the abuterol will open up the airways. I also flick the cup towards the end to make it run down from the sides - it really works. It usually takes around 15 minutes for this treatment. How many times a day are you doing it? We...

HI Chelsea, we do nebs then CPT also, like the others have said the abuterol will open up the airways. I also flick the cup towards the end to make it run down from the sides - it really works. It usually takes around 15 minutes for this treatment. How many times a day are you doing it? We...

HI Chelsea, we do nebs then CPT also, like the others have said the abuterol will open up the airways. I also flick the cup towards the end to make it run down from the sides - it really works. It usually takes around 15 minutes for this treatment. How many times a day are you doing it? We...

HI Chelsea, we do nebs then CPT also, like the others have said the abuterol will open up the airways. I also flick the cup towards the end to make it run down from the sides - it really works. It usually takes around 15 minutes for this treatment. How many times a day are you doing it? We...

HI Chelsea, we do nebs then CPT also, like the others have said the abuterol will open up the airways. I also flick the cup towards the end to make it run down from the sides - it really works. It usually takes around 15 minutes for this treatment. How many times a day are you doing it? We...

HI Chelsea, poor little Paige, hope she is okay!! Good luck with Matt's sweat test... we have not yet done Jack's - we are still deciding on whether we should do sweat test or blood test - seeing the genetic counsellor in a few weeks to make the decision. Let us know how you get on at the...

HI Chelsea, poor little Paige, hope she is okay!! Good luck with Matt's sweat test... we have not yet done Jack's - we are still deciding on whether we should do sweat test or blood test - seeing the genetic counsellor in a few weeks to make the decision. Let us know how you get on at the...

HI Chelsea, poor little Paige, hope she is okay!! Good luck with Matt's sweat test... we have not yet done Jack's - we are still deciding on whether we should do sweat test or blood test - seeing the genetic counsellor in a few weeks to make the decision. Let us know how you get on at the...

HI Chelsea, poor little Paige, hope she is okay!! Good luck with Matt's sweat test... we have not yet done Jack's - we are still deciding on whether we should do sweat test or blood test - seeing the genetic counsellor in a few weeks to make the decision. Let us know how you get on at the...

HI Chelsea, poor little Paige, hope she is okay!! Good luck with Matt's sweat test... we have not yet done Jack's - we are still deciding on whether we should do sweat test or blood test - seeing the genetic counsellor in a few weeks to make the decision. Let us know how you get on at the...

So should one not use the sweat test to test siblings? My 3 year old is due to be tested and we have been advised to do the sweat test.. should we do bloods first? Confused? Our three month old was diagnosed through newborn screening with double 508 and is doing really well so far! Our three...

So should one not use the sweat test to test siblings? My 3 year old is due to be tested and we have been advised to do the sweat test.. should we do bloods first? Confused? Our three month old was diagnosed through newborn screening with double 508 and is doing really well so far! Our three...

So should one not use the sweat test to test siblings? My 3 year old is due to be tested and we have been advised to do the sweat test.. should we do bloods first? Confused? Our three month old was diagnosed through newborn screening with double 508 and is doing really well so far! Our three...

So should one not use the sweat test to test siblings? My 3 year old is due to be tested and we have been advised to do the sweat test.. should we do bloods first? Confused? Our three month old was diagnosed through newborn screening with double 508 and is doing really well so far! Our three...

So should one not use the sweat test to test siblings? My 3 year old is due to be tested and we have been advised to do the sweat test.. should we do bloods first? Confused? Our three month old was diagnosed through newborn screening with double 508 and is doing really well so far! Our three...

Very interesting, is there any estimated timelines of when either of these drugs will be put into practice? I am new to all of this so am a little behind the latest information.. still just getting my head around the now....

Very interesting, is there any estimated timelines of when either of these drugs will be put into practice? I am new to all of this so am a little behind the latest information.. still just getting my head around the now....